Discussions By Condition: Brain conditions

Neurological problems that wont go away (please help!)

Posted In: Brain conditions 19 Replies
  • Posted By: Matt567
  • January 25, 2008
  • 01:47 AM

Hello, for almost a year ive been getting a never ending amount of neurological symptoms. They are almost 24 hours a day and it sometimes gets so bad that i have to just lie down until it gets a little better...


very bad headache
Brain fog
Feeling confused
feeling of detachment from everything
fatigue
cognitive impairment
slurred speech
almost non existant memory
muscle spasms
chest pain
general feeling of unwell
Ther are probably alot more but cant think of them right now...

They are 24 hours a day, some i can try to deal with and 'accept' but the total change in mental status is just too much. It feels like i permanently dont know where i am or whats going on...
I went to see my Gp and she sent me straight to the hospital as she thought it was possibly cancer, but almost all tests came back fine (CT scan, blood tests, chest x-ray, kidney scan aswell as alot more) 1 blood test indicated raised levels of calcium but the next was fine... and i have very high blood pressure; for which i have been give tablets for but they make me feel almost worse. I've now been reffered to a neurologist which i have to wait ages to see... Iv'e since had to drop out of university, i mean its hard to do anything intelligent when u dont know what planet your on most of the time! as a result ive just been sat at home for the last 6 months. It also gets alot worse if i do any physical activity..
Does anyone have any idea as to what this could be?
Anything would be much appreciatedhttp://forums.wrongdiagnosis.com/images/icons/icon11.gif

