Discussions By Condition: Cancer

Hodgkin's Disease/Hodgkinsons Lymphoma

Posted In: Cancer 10 Replies
  • Posted By: Anonymous
  • September 5, 2006
  • 07:29 PM

Hi my first thread and really I would like to give a little reassurence for anyone out there who has been diagnosed with Hodgkins's Disease - we call it Hodgkinsons Lymphoma in the U.K. At 21 my son was diagnosed with H. L. and the family were terrified - 21 my only child and cancer what could be worse. His tumour when the doctors finally got round to diagnosing him was six and a half centimeters and the cancer had wound it's way round his spinal chord. To cut a very long story short after 6 months chemo it got rid of a lot of the tumour but not all, and just before Christmas 2005 he had 3 months intensive radiation therapy on the tumour and also on the spinal chord. The day before his 24th birthday back in January this year and after 3 years of terrible worry we were finally told he was in remission. So my message to anyone who has it is - don't ever give up, fight it all the way, think positive thoughts, see the light at the end of the tunnel and head for it, I wish you the very best of luck, Joy. :)

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10 Replies:

  • hi our names are kerry and kim we have a friend that has been diagnosed with hodgkinsons disease thank you for letting us read your story we will think of this when we talk to our friend.
    Anonymous 42789 Replies Flag this Response
  • In 1997, my husband (31) was diagnosed with Hodgkins Disease. To make a long story short, Stage 2B , He did 6 months of chemo. ABVD was about to start radiation when it came back stronger than ever. One month of MOPP while he was being approved for a Peripheral stem-cell transplant and high dose chemo. He did that and radiation after. He has been cancer free for 9 years! We were scared to death everytime he got sick for a couple of years. But now we're NORMAL! Hang in there. God is great!
    Anonymous 42789 Replies Flag this Response
  • In 1997, my husband (31) was diagnosed with Hodgkins Disease. To make a long story short, Stage 2B , He did 6 months of chemo. ABVD was about to start radiation when it came back stronger than ever. One month of MOPP while he was being approved for a Peripheral stem-cell transplant and high dose chemo. He did that and radiation after. He has been cancer free for 9 years! We were scared to death everytime he got sick for a couple of years. But now we're NORMAL! Hang in there. God is great!Can anyone tell me how your hodgkin's disease was found? What were your symptoms. I love to read your stories. My husband is going through test right now and the dr's don't know what is wrong. I have been doing my own research on the web and i think he might have hodgkins. Anything would be appreciated. Thanx
    Anonymous 42789 Replies
    • September 4, 2007
    • 08:10 PM
    • 0
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  • I am not sure if you are still checking this, but in answer to your question about symptoms mine were simple things. Of course at the time they were kind of normal, but looking back it was obvious that something was wrong.I was 24 at the time and thought that I was a healthy male. My only symptoms were severe night sweats and the feeling that I was always tired. Of course it was the summer time when it hit me and I thought that the night sweats were because of the warm weather. I had always slept naked, so I figured that I had too many sheets on me at night. I would start off with two sheets (light ones I might add), and after a while I would wake up soaking wet. I'd kick off one sheet and see how that went, but would usually wake up a few hours later and would have to take the other one off. I would sleep with fans going or windows open wide, but that still wouldn't take care of it.I was doing laundry almost every day because my sheets were always soaked. Of course being the type of person I was I ignored it.The fact that I was always tired should have sounded some bells too, but I wasn't tired when doing things. I was tired as soon as I sat down. I found that I could go hours and hours working or playing, but sit for 10 -15 min and relax.....well I would fall asleep.I was out water skiing with some friends when I had fallen and hurt my shoulder. About an hour later a lump appeared on my neck, but I just thought that it was from the fall. At the end of the weekend the lump had got quite large (but didn't hurt at all) that I decided to go and see the doctor and ask him about it.Well the end result was Hodgkin’s Disease 2B.I went through the usual chemo and radiation therapy and found that it wasn't as bad as what the movies make it out to be. Now don't get me wrong it's not a walk in the park by any means, but it wasn't as bad as what I was expecting. And I don't mind telling you that I was scared like I've never been scared before.I will say this though. If you have a strong mind and a strong family and a real belief that you can beat this thing, then you will.At the start of my time at the hospital it was suggested to me that I seek counselling, but mid way through they came to me and asked if I would counsel other patients because my attitude was so good.Oh and by the way, I got sick in 1991 and am still clear and healthy now. Well all except for the fact that when I got sick I weighed 140lbs and now weigh 200lbs!!Be good, be strong and think positive thoughts, you can beat this!!!Good luck all,JohnToronto, Canada
