Discussions By Condition: Cancer

Complex cystic lesion on spleen

Posted In: Cancer 1 Replies
  • Posted By: Anonymous
  • May 9, 2007
  • 04:13 AM

Ack, where to start. I have a *cyst* on my spleen. Measuring 6.5 cm x 5.5 cm.( was found incidently BTW, 2 years ago!) At the time I was told to have a follow up CT in a year or so. Took me 2 years to get that CT. *cyst* hasnt changed. Told to see a surgeon. I tell him Im convinced I have Lymphoma. He laughs at me.Tell me I need spleen out ASAP that its a time bomb waiting to go off. Im going for a 2nd opp. in a week. Im hoping to be able to have the surgery laproscopickly.( actually im hoping to have NO sugery but i doubt that will happen) I have weird skin rashes that come and go. Itching bad at times. Also in the past few months I have had swollen glands in my neck. I of course didnt think anything of it. Like the skin itching it comes and goes. I now have a painful node in my neck. From what i have read it is a odd thing to have a *cyst* on your spleen. ALso on the report from 2 years ago something came up. WHen i googled it it said could be lymphoma. I'll have to dig it out and I can let anyone know what it was. Im thinking though, how could I have lymphoma for 2+ years and not klnow it. KWIM? Ok just venting. ANy input would be great.

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  • Our stories are much alike and I am also trying to find answers. Last summer I began feeling extremely fatigued, itched all over (came and went), occasional chills and low grade fever. Also I had pain in my armpits, neck, collar bone and groin. The pain worsened when I would occasionally have an alcoholic drink (which is a symptom of Hodgkins Lymphoma). My doctor told me at first that she thought it was my allergies. Then when I was hospitalized in October with these symptoms along with chest pain, after three days of testing, she told me she her diagnosis was that I was fighting off some kind of virus, even though when they did an abdominal ultrasound they found a complex cyst on my spleen. They told me to have a follow-up ultrasound of my spleen in six months. Well since October, the pain in my lymph nodes has increased and since the doctor could not FEEL any lumps in the lymph node areas, she sent me in for an ultrasound of my lymph nodes. It showed that just the lymph nodes in my groin were enlarged. My doctor was not going to proceed any further from there, so I insisted that the do a lymph node biopsy, since that is the only way to be 100% sure whether I have lymphoma or not. She sent me to a surgeon to discuss removing a lymph node from my groin for biopsy. The surgeon told me that it didn't matter which lymph node they removed because if you have lymphoma in one lymph node then you have it in all of your lymph nodes. So he suggested removing one in my neck, since that would be less evasive.Well I had the surgery on 3/8/2011 and the biopsy was negative for cancer. They also could not determine why my lymph nodes hurt. They only told me that they were enlarged because they were producing antibodies to fight off something, but they didn't know what.I do not know how large the cyst is on my spleen, but I have an appointment to go back for another ultrasound this April 6th. I still have symptoms of lymphoma and I have lost 9 pounds since the lymphectomy!! I think I DO have lymphoma, but it is in the early stages (still in my spleen) and has not spread to the lymphatic system yet. I could be wrong, but my body is telling one thing and the doctors are telling me something else. I just want to feel better. When I am not working (which is difficult) I am sleeping. I want my life back!!! It is good to talk to someone who is having similar problems. Maybe I will know more after this next ultrasound of my spleen.
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