Reply Flag this Discussion

19 Replies:

  • I have alot of the same symptoms and feelings you have. I would suggest a MRI to rule out an arachnoid cyst on your brain. Don't get to happy though if that is indeed what you have because the Dr's seem to think it causes no problems even though it is on your brain. Disgusted by the run around getting from dr's.
    Anonymous 42789 Replies
    • February 1, 2008
    • 09:37 PM
    • 0
    Flag this Response
  • I have alot of the same symptoms and feelings you have. I would suggest a MRI to rule out an arachnoid cyst on your brain. Don't get to happy though if that is indeed what you have because the Dr's seem to think it causes no problems even though it is on your brain. Disgusted by the run around getting from dr's.Would a CT scan have detected this? My GP thinks as nothing was found on the CT scan, then there is no cause for concern. I now have to wait up to 6 months to see a neurologist which really really sucks:mad:. I read that MRI's detect more than CT's do. Cheers for your inputMatt
    Matt567 6 Replies
    • February 2, 2008
    • 02:36 PM
    • 0
    Flag this Response
  • Well I'm still on 2 different types of blood pressure tablets (Amlodophine and Rampril). Apparently my blood pressure is very high for a 60yr old, although the doctor said that it is unlikely that the neurological symptoms are related to the high blood pressure:confused:. I still have a long wait to see the neurologist i cant stand, especially as im expecting him to just think im crazy. Thanks for the input blaze, much appreciated. I've checked out alot of those pagesCheers,Matt
    Matt567 6 Replies
    • February 18, 2008
    • 00:09 PM
    • 0
    Flag this Response
  • Hi Matt,Please get your eyes checked for swelling and pressure. Don't wait until your neurologist appointment. I wound up with Cranial Venous Thrombosis which was not detected by CT or MRI but by a MRV where they look at the veins in your head. I almost died and in fact was released from the hospital before they knew anything. It's similar to a pseudo tumor.They say your eyes lag behind swelling in your head but that it's a way to really see if there is something going on back there. I had swelling and hemorraging (can never spell that word) behind my eyes and that's how I was finally figured out. Make sure to drink lots of water and stay hydrated too. Best wishes Matt!! Let us know what happens.
    SparkyLu 5 Replies
    • February 20, 2008
    • 00:18 AM
    • 0
    Flag this Response
  • Hey, i thought i would give u an update of whats going on...I saw the neurologist a week ago and he said that im unlikely to have any neurological disorder but there probably is something wrong with my brain..I have to now go for some memory tests and depends on the result of that i may have an mri and lumber puncture too... So it looks like alot more waiting..My symptoms have really got worse lately. I feel more dazed than ever and really light headed all the time, but i guess some of that may be down to the blood pressure. Thats why its taken me so long to respond on here; my writing (and speaking) skills have gone down alot :( it really sucks alot. Even the simplest of tasks now are impossible....Cheers,Matt
    Matt567 6 Replies Flag this Response
  • Hey Matt, Totally get where you are coming from. I was having the same symptoms but they've gotten worse. I was however diagnosed with Epilepsy in August 07. Epilepsy is not necessarily just 'fitting'. Absent states, which is what i suffer from as well as seizures. They are zapping out for a few seconds or mins. Not remembering, forgetfulness, confusion, expressive dysphasia (slurred speech), ice pick headaches, migraine, fainting etc. I lost my place in college too as a result of all of this and can't go back to college until i feel totally fine. So feel useless as I am intelligent and feel its going to waste.Literally.Amy
    Anonymous 42789 Replies Flag this Response
  • I am the college kid's mom and I am worried sick about my son. He is 22 and very athletic, never been sick more than 2 days in his whole life. In April, he was hit on the left temple side by someone's fist (blindsided by it). He temp lost conscienious, drove himself home. About 5 hrs later, he called and we rushed him to ER. Dr's took CAT, MRI. He was diagnosed with several swelling of the brain tissue. They kept him 24 hours and sent home. In August, he complained he wasn't feeling good. After about 4 days I took him to Dr. He had dehydrated slightly. Gave him 1 bag of IV and sent him home. One week later, he was taken to ER with SEVERE dehydration. Took 4 bags of IV, some other stuff and sent home. Since the August incident, he has had horrible headaches in same area he was hit in, he has had extreme vomiting, diahrrea, upper stomach pain. We have had him recently checked for dehydration and it was negative. His symptoms now are headache in same area as the hit. This never goes away. Dull pain in upper stomach which never goes away. Sometimes blurred or double vision, nausea which never goes away. Occasional vomiting and diahrrea now. He just had to withdraw from all college classes because he gets too sick when he is upright for over 40 or so minutes. I also just found out from him that his headaches NEVER went away after he was hit. He just always dealt with them and never told me until today. His doctor sent him to a Gastro specialist, but he gave him another MRI of head thinking this was neuro and not gastro. The MRI in August came out clear and so did the MRI which the Gastro dr took in September. His doctor did recent blood labs, all clear. Stool samples all clear. So then his doctor sent him to Neuro. He said that since both his MRI's didn't show anything, and he didnt think my son had meningitis, neuro said it was "anxiety". I DON"T BELIEVE IT!! Now, my son is scheduled for upper endoscopy in 4 days. I'm thinking maybe he has an ulcer, but when he told me head NEVER stopped hurting from April fight, I think more....the blood vessels behind the eyes is a good idea. I'm going to discuss this on Monday after endoscopy (if negetave). Do you have anymore ideas? I read that an MRI probably WILL NOT show slight bleeding outside of the skull. So here it is, my son has been sick since April, it is now October and his doctors keep pussyfooting around. I am battling for more tests. I think they should do a lumbar puncture....what do you think?
