Discussions By Condition: Cancer

Where do i go from here--16 mosold

Posted In: Cancer 1 Replies
  • Posted By: onescaredmomma
  • November 18, 2007
  • 09:17 PM

I'm really not sure what i'm looking for in posting but here is my story. At my son's 15 mo appt he was diagnosed failure to thrive...subsequent blood tests showed low white count, anemia,low platelets...abdominal CT showed nothing abnormal maybe a spleen that was"prominent" but not enlarged. A subsequent blood test showed lower white count(slghtly) lower hmg(slightly) and slightly higher platlets
He has always been a fussy baby and spit up all the time as a baby. NOw He eats one good meal a day and then just picks at the rest.
He now,1 month, later has swollen lymph nodes in his groin, his neck under his arms and inthe back of his head.
He has on and off low grade fever, never above 100, is tired within about 2 hours of getting up. he is always getting sick( he has two older siblings...but myunderstanding is that infection causes high wbc). and his scrotum has been red and SLIGHTLY swollen for a couple weeks.
I was told the only reason that cancer is not suspected is ecause there were no blasts in his blood smear, however i have researched and think i found htat up to 20% of blood cancers don't present with blasts in very early days.Does anyone know anything about this?
I feel liek i need to insist upon either a bone marrow biopsy or a lymph biopsy if not both. But he is so little and i have been told those hurt....:-(
I don't know what to do. DO i stick with the pediatrician or do i insist we see an oncologist/hematologist? anyone have any ideas for
one scared momma

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1 Replies:

  • It's ALWAYS best to trust your instinct-not your pediatrician's. My breast surgeon told me something that I think you should keep in mind-"Don't EVER let a doctor fool you into safety." If you feel he needs to see an oncologist or hemotologist, then by all means, take him. Best of luck! I'll be thinking about you and your son.
    dejpau3825 6 Replies
    • November 26, 2007
    • 03:44 AM
    • 0
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