Discussions By Condition: Breast Conditions

Excruciating breast pain for 1 1/2 years

Posted In: Breast Conditions 19 Replies
  • Posted By: Anonymous
  • September 21, 2008
  • 00:40 PM

I have been having excruciating breast pain on one side only for a year and half. I have been to many doctors and many tests. A neurologist thought it may be neuropathic pain, but we can not find the cause of the neuropathy. I recently had a breast mri and spoke to a breast surgeon who told me the mri was normal. I asked her to help me figure out what it was because it effects the quality of my life. I have been keeping a log for over a year. It is NOT related to my menstrual cycle. It is pretty much every day, some level of intensity, from 1-9. Above a 7 it feels like I should go to the ER. The pain is NOT RIGHT and there must be some scientific cause, but no one has come up with one. the breast surgeon said it may be time to consider it's non cyclic breast pain, and she even told me she has done double mastectomies on some women for it. I was dumbfounded. I am looking for other women that have same experience, because it just doesn't seem possible pain so bad can have no known cause.
pain description below.
right breast, under breat, side of breast. Multi layered. heavy deep constant burning type of pain, coupled with slow shooting jabbing stabs of pain that come and go. Some times every 30 seconds. Sometimes the shooting part isn't there at all and it's just the heavy, deep contstant pain. There are no triggers and nothing helps.

does anyone have similar problems????:(

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19 Replies:

  • It seems odd to have pain with no identifiable cause. To start out simply, examine what you do each day. Pay close attention to anything that involves the posture, position or pressure upon your right breast and surrounding area. Another thing to consider is the type of bras you wear. Make sure your bra is well fitting and not putting undue pressure somewhere on your breasts.Try to notice when you are NOT feeling the pain, when does that happen?After eating, when relaxing? After sleeping? Does massage help, soaking in the tub? Warmth or cold compresses? Mild excersise?Also, when is the pain worst? Do you spend a lot of time on the computer using a mouse with your right hand?I would also make sure you are drinking enough water and getting a healthy amount of minerals and vitamins.IMPORTANT: One final thought - a friend had breast pain because of this - LAY OFF THE CAFFEINE. It sounds crazy, but it really happens. STOP drinking caffeinated soda pop, coffee, chocolate etc. for at least a week. If you're a heavy consumer of pop or coffee, taper off for a few days until you can stop completely, or at least reduce your consumption a lot. Caffeine can really cause "mystery" breast pain. Chocolate in small amounts isn't so bad, but soda pop are coffee are the killers here and frankly, they're not that good for you anyway. By the way, as you could have guessed, my friend quit consuming caffeine and her pain stopped!I do hope your solution is that easy and you won't have to suffer any longer.Good luck!
    Magic Lamp 3 Replies
    • September 25, 2008
    • 04:01 AM
    • 0
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  • By the way, if caffeine is the cause of this mystery pain, do everyone a favor and tell that doctor who is giving double mastectomies to women because of pain! Yikes!
    Magic Lamp 3 Replies
    • September 25, 2008
    • 04:22 AM
    • 0
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  • Thank you for your input. Last year I did the no caffeine for 6 months. Also tried low-fat diet (lost 40 pounds) and evening primrose oil. These things did not help, so I started drinking coffee again. I've tried to look for triggers and I just can't figure it out. Nothing helps and nothing triggers. Which is why I believe it could be nerve related somehow...My last doctor visit will be to a neurologist in Boston, if she can't come up with anything...
    Anonymous 42789 Replies
    • September 25, 2008
    • 00:29 PM
    • 0
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  • I believe the caffeine related pain has something to do with caffeine causing the blood vessels to constrict. The blood vessels do not dialate with caffeine as some people assume.I would cut back on the caffeine again and try some walking or light exercise a few times a week to get the blood flowing...nothing too strenuous, just something to get things moving. It will also help to detoxify your bod.Wear good support if needed, of course, and drink lots of water, some before and during any work out. Drink it slowly, though. Slamming it down won't allow your body time to absorb it.Does the breast feel better or worse immediately afterward -- and how about the day after? If there is a change you may be onto something.