    COLLEGEKID 2 Replies
    • October 23, 2008
    • 10:59 PM
    • 0
    Flag this Response
  • Hi College Kid's Mom,I am so sorry to hear what your son has been going through. I'd definitely get a lumbar puncture, definitely see an Ophthalmologist and also make sure one of his brain scans was an MRV. If it wasn't then they haven't looked for clots in the veins in his head. What I have was only determined after the MRV. The closest thing to what I have is called pseudo tumor cerebri and it sounds so much like what your son may have. Mine is now called chronic cranial venous thrombosis which is also labeled as a venous stroke. I don't want to scare you even more than you already are but this sounds like it can't wait. Please let me know what you find and I hope with all my heart that your son will be okay. Very best wishes. Laurel
    SparkyLu 5 Replies
    • October 25, 2008
    • 02:09 AM
    • 0
    Flag this Response
  • CK Mom again-Also! They thought my problem was intestinal and did a colonoscopy and all kinds of needless tests and let me out of the hospital two times before the diagnosis. It's a rare condition. If this isn't what your son has (fingers crossed that it isn't) there's no way this could just be anxiety. What BS! He'll be okay. It sounds like you won't rest until he is. You're a good mom.
    SparkyLu 5 Replies
    • October 25, 2008
    • 02:13 AM
    • 0
    Flag this Response
  • I believe you may be suffering from a severe B vitamin deficiency especially because of the apparent neurological symptoms paired with speech difficulty. Here is a link that ties the deficiency with anesthesia: http://ezinearticles.com/?How-To-Treat-Vitamin-B12-Deficiency-Symptoms&id=758040A quote:"Deficiency of vitamin B12 can affect both men and women in equal numbers. Deficiency of vitamin B12 can result in fatigue and apathy, back pain, weight loss, bone loss, problems with balance andreflexes, abnormal gait, tingling fingers, tinnitus, eye disorders, hallucinations and migraine headaches."
    Anonymous 42789 Replies
    • October 25, 2008
    • 07:21 AM
    • 0
    Flag this Response
  • Dear Laurel....Friday night I took him to emergency room. I told Doctor all tests he has been through. He said MRI would have shown any swelling in brain or broken blood vessels. He called in Social Worker and son was diagnosed with depression and/or Bipolar 2. Now, they have sent us to psychiatrist....they are not willing to do an MRV or lumbar. They said that if it was something a lumbar would detect, he would be almost dead by now. Does this sound like the runaround??? My son has shown some jeckle/hyde symptoms for the last few years....may he really does have Bipolar....
    COLLEGEKID 2 Replies
    • October 26, 2008
    • 10:16 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Hi again CK mom,I went back and reread your son's symptoms. I can't help but think it sounds way too familiar. My MRI was normal too along with 3 spinal taps. I still have a clot in my head and I'm not almost dead, however, I don't feel so good! Please insist on an MRV. It's rare but it really could be a clot in his venous sinuses. Without knowing your son I wouldn't know if he's bipolar but I can tell you that when you go from being a healthy person to a brain injured one it isn't easy and it sure does mess with your moods. It's especially depressing when you can't get any answers. Maybe your son could research CVT and see if it sounds like him. I am so sorry!!! It's a hard thing to go through for everybody.
    SparkyLu 5 Replies
    • October 29, 2008
    • 06:13 PM
    • 0
    Flag this Response
  • Just wondering if anyone has any more ideas about my problem. Ive felt progressivly worse lately, incredibly confused and dazed 24/7 hence why its taken me so long to write a reply to thie. I saw a psychiatrist but she has no idea, she says im not depressed or anything like that, so now im on a waiting list to see a neuropsychiatrist or something. Its been mentioned a few times by the docs that it could be some rare illness of something. Im really any the end of my tether right now and dont know what else to do. I'm also still on tablets with blood pressure though ive been told that isn't a contributing factor.:(Matt567
    Anonymous 42789 Replies
    • November 19, 2008
    • 02:46 PM
    • 0
    Flag this Response
  • Hi Matt (and all, really),I have most of the same symptoms as you do and it's been getting worse and worse. I was diagnosed with migraine headaches close to 15 years ago (when I was 4 or 5) and I've always had them, I've just never had the immense confusion the hallucinations (mostly sounds and feelings), delusions, lightheadedness, detachedness, etc. that I'm getting now. I still am kind of all right with written word (though it is a far more laborious task than it ever was), but my speech could probably be described as coherent at its best. I never really know where I am or when it is or who is around me. Or I might know on some level but I don't really have much understanding of the situation ever. I get these symptoms usually with the headache. The headache is on one side of my head, almost always the right side. There is pain in my right eye and my hearing is impaired in both ears, but especially the right ear (everything sounds muffled).I was just wondering... if anyone figures out what this stuff is, will you let me know some possible things? I can't afford to go to a doctor (I can afford ONE doctor, but you know how it is, they send you to 5 more doctors who all want different tests, etc.).I saw a psychiatrist a few months ago who is pretty sure that I'm narcoleptic (did not have a sleep study to confirm for financial reasons, but I have the incessant urge to sleep, the sleep paralysis, vivid dreams, etc.) if that adds to any of this in any way.Any ideas would be awesome. Thanks.-Paige
