Discussions By Condition: Cancer

carcinoid tumor on pancreas

Posted In: Cancer 2 Replies
  • Posted By: Anonymous
  • March 13, 2007
  • 04:31 AM

a family member of mine just found out she has a carcinoid tumor the size of a grapefruit on her pancreas, more specific, may be sitting just above the pancreas and liver. Her 1st diagnosis was end stage cirrhosis of the liver, then adenocarcinoma of the pancreas, but today at her oncologist appointment, he said it was not the adenocarcinoma but rather the carcinoid tumor. she is supposed to go and consult with a surgeon about removal of the tumor. they say they may not be able to remove it all, but maybe enough to slow the effects. does anyone know the survival rate of this? im really worried as she has ascites (the swelling in the abdomen) at times the size of someone 6 mths pregnant. any info would be greatly appriciated.

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  • A close family member of mine it also having the same condition... large mass arising from tail of pancreas (approx 8cm x 11cm)... her stomach looks a little bloated.Besides blood test (which only returned a slight elavated AFP level, whilst CEA and CA19-9 is well within normal limit), fine needle biopsy was done and pathology reported as adenocarcinoma of pancreas.After going for 2 sessions of chemotherapy - first session was about 3 months long and patient was subjected to weekly dose of gemcitabine... at the end of 1st session, CT scan revealed no significant change.The 2nd session of chemo was about 1.5 months involving continuous 24x7 infusion of chemo drug cocktail (5flu, oxilaplatin, gemcitabine and avastin). This was done at a different hospital which include an additional blood test for beta HCG (which showed elevated levels).. there was improvement, the tumor shrunk but was still substantial... oncologist suspected something amiss with the result of initial biopsy. Oncologist recommended removal of tumor.We are currently seeking a second opinion and inital prelim assessment indicates possibility of carciniod... which there are 2 "types"... one that is on the pancreas only (good possibility of resection and good outcome)... and the other is on both the pancreas and liver (there's possibility of resection but a fair outcome)... we're awaiting results of analysis.
    Anonymous 42789 Replies Flag this Response
  • For those of your with carcinoid cancer, gastrinomas, insulinomas, islet cell tumors, and other neuroendocrine tumors and cancers, there is a big conference in Norfolk Virginia in September where all the specialists stateside, canada, and some other specialists from Europe will be.The web site is www.carcinoidnetconference.orgI went to the one last year and it was awesome! Even though I go to a specialist - I learned lots.
    Anonymous 42789 Replies Flag this Response
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