My li'l one was diagnosed with Dandy Walker variant yesterday after MRI scan results were out. He turned 1 yr recently. H eis the most lovable child, can melt hearts with his smile. The Ped referred to MRI when we went to him for development delays as he hasn't crawled or stand up yet. He sits without support and has recently started sitting from lying down position. We thought that may be the motor skills are delayed but were terribly pained to see the MRI report.
This is what is highlighted in the report:
"There is s/o prominent CSF space in bilateral frontal and temporal region"
"There is e/o mild inferior vermis hypoplasia with open communication of prominent 4th ventricle with the cisterna magna".
I know the topic of DWV has been there in this forum since long and have read both happy and sad stories. We will probably be taking a second opinion as well but want to know your experiences of DWV. I pray to God that such a thing should not happen with anyone in this world again.