Discussions By Condition: Brain conditions

Double Cortex

Posted In: Brain conditions 2 Replies
  • Posted By: Anonymous
  • October 4, 2007
  • 04:15 AM

My daughter was diagnosed with DC syndrome in Feb. of this year. Along with this diagnosis, came a diagnosis of Complex Partial Seizure disorder.
Was curious if there were any other parents here who's child has this? I've read that it is classified as a rare disease and that it affects less than 200,000 people in the US and it's mainly in girls.
I've got alot of questions and frustrations and no one to talk to about it because up until her diagnosis, had never heard of it before. Any input would be GREATLY appreciated!

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2 Replies:

  • My daughter is 3 years old, and she was diagnois with mild case of cerebral palsy and recently (in May 2007) double cortex syndrome (aka band heterotopia). I have searched for information on the internet, but the information i have obtain does not answer all my questions. I know that this rare diease is seen mainly in girls, and is a result of an abnormality in a chromosome while the brain was developing. It can cause seizures. All the doctor could really tell me was to continue mydaughter's therapy sessions. What do you know about the diagnosis? :confused:
    My Miracle 1 Replies
    • October 10, 2007
    • 02:59 PM
    • 0
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  • Hello,my daughter too have double cortex syndrome. She is 5 months . we stay in italy. Can anyone contact me if u are in my same condition..so u could give me more information about this syndrome. Maybe u could tell me what i have to do...if there are any place in USA where i can cure it ( i live in italy) or how this syndrome go on ( what will happen to my little sweet daughter?) my email : giulianosciuto@hotmail.com Thank u all Ciao Giuliano
    giuly020277 1 Replies
    • February 24, 2009
    • 01:23 PM
    • 0
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