Discussions By Condition: Brain conditions


Posted In: Brain conditions 2 Replies
  • Posted By: Anonymous
  • April 6, 2006
  • 03:19 AM

i am wondering if anyone knows of a support group for people who have been diagnosed with acute dissmeninated encephalomyelitis.
if so i would dearly love to hear other people have achieved goals and advanced in their recovery. thanks look forward to hearing from you

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2 Replies:

  • Hello Rach,I saw your post on ADEM and wanted you to know I too am a survivor. Mine was caused from an abscessed tooth that developed into a brain abscess then to EM after being left untreated for years. You and I were very lucky to have survived as I have never found/spoken to another survivor. I am now considered to be a partial quadriplegic as a result but can walk with a cane albeit with my eyes always on the gtound trying to remain balanced. I have alot of info.josh
    Anonymous 42789 Replies Flag this Response
  • Hi Rach:My son was just diagnosed with ADEM on Sunday. He is undergoing treatment and I was wondering how you are progressing with your recovery. He is 10 and is quite afraid. Like you, I would like to put him/us into contact with someone who has gone through the same thing. He had a headache a week ago and now he is paralyzed from the waist down and blind in one eye. Tell us your story. Looking forward to hearing from you.Sally
    Anonymous 42789 Replies Flag this Response
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