Discussions By Condition: Brain conditions

subarachnoid hemorahage

Posted In: Brain conditions 16 Replies
  • Posted By: selena11
  • February 17, 2007
  • 02:11 AM

just wandering weather anyone else out their has had one mine was an unsourced sah they could,nt find what caused it i have no pysical problems just finding it hard to move on its been 9 months now having trouble with nausea some to talk to who has been through the same would be nice

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  • Hi SelenaI had a subarrachnoid haemorrhage in 1993, then got hydrocephalus and had a shunt fitted.The bleed came quite out of the blue -- I felt a bit odd in the middle of the day, and the next thing I knew was that I'd got visual disturbances, lost all sense of where my body was and felt very, very sick. Then I remember nothing for about 3 weeks.It was very weird when I was allowed home -- though my memory of that time is very woolly and vague. The whole thing finished off my marriage and I was left on my own for hours and hours, in a cottage in the middle of nowhere; and when my hysband did come back, he was a cold fish, to say the least.BUT ... hey! I'm still here! And we have to remember that most people aren't survivors, like we are. (That's just a little thought to show that I'm not all gloomy... ;) )Nine months, me dear, is no time at all! I'm not surprised you're still feeling delicate. It is slow work getting over sah, so don't expect too much too soon, but do look back and recognise that you are moving forward, every day.I think it took me a good 12 months to feel confident on my own and I carried on making progress. I'm probably as good as I'm going to get, now, and I'm pleased with what I am. Not much different than before, to be honest -- a bit more excentric and ditzy ... but, hey! why not?? :) If you're worried about the nausea -- or anything else -- do go back and talk to your doctor. Well, that was a long waffle, wasn't it???Hope it helps!
    Millymax 5 Replies
    • February 25, 2007
    • 00:15 PM
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  • hi thanks for the reply been back to doctor she is sending me to the camera thing down in my stomach to see if their is any thing their causing the nauseaother wise she said it could be coming from stress /depression have to wait and see you must have had a ruff trot 3 weeks i was only in hospital for 12days i thank god im still here with my family i have 3 children all i wont is to feel happy and healthy again
    Anonymous 42789 Replies
    • February 26, 2007
    • 00:24 AM
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  • hi thanks for the reply been back to doctor she is sending me to the camera thing down in my stomach to see if their is any thing their causing the nauseaother wise she said it could be coming from stress /depression have to wait and see you must have had a ruff trot 3 weeks i was only in hospital for 12days i thank god im still here with my family i have 3 children all i wont is to feel happy and healthy again just wandering if you had any trouble with depression or anexity all so had a diabetes insipidus test done waiting on test to come back
    Anonymous 42789 Replies Flag this Response
  • I certainly had a fair amount of depression -- and it's really not surprising. But it doesn't last for ever.You know, they call what we had a CVA -- a Cerebrovascular Accident. And that 'Accident' word is just about right! It really shakes you up, physically and mentally. No -- that's not strong enough: it completely batters your whole system.I gather from your post that you were lucky -- like me -- and didn't have to learn to walk or talk again. But that doesn't mean you haven't been damaged. You've been through one heck of an experience. And you're still coping with it. You don't feel guilty about not being 100% yet, do you? Because 9 months is early days, don't forget that. And looking after your children as well is an amazing achievement. I don't think I'd have coped if I'd had kids.Oh dear, this is turning into a great long post again! And I could go on for ever. So for now, I'll just say surround yourself with supportive friends and family, talk about how you are and what you're feeling, and make sure you get good, understanding medical care.And let me know how you get on!! :)
    Millymax 5 Replies Flag this Response
  • I had an unsourced SAH in August of 2003. I have had bouts of depression as well.I was in morphine induced coma for two and half weeks, had another couple of weeks of therapy and was back to work in 2 months. It was a rigorous and awful experience.Expecially when I got the 400,000 dollar medical bill and still had to pay 10 percent. There lies the true criminals -- The insurance companies!!!! Of what I have read, the worst SAH you can get is the unsourced type. It is expected you'll get another one in 2 years. Which is why it is next to impossible to get life insurance in the first two years. Any kind. Even the kind the old people can get on TV. I have past my two year mark and can get life insurance a little easier. I still have to pay a huge premium, but it is worth it for my wife and kid. At least they'll be provided for, if and when I pass. Good luck all.
    Anonymous 42789 Replies Flag this Response
  • Good grief! I'd never heard of unsourced SAH, so I've just been Googling away to find out. I thought my burst aneurysm (?spelling?) was bad -- but unsourced SAH sounds horrific.Really puts things into perspective. As does your comment about the medical insurance. I can moan about the National Health Service here in the UK (and I have) but I haven't had to pay a penny for my treatment. I was in a specialist neuro hospital for about 6 weeks, had a couple of operations and then had to have a VP shunt fitted. Then back to my local hospital for a week or so. And it cost me nothing. (Well, it cost me my marriage -- but that's another thing!)So HURRAH! for the NHS. (Even though they couldn't tell me why I itched and itched and itched uncontrollably for a couple of months.)
    Millymax 5 Replies Flag this Response
