Discussions By Condition: Brain conditions

Dandy walker cyst with normal vermis?

Posted In: Brain conditions 2 Replies
  • Posted By: Brandi123
  • September 15, 2008
  • 07:39 PM

Can anyone help me in differentiating between the prognosis of dandy walker MALFORMATION and dandy walker VARIANTS? I've done a whole lot of research and I am not satisfied with what I am finding. Basically I've learned that there are different variables to the dandy walker malformation, and having all of the variables means the case is more severe and the prognosis is worse...

Here is my situation: I am 20 weeks pregnant. I had an ultrasound at 15 weeks that showed slight dilation of the 4th ventricle with a cyst present (i.e. Dandy Walker cyst). The cerebral vermis was normal and completely formed, and the lateral ventricles were normal. I had an amniocentesis done, and the results were normal chromosomes. I went back for another ultrasound when I was 18 weeks and the ventricle enlargement was still slight, and the specialist that I am going to says there is no hydrocephaly and the circumference of the head is normal. My question is, what is the prognosis for isolated cystic dilation of the fourth ventricle, where the rest of the brain is normal?

All the information on the web has scared and confused me. When we asked the specialist what they would do if it was their baby, they said they would go through with the pregnancy because there is a chance my baby could be just fine. When reading on the internet, however, it seems a lot of pregnancies have been terminated just because there was a dandy walker cyst present. I've already made the decision to keep my baby, I am just trying to find out if it's wishful thinking that my baby will have normal development. The doctors are very vague as to what the outcome is. I guess it's just a waiting game to see if the ventricle enlargement will get any worse as the brain grows. Any information you could give me, or any personal stories related to my situation would be greatly appreciated.

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2 Replies:

  • Brandy,I just found this forum looking for information on my son's issues with the potty. He is 4 1/2 and just now showing any signs of delays. He has other birth defects in addition to the dandy walker and to the untrained eye, he is perfectly fine. Even after diagnosis at 22 weeks, I knew I would keep the pregnancy, but I still struggled with knowing the plight of my little mans life. I don't know when you wrote this, but if you would like to continue a conversation of how these children continue to prove doctors wrong, please contact me off forum.snacsmx2@ hotmail. comStefanie
    Anonymous 42789 Replies
    • December 29, 2008
    • 03:13 PM
    • 0
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  • I have just read you message. My daughter has been told the same thing as you were. She has decided to not continue the pregnancy. How is your baby now that it is born and a toddler I guess.
    Anonymous 42789 Replies Flag this Response
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