Discussions By Condition: Brain conditions

My Mom Can Not Talk

Posted In: Brain conditions 4 Replies
  • Posted By: Anonymous
  • January 29, 2008
  • 06:56 PM

My mother had a knee replacement about 5 years ago. (Not sure if related but this is when it started) I went to the recovery room after when she first woke up. The doctor said she received blood from the blood bank because she lost allot. When I spoke to my mother she stuttered! I thought to myself what caused that the anesthesia? So I figured it would just go away. Well, ever since then she stuttered a little once in a while talking. Maybe, once in a conversation or not at all. In the course of 5 years this turned into no speech at all. loss of expression and blank stairs. She lost the ability to walk almost totally but still gets around with a walker. She now has trouble feeding herself and moves slow and stiff. She also in the last 6 months has problems controlling her bladder. Last but not least she looks to have problems swelling and coughs allot. When she drinks fluid it is like it goes down the wrong way many times and she coughs. This was NOT sudden like a stroke but slow over 5 years. Three neurologists and surgeons have scanned her and looked her over every way they could but can not figure it out. They also installed a Shunt but said they did not think she really needed it but hoped this would do some good. It does not look to have done much of anything and has been there for about 2 years now. She now speaks Zero words and can only make some sounds.

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4 Replies:

  • how is her comprhension?have you been to talk to Dr.s?I think it could be alzimers but not to suremy grandmother was diagnosed with alzimers about 6 years ago and it all started with stutturing, blank stares, bladder control.She was also very extremely painoid she thought that my grandfather was poisoning her.
    rachel125 112 Replies
    • January 29, 2008
    • 09:55 PM
    • 0
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  • I am so sorry your mom has such awful symptoms. They could really be from quite a number of things. Have you ever read the notes from her surgery- either intraoperatively or post-operatively? They may describe any complications or how much blood was lost. She may have suffered from widespread lack of perfusion in her brain.Other things that come to mind are perhaps something like an autoimmune encephalopathy, such as stiff person syndrome or Hashimoto's Encephalopathy. If she has stiff person syndrome, it will really hurt her if you try to move her limbs forcefully. HE is kind of a shot in the dark but I'm suggesting it if perhaps she was exposed to topical iodinated anesthetics during the surgery. Sometimes iodinated compounds can trigger autoimmune thyroiditis, and a rare complication of this could be HE.There are a lot of other things this could be as well. Neurological diseases are some of the most difficult ones to diagnose, which is tragic in a way because in the mean time the patient grows more and more disabled and you don't know why. My heart goes out to you.Is there any way you can take your mom to a teaching hospital? They may be able to solve more difficult cases than regular institutions.You definitely deserve a solid explanation as to why your mom is having all these symptoms. I wish you the best of luck in finding the answer.
    Anonymous 42,789 Replies
    • February 1, 2008
    • 06:17 AM
    • 0
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  • I believe your mother may be suffering from a severe B vitamin deficiency especially because of the apparent neurological symptoms paired with speech difficulty. Here is a link that ties the deficiency with anesthesia: http://ezinearticles.com/?How-To-Treat-Vitamin-B12-Deficiency-Symptoms&id=758040A quote:"Symptoms of vitamin B12 deficiency, including sensory neuropathy, myelopathy, and encephalopathy, can occur within days or weeks of exposure to nitrous oxide anesthesia in people with sub-clinical vitamin B12 deficiency."
    Anonymous 42,789 Replies
    • October 25, 2008
    • 07:10 AM
    • 0
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  • First of all I am so sad for both you and your mother, your story is almost identical to mine, so I know your frustration. My father has every symptom that your mom has and after years of seeing doctor after doctor he was finally diagnoised with (PSP) Progressive Supranuclear Palsy, like its name it is progressive. It is a rare brain disorder. They thought he had Parkinsons at first. My father is only 72, he has lived with me for 2 years , until last week when he fell in my kitchen and fractured his pelvic, he had to have surgery. He is now in a skilled nursing facility, he also has pnuemonia from asparating food. They think it will be 6-10 weeks of physical therapy, He must be on a nectar thickened liquid diet and mechanical soft food diet. He is on 24 hour watch because of his choking risk. I do not see him coming out of this home even if he recovers from his hip fracture, he is to frail and needs more medical care than I am able to provide. This has been the hardest 2 years of my life not only did I take care of him, but my family of 4 and my kids menagery of animals, I was unable to work as he was a full time job. All I can tell you is if you are her caretaker take care of yourself first! Get all the help you can from family or friends and see a GOOD Neurologist. Good Luck and God Bless Both of you.
    cat1963 1 Replies
    • November 6, 2008
    • 06:16 AM
    • 0
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