Discussions By Condition: Brain conditions

Landua Kleffner

Posted In: Brain conditions 4 Replies
  • Posted By: Anonymous
  • May 30, 2006
  • 06:56 PM

Hi to all,
I was hoping to meet other parents with children who have been diagnosed with LKS. I have a son age 24 who was diagnosed in late childhood with LKS and would like to share my information and get feed back. Particularly, I have a history of a young man with LKS, and can assist others with what to expect as a child and as a youn adult male.

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4 Replies:

  • I have a 9 year old son with Landau-Kleffner Syndrome and Autism. We live in Boston. He was diagnosed with Landau-Kleffner Syndrome after getting a EEG at Children's Hospital.
    Anonymous 42789 Replies Flag this Response
  • Hi to all,I was hoping to meet other parents with children who have been diagnosed with LKS. I have a son age 24 who was diagnosed in late childhood with LKS and would like to share my information and get feed back. Particularly, I have a history of a young man with LKS, and can assist others with what to expect as a child and as a youn adult male.I would like to know any bizarre behaviors. If you could share. I believe my son has this and has been diagnosed wrong.Carla
    Anonymous 42789 Replies Flag this Response
  • I would like to know any bizarre behaviors. If you could share. I believe my son has this and has been diagnosed wrong.CarlaAnthing actually you can share would be so appreciated, Thank You
    Anonymous 42789 Replies Flag this Response
  • Hi to all,I was hoping to meet other parents with children who have been diagnosed with LKS. I have a son age 24 who was diagnosed in late childhood with LKS and would like to share my information and get feed back. Particularly, I have a history of a young man with LKS, and can assist others with what to expect as a child and as a youn adult male.Hi,My daughter Kelsie is 7 years old and has Landau Kleffner Syndrome. I really need to talk to some other parents about this. Please Please contact me. She was a highly functioning little girl untill about 2 years ago. Now she has uncontrolable seizures, she can not comprehend or speak. She has been on so many meds and nothing helps. We are now in the begining stages of surgery, and steroid therapy. Any info would be helpful. Does this get worse? Is this the worst? What is the quality of life for these kids in the future.
    heatherjsage 1 Replies
    • October 10, 2006
    • 00:00 AM
    • 0
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