Discussions By Condition: Brain conditions


Posted In: Brain conditions 4 Replies
  • Posted By: Anonymous
  • September 14, 2006
  • 07:44 PM

My grandson was just born with this, has anyone or known anyone that thier baby with this has eye problems. He is 3 days old and has not opened his eyes. His eyes are set a little wide apart and lower on his head and his ears are small lower on his head could be from his head being larger when he was in the womb, but it proportialtely okay now.

Reply Flag this Discussion

4 Replies:

  • My daughter was just told that her son will be born with hydranencephaly.The doctor told us he will not live to be a year old.Is there anyone out there that knows about this defect?They did say that all his facial features look normal on the ultra sound.
    Anonymous 42789 Replies Flag this Response
  • I think a child with hydranencephaly can survive if the defect is not severe enough and the care is good enough. I have some patients with hydranencephaly. One of them can go to school. Others can only sit in a wheelchair.Chinese Dr Yang
    Anonymous 42789 Replies Flag this Response
  • My son has Hydranencephaly. He is 6 years 8 months old. I promise you that most of the doctors you will run across know little to nothing about how to care for these children. Please, Please do yourselves and your children a favor and visit this site:http://hydranencephaly.com/you will find the answers and the support that you need there.ErinMom to Quincy 6 years 8 months Hydranencephaly, Cerebral palsy
    Anonymous 42789 Replies Flag this Response
  • My son is 3 years old the doctors said he wouldn't make it through infancy. He starts school in next month, his developmental is delayed, but always have hope and thank God for everyday!!!
    Anonymous 42789 Replies
    • November 15, 2008
    • 07:49 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.