Discussions By Condition: Brain conditions

Two year old with DWS

Posted In: Brain conditions 2 Replies
  • Posted By: Anonymous
  • February 27, 2007
  • 06:51 AM

I have a two year old boy that was diagnosed with dandy-walker syndrome before birth. We had to find out a lot of things about this on our own. He is not setting up on his own for long periods of time yet. He is not walking or talking yet and his teeth seem to be coming in a lot slower then our other two children. I would like to know if there are things you can do to help him learn how to chew, walk, and talk. He is a very bright young boy who's mind seems to want to do a lot but his body just don't know what to do yet. I know every child is different but your experience would really help me and my family. May God bless you and whatever you may be going through.

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2 Replies:

  • You should talk to your pediatrician about having your son seen by a physical therapist and perhaps a speech therapist.I assume he's being followed by a pediatric neurosurgeon or neurologist. Dandy-Walker itself is not a progressive condition, but can be associated with hydrocephalus -enlargement of the fluid-filled spaces in the brain - which can cause progressive problems if not treated. I don't think everyone gets hydrocephalus, though.
    Anonymous 42789 Replies
    • February 28, 2007
    • 02:41 AM
    • 0
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  • I am a 27 year old with DWS, and i was slow to progress as a child also! My mother and father thought I was just stubborn because I would not speak until I was 4 years old! I was not diagnosed until I was 25! In school I had to go to a speach thearpist! It depends on the severity of the condition, but hold your head up and stay strong and patient! I am now a college student with a 3.6 GPA, I have 4 beautiful children and only few sympyoms now that include:Migraines (the reason in which I was diagnosed), dizziness, nausea, and clutzy! I wish you and you son the best of luck!
    Anonymous 42789 Replies Flag this Response
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