    Magic Lamp 3 Replies
    • October 1, 2008
    • 05:31 PM
    • 0
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  • I have what sounds like the exact same problem that you do, and for a year now. Right breast, same sensations, my pain ranges from cleavage side of the breast to outside. Feels worse when I lay down. I am 37 yrs old. This started when I was 36. When it first occurred my Dr. sent me for a mamogram which showed nothing. It's a year later and I swear for the past month it has been more and more frequent pain. I cannot understand this and am seeing my doctor again on Wednesday. It is very stressful to deal with this because I am afraid they might just be missing something that could be cancer. If you end up getting a resolution to your problem please post it. It eery how similar yours sounds to mine.Thanks very much.
    Anonymous 42789 Replies
    • October 6, 2008
    • 09:54 PM
    • 0
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  • I just started having this horrible pain in my right breast. I am 34 yrs old... am weaning my son. I went to the doctor today and he said it was probably a "nerve" and to take motrin. I can't get any pain relief and the pain is absolutely unbearable! Have you found any more information about this? I have had it for several days and cannot imagine it continuing. I can't function it's so painful. It's worse in the evenings and at night. HELP!!
    kpsalabama 2 Replies
    • November 27, 2008
    • 07:30 AM
    • 0
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  • Dear inphiladelphia and kbsalabama, After 18 months the search for cause of the pain has ended. I've exhausted all possible medical diagnostic possiblities. Mamograms, breast mri, neurologists (2 of them), rheumatoligists, primary care, obgyns, chest xray, ultrasound, catscan, blood tests...all negative. I suggest you keep searching until you have exhausted all possiblities as well. Because I know...the pain is so bad, there HAS to be a cause. Motrin does not touch it. I found myself a wonderful therapist who specializes in pain management, and she has helped me work through the emotional part of it. I have also started excercising, which seems to help a little (increase serotonin blocks pain receptors). I also use a heating pad..not sure if it helps, but it feels good and tones down the pain a bit. Good luck, and keep fighting.
    Anonymous 42789 Replies
    • November 27, 2008
    • 04:47 PM
    • 0
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  • Thanks for your reply. I weaned my son over the holiday weekend and the pain is much better. I don't know what I would have done if it had continued- it felt like torture. I hope you find an answer for your pain. Good luck to you!
    kpsalabama 2 Replies
    • December 3, 2008
    • 05:41 AM
    • 0
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  • I had periodic breast pain that ranged from mild to excruciating. There were times I felt like the pain was shooting from inside my breast through my nipple. A few months ago, I noticed a tugging feeling with pain every time I took a sip of soda. No other liquid affected me that way. It was jarring though because as soon as I swallowed, the pain would occur in my right breast only.I have almost totally quit drinking soda. Now I drink maybe one every few weeks. The pain has subsided. I'm not due for a mammogram yet, but I think I might go for one just to make sure. Never realized what carbonated beverages would do to me!
