I have a condition that has been diagnosed as trigeminal neuralgia, but in reading other people's posts on the subject, i doubt the diagnosis.
background: have for 5 years what has been diagnosed as fibromyalgia, but have had no luck with any treatment other than painkillers, and have had odd lab tests for the last year (low c3 and c4 once, then low c4 alone 4 times in the last year. deficient vitamin d, but that was in january, and fixed with a normal multivitamin. negative on 6 different kinds of ana tests.)
the left side of my face gets weird if i touch it. (putting on makeup, hair brushing against it). it doesn't hurt, but the feeling of being touched, instead of going away as soon as i remove my finger, makeup brush, etc., keeps growing and growing and growing. it gets very uncomfortable, to the point where i fidget or have to bite my fingers for distraction, but it never hurts. after 20 minutes to half an hour, it goes away.
now, i am getting what my doctor says "might be" ice pick headaches on my right temple (yes, my doctor is a slacker and a half, but i live in a small town and have few choices)-- searing, stabbing pain, indeed like an ice pick that last for a few seconds, then goes away. sometimes, i fall to the floor when this happens. it started out once or twice a week, but today it is happening several times an hour. this morning it happened, and every straight line in my house (walls, doors, etc) looked . . . bowed.
is it possible to have trigeminal neuralgia without actual pain? do ice pick headaches cause visual distortion? does anyone have any idea what low c4 by itself means?