    Anonymous 42789 Replies
    • January 29, 2008
    • 06:17 AM
    • 0
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  • HelloI thought I would leave a message if anyone is looking for support, when I was diagnosed in 2003 I felt quite isolated and never found any threads/posts where I could discuss my concerns.I would like to let you know that at first it seems like the scariest thing to happen, but you will get through it, and as the last guy said it's not a walk in the park but it's nothing like they depict in the movies.I was diagnosed when I was 21 I spent 8 months in chemo combo of ABVD AND SOMETHING ELSE that I can't remeber the name of, I then had 5 weeks intensive radiotherapy. I have been in remission now for 4years I do have a thyroid problem from the treatment and also had a bi-lateral mastectomy and full reconstruction because I had a high chance of breast cancer. But on a much brighter note I am happy, healthy and got married 6 months ago and I am also 3 months pregnant. WHen I found out I thought my life was over, I was so wrong, it has made a stong independant women who has a long life to look forward to.Good Luck - I wish you my very bestGemma
    Anonymous 42789 Replies Flag this Response
  • I am not sure if you are still checking this, but in answer to your question about symptoms mine were simple things. Of course at the time they were kind of normal, but looking back it was obvious that something was wrong. I was 24 at the time and thought that I was a healthy male. My only symptoms were severe night sweats and the feeling that I was always tired. Of course it was the summer time when it hit me and I thought that the night sweats were because of the warm weather. I had always slept naked, so I figured that I had too many sheets on me at night. I would start off with two sheets (light ones I might add), and after a while I would wake up soaking wet. I'd kick off one sheet and see how that went, but would usually wake up a few hours later and would have to take the other one off. I would sleep with fans going or windows open wide, but that still wouldn't take care of it. I was doing laundry almost every day because my sheets were always soaked. Of course being the type of person I was I ignored it. The fact that I was always tired should have sounded some bells too, but I wasn't tired when doing things. I was tired as soon as I sat down. I found that I could go hours and hours working or playing, but sit for 10 -15 min and relax.....well I would fall asleep. I was out water skiing with some friends when I had fallen and hurt my shoulder. About an hour later a lump appeared on my neck, but I just thought that it was from the fall. At the end of the weekend the lump had got quite large (but didn't hurt at all) that I decided to go and see the doctor and ask him about it. Well the end result was Hodgkin’s Disease 2B. I went through the usual chemo and radiation therapy and found that it wasn't as bad as what the movies make it out to be. Now don't get me wrong it's not a walk in the park by any means, but it wasn't as bad as what I was expecting. And I don't mind telling you that I was scared like I've never been scared before. I will say this though. If you have a strong mind and a strong family and a real belief that you can beat this thing, then you will. At the start of my time at the hospital it was suggested to me that I seek counselling, but mid way through they came to me and asked if I would counsel other patients because my attitude was so good. Oh and by the way, I got sick in 1991 and am still clear and healthy now. Well all except for the fact that when I got sick I weighed 140lbs and now weigh 200lbs!! Be good, be strong and think positive thoughts, you can beat this!!! Good luck all, John Toronto, Canada im 16 years old and got diagnosed with hodgkins lymphoma stage 4B about four months ago. I was SOO scared, but youre right it isnt that bad after all. well, okay i have almost died two time but STILL! :D haha ill have alltogether 8 months of treatment (chemo and radiation) sometimes i get in so much pain but then you have to just think positive and think of youre happy cancerLESS life :D haha oh! and i got my spleen removed a few days ago to prevent a relapse. good luck for all of you! sapu92@netti.fi
    sabuskin 7 Replies
    • January 24, 2009
    • 08:56 PM
    • 0
