Discussions By Condition: Brain conditions

Hope Im Not Alone

Posted In: Brain conditions 2 Replies
  • Posted By: Anonymous
  • March 30, 2006
  • 03:01 AM

IM hoping to find a person that has WKS or a friend or loved one. My husband was just diognosed with it . I could really use some support.Any info. would really be great .please contact me

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  • Hi teri It is june 27 06 I have my husband in lock down for two weeks he was diagnosed with this syndrome You probably know more than me at this point. How are things with you? Ginger
    Anonymous 42789 Replies Flag this Response
  • Well Good Afternoon, Ginger and Teri.:) I am here to tell you both that you are not alone, for I'm going through this journey to assist my eldest sister that has been stricken with this title disease. There is no real proffessional help out there to assist us. Doctors, social workers, etc. states that this is not reverseable. The damage is done. I am hopeful and also have faith in GOD who can do the impossible for all things are Possible with Him. He created her brain and He can restore it or renew it. I have learned that you must be your own advocate, you have to be more than just a caregiver to your love ones and find out everything. It is like going back to school and learning this time with more indepth seriousness because someone's life depends on it. We should start a support group since we are the only three so far that has tap in on this subject on this website. May God be with you both love Angela;)
    Anonymous 42789 Replies Flag this Response
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