    Anonymous 42789 Replies
    • February 22, 2009
    • 05:19 AM
    • 0
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  • Hi there,I think i have the same pain as you are speaking about...I have had it for about ten months but it is in both breasts not just one and it also runs down both arms and in my neck and back. I have been to many doctors including; a breast surgeon, endocronologist, neurologist, general practitioner, and many eastern specialist.They have told me that it is 'Severe Bilateral Mastalgia' but i'm not so sure...The only explanation they have is that my breast tissue is allergic to my hormones but there is no proof of that. The pain level is around 5-10 at all times and it is cyclical, whilst ovulating and just before my period i am usually bed ridden. I am also unable to exercise.I would really like to discuss this with you further if you are not to sick of talking about it?My email address is: stephanie@leadingedgeevents.com.auI would be extremely appreciative to hear from you!Stephanie (21yrs, Melbourne Australia)
    StephanieLouise 2 Replies Flag this Response
  • Hi there!What a relief to find this site. I have been thinking that I am going crazy! I am 55 years old and postmenopausal - not taking HRT.A few months ago I went to the doctor re a rash on the right breast. She sent me off for a mammogram and then to a surgeon specialising in breast cancer. All clear! But I am experiencing a great deal of discomfort in the breast. Surgeon says it is just one of those things and it could disappear as quickly as it came and suggested evening primrose oil daily.The discomfort is like a burning sensation on the inside of my breast near the breastbone and I sometimes get sharp pains shooting up from the bottom of the breast. Sometimes the breast feels heavy and uncomfortable but that feeling doesn't last very long. Directly in line from the breast around towards my back it feels like the muscle is tight and very sore. I have been having physiotherapy for about 6 weeks to try and alleviate the pain in the back but nothing seems to have worked. I have had the odd sharp shooting pain in the middle of my chest as well which makes me think that there might be a touch of costochondritis but the surgeon sent me for blood tests to check for inflammatory conditions and these were all clear as well.I am so depressed at present as I just never seem to feel comfortable. Some days are much better than others but this constant nagging pain and discomfort is starting to wear me down. I can't seem to function like I used to.I have cut out caffeine containing drinks from my diet and am about to cut out chocolate as well (the only thing that makes me feel a little better!). OTC pain killers don't seem to have an effect, neither did the anti inflammatory that I took for a while.I am considering acupuncture as a last resort. Has anyone tried acupuncture for this condition, and if so, what were the results?I look forward to hearing from someone soon.(I bet that if it were men who suffered from this affliction a lot more attention would be paid to finding causes and cures!)
    Anonymous 42789 Replies Flag this Response
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  • Hi,That doesn't sound like much fun at all! An interesting situation because all the doctors I have seen have said that this sought of thing usually goes away after menopause...I think they were probably right when they said it may go away just as fast as it came! It seems that nobody really knows much about breast pain...I have tried acupuncture and other eastern medicines but none of them helped! eg; spoons, herbs, lymphatic massages...My pain has eased off slightly and I am able to move around normally again! It is still there everyday but it is a lot more bearable. Pain killers and anti-inflammatory tablets didn't help me either, i think they are probably more of a hindrance to your health than anything.I'm sorry I cant really help you... I think the only thing that may help us is TIME!I wish you all the best and if you have any other queries regarding other treatments I have tried, please do not hesitate to ask.CheersStephanie
    StephanieLouise 2 Replies Flag this Response
  • Hello, I have been having the same pain in my left breast, the sharp jabs, cutting pain throughout the breast. For a year and a half. Been to several drs, mammo, ultrasound, MRI's, the whole nine yards. All negative. Today I was looking online and came across this site. I decided to tell my story. Well, I was told by my doctor that the core inside your breast seperates with age. And large lumps appears in different quadrant of the breast. As it seperate it causes the sharp pain. Once it returns to it original state. The pain subsides. But it happen every two to three weeks. I have tried pain killers, but didn't want to become depended on them. So my dr prescribed Lidocaine patches. And they works great. It gives you some normalcy back into your life. They works for 12 hours a day. Then you go, 12 hours without. Try the pain patches. And also, stay clear of the caffeine. Thanks for listening, Glinda
    Anonymous 42789 Replies
    • November 18, 2009
    • 10:28 PM
    • 0
    Flag this Response
  • I have been having excruciating breast pain on one side only for a year and half. I have been to many doctors and many tests. A neurologist thought it may be neuropathic pain, but we can not find the cause of the neuropathy. I recently had a breast mri and spoke to a breast surgeon who told me the mri was normal. I asked her to help me figure out what it was because it effects the quality of my life. I have been keeping a log for over a year. It is NOT related to my menstrual cycle. It is pretty much every day, some level of intensity, from 1-9. Above a 7 it feels like I should go to the ER. The pain is NOT RIGHT and there must be some scientific cause, but no one has come up with one. the breast surgeon said it may be time to consider it's non cyclic breast pain, and she even told me she has done double mastectomies on some women for it. I was dumbfounded. I am looking for other women that have same experience, because it just doesn't seem possible pain so bad can have no known cause.pain description below.right breast, under breat, side of breast. Multi layered. heavy deep constant burning type of pain, coupled with slow shooting jabbing stabs of pain that come and go. Some times every 30 seconds. Sometimes the shooting part isn't there at all and it's just the heavy, deep contstant pain. There are no triggers and nothing helps. does anyone have similar problems????:(Hi chaup, I'm only 24 y/o, I been suffering this pain like you have for over a year,had some test done and Dr.said there's nothing to worry about,but it still stressing me.I'm glad i found this site and give me a lil relief knowing that im not alone,though i'm hoping we'll feel better.