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  • Hi Sabuskin,I am John W and haven't been on this site for a very long time. In fact I forgot about this site as it was on an old computer and I was just cleaning out my favourites list when I came across this.A long time has past since either one of us have posted, so I don't know if you are still checking in or not.At this point you are now 17 and probably have a great time with your friends enjoying your summer break from school....well that is if you get a summer break from school?Also to Gemma if you are still looking in on this, that's great new to hear about the pregnancy. So was it a boy or a girl.....or both?I wish the very best to all of you that have been hit with cancer, and hope that you all live a healthy and long life.John
    Anonymous 42789 Replies Flag this Response
  • hey!Actually, next week starts the scans (PET and MRI) and stuff.. After that i have a doctors appointment and she will tell me whats the deal! *Wish me luck*I still cannot be "normal" for a long time, because my hip bones have osteonecrosis and it hurts sometimes so much that i just want to go to sleep and be angry at my self alone.Its been a LONG road and at last i see a little light at the end :) Its been sometimes really hard like the time i got so bad bone pain (imagine the most painful thing and that times 10) i cried and screamed for two days straight, there wasnt a minute where i would have stopped crying. I didnt even sleep.. AT ALL! But thats the past and i hope i will not have to go through it again.. EVER! :) I think that my job is now to spread the word to GO TO THE DOCTOR if you even are not sure why! i had all the signs but didnt go, because i have(HAD) a fobia of needles and doctors :D Good luck to everyone! <3 Best wishes, Sarita :p
    sabuskin 7 Replies Flag this Response
  • hey!Actually, next week starts the scans (PET and MRI) and stuff.. After that i have a doctors appointment and she will tell me whats the deal! *Wish me luck*I still cannot be "normal" for a long time, because my hip bones have osteonecrosis and it hurts sometimes so much that i just want to go to sleep and be angry at my self alone.Its been a LONG road and at last i see a little light at the end :) Its been sometimes really hard like the time i got so bad bone pain (imagine the most painful thing and that times 10) i cried and screamed for two days straight, there wasnt a minute where i would have stopped crying. I didnt even sleep.. AT ALL! But thats the past and i hope i will not have to go through it again.. EVER! :) I think that my job is now to spread the word to GO TO THE DOCTOR if you even are not sure why! i had all the signs but didnt go, because i have(HAD) a fobia of needles and doctors :D Good luck to everyone! Hi Sabuskin,Well clearly you and I don't get in here too often. LOL......That sure sounded quite painful. I sure hope for your sake that it's all behind you now and things are going much better?It's kind of silly really to think that you could have caught this disease a little earlier had you not been so worried about getting needles. In the end look how many more needles you've had to have, not to mention all the other tests!!I really like your idea of spreading the word. I sure hope that there are people out there who are listening to you!I try telling people that I know (when the opportunity presents itself of course), to take caution with a lot of things. Obviously smoking is one of them, but not too much sun, stay away from those sun bed places (or what we call fake'n'bake).Well like I said I hope that things are going much better for you, and I will try and pop back in here in the next few days.John
    Anonymous 42789 Replies Flag this Response
  • Hi Sabuskin,Well clearly you and I don't get in here too often. LOL......That sure sounded quite painful. I sure hope for your sake that it's all behind you now and things are going much better?It's kind of silly really to think that you could have caught this disease a little earlier had you not been so worried about getting needles. In the end look how many more needles you've had to have, not to mention all the other tests!!I really like your idea of spreading the word. I sure hope that there are people out there who are listening to you!I try telling people that I know (when the opportunity presents itself of course), to take caution with a lot of things. Obviously smoking is one of them, but not too much sun, stay away from those sun bed places (or what we call fake'n'bake).Well like I said I hope that things are going much better for you, and I will try and pop back in here in the next few days.JohnHi Sabuskin,It's John again.I was just looking over some of my bookmarked sites and I came across this one again. I just wanted to pop in and see if there were any updates from you, or anyone that I have talked to before.I hope that everyone is well and living life to the fullest.Warm regards to all.John
    Anonymous 42789 Replies
    • August 28, 2010
    • 07:25 PM
    • 0
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