    Anonymous 42789 Replies
    • November 25, 2008
    • 00:45 AM
    • 0
    Flag this Response
  • Hi Matt (and all, really),I have most of the same symptoms as you do and it's been getting worse and worse. I was diagnosed with migraine headaches close to 15 years ago (when I was 4 or 5) and I've always had them, I've just never had the immense confusion the hallucinations (mostly sounds and feelings), delusions, lightheadedness, detachedness, etc. that I'm getting now. I still am kind of all right with written word (though it is a far more laborious task than it ever was), but my speech could probably be described as coherent at its best. I never really know where I am or when it is or who is around me. Or I might know on some level but I don't really have much understanding of the situation ever. I get these symptoms usually with the headache. The headache is on one side of my head, almost always the right side. There is pain in my right eye and my hearing is impaired in both ears, but especially the right ear (everything sounds muffled).I was just wondering... if anyone figures out what this stuff is, will you let me know some possible things? I can't afford to go to a doctor (I can afford ONE doctor, but you know how it is, they send you to 5 more doctors who all want different tests, etc.).I saw a psychiatrist a few months ago who is pretty sure that I'm narcoleptic (did not have a sleep study to confirm for financial reasons, but I have the incessant urge to sleep, the sleep paralysis, vivid dreams, etc.) if that adds to any of this in any way.Any ideas would be awesome. Thanks.-PaigeHey Paige, thanks alot for replying. your description sounds as though it could have been written by me. I guess its the deatchedness and zoned-out feeling that affects me the most. lately also ive been feeling extrememly tired all the time too.. We have a national Health Service here so its possibly to see doctors, it just takes a really really long time... My e-mail is matt3k256@hotmail.com if u wanna have a chat abit more about it and i can tell u bout the whole route ive had to go down:)Matt
    Matt567 6 Replies
    • November 26, 2008
    • 03:07 PM
    • 0
    Flag this Response
  • Hey guys thought id give an update on whats been happening. I still feel just as terrible as ever, probably worse infact.I had several long sessions with the neuropsychologist, who did lots of memory/cognitive testing, and he said i have quite a large memory deficit and thinks it could have possibly been caused by a mini stroke (I'm 22!!) (theyve also recently found i have high blood pressure and high cholestrol) i guess it would fit in with how ive been feeling, and there is some family history of them. Anyway im being sent for an MRI scan which he said will figure out whats going on (still could probably be anything!). But there is a long waiting list to have one so it could take months...but i guess some progress is being made into figuring all this out, and ill probably be back to see the neurologist sometime too, so heres hoping..Anyway i thought id tell u guys as youve been so helpful through all of this, and any further input will be truly welcome!Matt http://brain.hastypastry.net/forums/images/buttons/quote.gif
    Matt567 6 Replies Flag this Response
  • my husband has had the same symptoms and it was called normal pressure hydrocephylas. (NPH). Which means, too much water on the brain. He had to go under surgery for a shunt put in his head.
    Anonymous 42789 Replies Flag this Response
  • I too have some symptoms that wont go away: Head, neck and shoulder pain (feels like hundreds of ants crawling over me with electrodes attached to their feet), pins and needles in face, hands and feet, clawing of right hand, shooting pains down spine and in arms and legs, dizzy spells, dropping things, forgetfulness, find it difficult to concentrate,fatigue.These symptoms have gradually developed since February and are now getting me down.Went to GP with neck pain, was referred to physiotherapy, who discovered all my other symptoms and asked GP to refer me for MRI scan of neck, back and brain, which came back with no abnormalities. I go back to see the physiotherapist next week, but they still tell me if any of my symptoms get worse or i develop new symptoms I am to go straight to A&E. Anyone have any ideas what it could be?
    Anonymous 42789 Replies Flag this Response
  • I too have some symptoms that wont go away: Head, neck and shoulder pain (feels like hundreds of ants crawling over me with electrodes attached to their feet), pins and needles in face, hands and feet, clawing of right hand, shooting pains down spine and in arms and legs, dizzy spells, dropping things, forgetfulness, find it difficult to concentrate,fatigue.These symptoms have gradually developed since February and are now getting me down.Went to GP with neck pain, was referred to physiotherapy, who discovered all my other symptoms and asked GP to refer me for MRI scan of neck, back and brain, which came back with no abnormalities. I go back to see the physiotherapist next week, but they still tell me if any of my symptoms get worse or i develop new symptoms I am to go straight to A&E. Anyone have any ideas what it could be?Turns out I have a narrowing of the spine in the cervical region. At last an answer! But GP told me no abnormalities on scan, physio to me narrowing of the spine!
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.