Discussions By Condition: Brain conditions

encephomyalitis help!!

Posted In: Brain conditions 3 Replies
  • Posted By: Anonymous
  • July 30, 2006
  • 10:20 AM

Hi, my father is currently in ITU in UK having been diagnosed with a rare form of encepholitis called acute disseminated encephomyilitis where the brain swelling is preceeded by an upper respitory tract infection, which eventually leads to damage to the 'white matter' myelin, which is a sheath protecting nerve endings etc. He is now in a coma with only a score of 4 on the glasgow coma scale. Eyes are open and responding to light, but no response to pain or movement requests. Steroid treatment to combat the condition has not worked. Anyone out there with any knowledge of condition?:(

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3 Replies:

  • I was thought to have ADEM last year as well. Although I never went into a coma, I was paralyzed by lesion activity within 7 weeks of initial symptom onset. My prognosis is now Multiple Sclerosis - but I might suggest you speak to your neurologist about the possibility of plasmapheresis (plasma transfusions to rid the body of the confused white cells). I don't know if this will help or not. Best of luck.
    Anonymous 42,789 Replies
    • November 19, 2006
    • 05:43 PM
    • 0
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  • I neglected to mention that I have regained about 90% of my abilities back. My only real issues are sensation related. Check out the site PubMed for more ADEM information. I went to the Mayo Clinic in MN and they determined it was MS because it attacked me again. If they can begin to reverse some of the lesion activity, ADEM is monophasic and should not strike again.
    Anonymous 42,789 Replies
    • November 19, 2006
    • 05:45 PM
    • 0
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  • I was struck with ADEM almost a year ago. You should check out www.myelitis.org and go to the ADEM section. It has lots of scholarly articles, as well as a message board. The thing you should remember is that recovery from this take a long time. I had a very mild case, I just lost use of my arms, and I was out of commission for about 4 months. Good luck to you and your family. Stay positive!
    Anonymous 42,789 Replies
    • January 31, 2007
    • 02:20 AM
    • 0
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