    rockheart23 1 Replies Flag this Response
  • I ahd swelling and pain in both breasts, worse as I got older. The pain would keep me awake or wake me up if I rolled over at night. I also had extreme PMS with emotions going crazy, somewhat schitzophrenic as I would misinterpret what family and friends said and get extremely emotional - anger, crying, screaming, and suicidal thoughts. It was horrible. Progesaterone only made it worse.Then in my late 30's, my homone levels were quite low, attempts to add small amounts of estrogen and progesterone swelled my breasts horribly, and no doctor could suggest anything for the pain. Got the cut out caffeine and salt talk. I woulod have taken morphine or anything to get rid of the constant pain. Even the movement when walking was horrific. No hugging, wore an underwire bra continuously and hated taking it off for a shower.At age 43 the pain was going on for over a year. Vicodin for my back, did not help the breast pain. Anything brushing against either swollen breast would cause me to cry out, and once I actually dropped to the floor.By the end of my 43rd year I was considered post menopausal and the pain did end. NowI only have swelling and pain when a doctor tries to add estrogen and/or progesterone to adjust my low levels. It takes a few months for the swelling and pain to stop from just one attempt at supplementing.Never found anything that helped the pain, cold and ice, heating pad, pain killers - nothing. I have also been diagnosed with Fibromyalges, have bad lumbar and cervical discs, stenosis. Arthritus and swelling of wrists and fingers.
    burmack 1 Replies
    • October 13, 2011
    • 05:36 PM
    • 0
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  • I'm in the same situation; breast pain for over a year 3 weeks out a month. Pain ranging to 5-10I have had severe test done. Prolatin level normal. Hormone normal, blood tests normal..first Se of mamo were abnormal but normal now My breast are also swelling with greenish discharge for the same amount of time. Also testing no infection. My upcoming, breast cancer specialist & gyno say this NOT normal. And most Likely a breast desease of somsirt. They have never seen a patient with pain discharge with testing all coning back normal!!!!!!I have been to 3 doctors in one day. I feel your pain... can anyone help!!!!!!"
    leverest7 1 Replies
    • January 28, 2012
    • 01:10 PM
    • 0
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  • I have had the same thing not for years for about 2 weeks , i went and had a mammogram done then i had a ultra sound not luck on finding the cause , the test results were negative thank god they were . But i ask about the pain and the doctor there said i have no idea maybe you need some blood work . I am not a doctor but do you think someone would know why we have pain like this . My pain comes and goes sometime is f i bump it or some one hits me there or a i lay on it can trigger it off and sometimes it just is there and the pain is so bad , I think if a doctor had this kind of pain they figure out why . And yes told to lay off caffeine but i have drank coffee all my life how can this just start now . Well going to have blood work done i have read that any kind of arthritis can cause the same problems to and i have that so we will see
    phillyb85 1 Replies
    • December 20, 2012
    • 05:28 PM
    • 0
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  • Hi, This is a long shot but...
    I've had the same problem for almost 2yrs but in my left breast. Tried all sorts, nothing shown on ultrasound (that's got to be good) just had 4 sessions of acupuncture to see if that helps. The post is from 2008, is it any better, did you ever find out the cause? Any advice?
    Anonymous 1 Replies
    • November 3, 2014
    • 08:54 PM
    • 0
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  • Anyone still following this thread?
    Anonymous 1 Replies Flag this Response
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