Discussions By Condition: Brain conditions

what is it

Posted In: Brain conditions 8 Replies
  • Posted By: Anonymous
  • August 15, 2006
  • 02:51 PM

I was diagnosed as having epilepsy 14 yrs ago, and just accepted it. I always knew hours before I was gonna have a siezure and used to take myself off on my own. I was never aware of what happened or what I did only the injuries I woke up with.
recently I`ve been with friends when I`ve had them and have been told that it is not epilepsy but more anger, after spending time talking things through they have now changed. I am fully aware while I go through these episodes but have no control over my body movements. I can hear what`s being said to me and understand it but cannot control my body shaking which at times can be violent and causes injuries.
I do have a severe back problem and one area of this is that my spinal column is half the width it should be and is thickening on the inside crushing the nerves, wether this has anything to do with things I don`t know, I`m also a person who shows very little emotions and tends to keep feelings bottled up inside, I know when I`m angry or upset it brings on these episodes.
I also can get up wander around and have a conversation inbetween but I rarely remember doing so.
Does anyone have any idea of what this could be or where a good place to look for imformation about them.

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8 Replies:

  • Hi!I hope i can answer your worry.I have a husband and sister that have siezures and each one of them have diffrent sorts.My husband has Tonic- clonic (grand mal)and my sister has Partial(focal)she also now and again has grand mals.When the partial one kicks in they start with muscule contractions or unusual sensations at one part of the body and it spreads so the body goes into shaking without her loosing consciousness she gets gets loss of speech and she gets a little confused on times.I think it could be the same as hers but it is still having a seizure.I hope this helps a little for you and wish all the best for the future.Mandy
    Anonymous 42789 Replies
    • August 15, 2006
    • 07:36 PM
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  • Thanks mandy, I'm not convinced this is epilepsy. I've had a friend talking to me during these to keep my mind focused on where I am and I'm am actually able to communicate by sqeezing my left hand but that is all the control I have. I have a fairly good medical knowledge and I know that if I had epilepsy I would not be able to do this. Also if by having someone there and being able to focus and communicate has made them change so I am aware them surely I should be able to progress this? I know my head is banging and my body shaking and I can conciously move one hand but have no other control. if anyone knows of this happening to anyone else please let me know
    Anonymous 42789 Replies
    • August 16, 2006
    • 10:02 AM
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  • My boyfriend is having very similar symptoms. A couple of months ago he was playing tennis and said he had a pain down his leg - a back nerve problem. He stopped playing for a few weeks and then played again. That night he went into his first seizure. He was conscious but his entire body and head was shaking and his neck muscles tightened up and he had problems breathing. Since that time the seizures have become more frequent and can happen between 1 and 3 times daily. They last between 10 and 30 minutes. Does anyone have a clue what this might be? He doesn't lose consciousness but they are very scary. They rarely occur in the morning and most frequently at night between 6-8 pm.
    Anonymous 42789 Replies
    • October 17, 2006
    • 04:19 PM
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  • I am very simular. I know maybe 5 to 10 mins before its going to happen.my head stars getting pains in the back and i fill like im outside of my body if you can understand that feeling. very dizzy and light headed.than my body will tense up and i shake from my head down to my feet. at first i was awake the whole time and knew what was going on but the more i have them the worse im getting and not remembering and not staying awake.i have been having them for about 3 months now and i dont know what is happening to me.i recently wrecked and they said when they got there i was actively having a seizure. they have done a ct scan and that came back fine they are doing a eeg if that comes back fine i still have no answers and i am very afraid exspecially sence i have wrecked now. if anyone has any info i would really appreicate it more than u know!I also have fibromayilgia.
    Anonymous 42789 Replies
    • November 24, 2006
    • 08:38 AM
    • 0
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  • Hi Beety,Visit as many websites discussing psychomotor seizures as you can, for an overall view on this condition. It reflects most of what you have been experiencing and similar reasons for your seizures.Also, with your narrowing of spinal cord there must also be some involvement of that in your problems; you can’t have spinal nerves depression without experiencing problems and the overlapping of conditions is why so many people cant get proper or any diagnosis, because many doctors only want to look at one thing to treat or pin the blame on.You may also like to investigate thickening of the spine to find out what causes this and what remifications it has.My cerebral palsy quad friend has similar problems but for different reasons since it is part of nervous system damage.Have you had an MRI on your brain?Agape,Searchingsam.
    Anonymous 42789 Replies
    • November 24, 2006
    • 01:39 PM
    • 0
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  • Please read more about seizures/Epilepsy. Epilepsy is defined as a seizure disorder... It is not a disease. A lot of times there is no known reason for it. It can happen to you out of the blue at any age. I developed it at age 36. Never a seizure before then.There are more than one kind of seizure. You can be fully awake. You can be half aware and "respond" to people while you are having one. Or you could have the Grand Mal type. Angry seizures are common. You don't have anger management issues...it is your brain misfiring!!! :-)One test is to get the person witnessing to tell you to remember something that you normally wouldn't think of (while you are having one of your spells): like a random political name or event or they could give you 2 or three words or dates to remember. Then when the spell is over see if you can tell them what they told you. Squeezing someone's hand on command may not fully disclose what you are going thru or capable of during these spells.I have simple partial seizures (awake) they effect my right shoulder/arm and cause me to do ab crunches or bow if I am standing or sitting up. I can carry on a conversation and remember it although I don't like speaking while it is happening. It just depends on what part of your brain is misfiring to know what kind of seizure you are having.Please see a Neurologist as soon as possible. & be careful.
    Anonymous 42789 Replies
    • December 20, 2006
    • 00:35 AM
    • 0
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  • Please read more about seizures/Epilepsy. Epilepsy is defined as a seizure disorder... It is not a disease. A lot of times there is no known reason for it. It can happen to you out of the blue at any age. I developed it at age 36. Never a seizure before then.There are more than one kind of seizure. You can be fully awake. You can be half aware and "respond" to people while you are having one. Or you could have the Grand Mal type. Angry seizures are common. You don't have anger management issues...it is your brain misfiring!!! :-)One test is to get the person witnessing to tell you to remember something that you normally wouldn't think of (while you are having one of your spells): like a random political name or event or they could give you 2 or three words or dates to remember. Then when the spell is over see if you can tell them what they told you. Squeezing someone's hand on command may not fully disclose what you are going thru or capable of during these spells.I have simple partial seizures (awake) they effect my right shoulder/arm and cause me to do ab crunches or bow if I am standing or sitting up. I can carry on a conversation and remember it although I don't like speaking while it is happening. It just depends on what part of your brain is misfiring to know what kind of seizure you are having.Good luck!
    Anonymous 42789 Replies
    • December 20, 2006
    • 01:39 AM
    • 0
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  • my name is Julie and I have been experiencing sleepwalking/nocturnal seizures along with daytime pettit seizures where I just stare, people think I'm just daydreaming. I do have a great Neurologist and curently am taking low dose Klonopin at night. My concern as well as my fiances's is the wandering I do. I was found outside the other night in 17 degree weather with just short sleeeved shirt and sweat pants no shoes I was out we fuigured maybe 30 minutes. Has anyone else experienced this? I also just get up and wander around saying "I have to ger there but we can never figure out where "there" is. any support would be greatly appreciated.
    Anonymous 42789 Replies
    • February 13, 2010
    • 02:37 AM
    • 0
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