  • I have had severe problems with restless leg sydrome or RLS as it is called here. I have been taking Requip for this and Clophin just to go to sleep. The itching is a common problem. Thanks for the reply and I wish there was a National Plan here as well.Regards,Matt
    Anonymous 42789 Replies Flag this Response
  • had camera down throat got chronic infalmation no diabetes inspudus which they say sometimes after a bleed you can get nausea comes and goes did you have any weird sensations in your head sometimes i have what feels like a wave sensation at the back of my head it scares me on anti depressants which seem to help some times i have a drink of acohol seems to effect me quicker than normal does that happen to anyone else
    selena11 3 Replies Flag this Response
  • Still have weird sensations in the back of my head. Still worry about it coming back. Since the back of your head and the back of your neck are the places you first notice an SAH. I tried anti-depressents but they gave me too much heartburn. Now I just work out to get over depression and it works pretty well.matt
    Anonymous 42789 Replies Flag this Response
  • Hello. I had a SAH in 1999. - 8 years ago this year! Also ended my marriage and seven years on I'm still here. Mine was also unexplained and it took me a long to feel 'myself' again, if you ever can. My short term memory was affected and I still get those 'waves' in my head - they are scary even now. Problem is, it is so hard to explain to people how you feel. I went back to work after four months but I still struggle with tiredness.I think that people should be put in touch in other people who have been through this when you return from hospital. I had no rehabilitation or put in touch with any kind of 'group'. To be honest I do think it would have helped at the time - to at least understand what to expect - the fear - confusion and how isolated it can make you feel. If you could talk to people who understood HOW you felt at the time, then things are never as bad as facing them on your own.Michelle
    Anonymous 42789 Replies Flag this Response
  • Dear Michelle, I understand completely how you feel. Perhaps there would be a way we could all email each other instead of using these forums. There is another one by the American Heart Association which is very good. It's called:http://my.americanheart.org/jiveforum/forum.jspa?forumID=44There are alot of SAH people there recovering. Take care,Matt
    Anonymous 42789 Replies Flag this Response
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  • Perhaps there would be a way we could all email each other instead of using these forums. Matt, that's an excellent idea! Any thoughts?And Michelle, your experiences are so similar to mine.The thing that's always really bugged me is that you're saved and the medics do great work ... and then you're out on your own. I actually asked about other people who had had the same thing happen to them, and the doctor looked vague and didn't know. (??!) So no help there.At the moment I'm fighting against the exhaustion and confusion stuff. Again. And I'm getting very tired of it all. But I'm going to win! So there.Right, I'm off to explore Matt's link.Much love, everyone!!!
    Millymax 5 Replies Flag this Response
  • Hey Matt I just wanted to say thanks for the link to the american stroke foundation. That is the most information I have received since I had my SAH in april 2007. Danielle
    Danieller 1 Replies
    • August 16, 2007
    • 02:57 PM
    • 0
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  • Wow, I wish I'd found this sooner - I had an SAH in April 2007 (treated with coiling) 3 months in Physio - am back in work part-time and just generally finding life a struggle! Struggling with Depression. But, hey WE'RE ALL still here! Try the http://www.brainandspine.org.uk/information/publications/brain_and_spine_booklets/index.html - they have some fantastic leaflets that give you more information than the DRs have ever given me! Or try reading Jane Lampotaire's book " Time Out of Mind" She went through it and it has been great reading that someone else has gone through similar!
    Anonymous 42789 Replies
    • January 18, 2008
    • 01:45 PM
    • 0
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  • WELL, HELLO there everyone, I was just reading about something else and ran across this section, I had not found it before due to my search terms, aneurysm, rupture, stroke...never thought of the subarachnoid...HEY I HAD ONE OF THOSE!!! I was going by the unusual nature of mine...TRIPLE BRAIN ANEURYSMS WITH RUPTURE AND 13 HOUR OF BRAIN SURGERY! WOW, I'm not alone...Praise God...3 years ago on 1/27/05 was rupture, 3 years ago on 1/28/05 surgery, mine was P.C.A., third nerve at the brain stem..........not the typical blockage type rupture but the weak wall of vein...I'm researching long term chemical exposure as cause...nothing else applies...never heard of unsourced sah...will ck it out...I must be in a fog right now...I cannot even remember what sah is :confused: okay I think it is for SubArachnoid HemorahageAnyway, I'm Sorry...I"M NOT ALONE!!!!! STILL ALIVE :) :)
    still alive 20 Replies
    • February 2, 2008
    • 10:19 PM
    • 0
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  • just wandering weather anyone else out their has had one mine was an unsourced sah they could,nt find what caused it i have no pysical problems just finding it hard to move on its been 9 months now having trouble with nausea some to talk to who has been through the same would be niceHi my name is Shelly and I had a SAH in June 2008. I passed out in front of my dresser, fell, broke my nose and well got a brain bleed. Dr's are not sure how it happened. No one has any answers for me. So did I have a SAH and thats what made me fall or what? Guess I will never no. I have nausea 24/7 and headache's that are just out of this world and oh yeah I have seizures now too. i just got out of the hospital again for having seizures. WTF already. I have had CT scans, angiograms, lumbar puncture, MRI, speech therapy, occupational therapy, physical therapy, and the list goes on and on. If you ever want to share stories or just vent you can email me skepsel@cox.net.I wish you well.Shelly Kepsel
    Anonymous 42789 Replies Flag this Response
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