Discussions By Condition: Brain conditions

Brain Seizures

Posted In: Brain conditions 9 Replies
  • Posted By: Anonymous
  • September 6, 2006
  • 02:54 AM

This is my first time on this web-site and we have a serious problem. I hope if you read this you can give me your suggestions or ideals of what this virus is. Let me start with my 8 year old neice is in intensive care as I write this. She has been there for 3 weeks and 2 days. The doctors at a local San Antonio Children's Hospital are amaze that they can not identify this aweful "virus" that has taken over my neice. She started with having a common cold, which turned into her having seizures and leaving her unresponsive. The doctors have done every common medical test they could, they have brought doctors from other local hospitals, and they all say the same thing. "They don't know what type of virus she has". She is heavy sedated, is on a vendalator and is monitor every second for seizures. They have treated her for the "westnile virus", the herpes virus...etc etc...and nothing seems to help her. When the doctor try lowering her dosage to try and wake her up, her seizures beginning again...and its just one right after the other. If you have had or know of someone who has gone through these, please let me know. All the ct scans, mri's, biopsy, eeg have come back negative. They have done spinal taps on her, they done all the tests the doctor's can think of....if you have any info, please let me know....thanks...

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9 Replies:

  • I had basically the same problem, lots of doctors. lots of drugs, a dozen differnt tests but no help! Went to a Dr of Altenative Medicinefor help. Sent me to a DDS for full mouth x-ray.I had a root canal several years before the TIA/ seizure happened. The problem was a highly infected tooth and lower jaw bone was infested with infection. This infection was going into my brain for a long time. Had to have a good portion of the infected jaw removed. Problem solved.
    Anonymous 42789 Replies
    • October 10, 2006
    • 02:22 AM
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  • I'm very sorry about your Sabina's condition. I wish I could help. Please know that you and your Familia wil be in my prayers.Lynn
    Anonymous 42789 Replies
    • October 11, 2006
    • 06:25 AM
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  • Thank you for your prayers. The doctors have finally diagnoised my neice with "Rasmussens Encephalitis", she is doing much better. She still has mini seizures, BUT she is ALIVE!!!! Again, thanks for your prayers.
    Anonymous 42789 Replies
    • November 7, 2006
    • 10:29 PM
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  • Hi All,Some body Please help me in giving satisfaction answer where i am in such a critical situation with my 16 Days Old Son struggling for his life due to meningitis. I cannot be technical but like to share my current situation.My son born on 2nd Nov and handed over to us on 3rd and had been with us for another day and given back to doctors for observation after seeing my child turned pale bluish and later found out to be meningitis and went on clinical and various medication. Later he got again Fits/Seizures which led for Brain Scan and found cavity of PUSS formation with report saying " " :::::::: large hypodense lesion in the left parieto occipital area measuring 6.1 x 4.6 cms with fluid density in the superior portion of the lesion ::::::" , " Lateral & Third Ventricles Minimallly Dilated", " Two other small hypodense areas seen inferiorly in the left parietal area", " Minimal Midline shift to the right and compression posterior horn on the left ventricle".Later Doctors decided to go for brain surgery where they removed puss of 100 ML and kept child under observation. Its been now nearly 24 hrs post surgery and still under oxygen and observation. In between those 24 hrs he faced another Siezure/Fits once.Please read above mentioned confused information where ia m desperately want to know the best possible suggestions and my future of my child? When he will return back to home in hands of his mother. PLease provide any suggested second opinions by any famous doctors who ever come accross my messge.Thanks and hoping my child will return soon with well heath.Babji
    Anonymous 42789 Replies
    • November 18, 2006
    • 01:12 PM
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  • My prayers and thoughts are with you and your baby and family.
    Anonymous 42789 Replies
    • November 21, 2006
    • 07:59 PM
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  • Hi there, This sounds like the EXACT same thing an 11 year old girl in my family is going through. They cant tell whats causing her seizures and she also goes back into seizures as soon as they let her wake up. Her mother is asking me to post here and ask what your daughter was treated with? Also what tests did they run on her to find out that she had Rasmussens Encephalitis? They have done every kind of test you could think of on this little girl and they keep saying they think its a virus but they dont know what kind. If you could respond back to me that would be wonderful.
    Anonymous 42789 Replies
    • December 1, 2006
    • 08:02 PM
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  • err sorry, not her mother but another close relative
    Anonymous 42789 Replies
    • December 2, 2006
    • 03:46 AM
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  • My daughter-in-law, age 25, began having multiple daily seizures 2 weeks after her 1st baby was born. Five frustrating months later she was diagnosed with Rasmussens Encephalitis, at Stanford Medical Center in Palo Alto, CA. She takes Neurontin, Keppra, Phenobarbitol, Zoloft and Ativan. She still had about 20 seizures in yesterday's 24 hr. period. She's having IVIG treatments monthly. She is VERY, VERY frustrated! She can't take care of her baby or do much for herself. We're hoping the IVIG treatments work.Good luck with your child.
    Anonymous 42789 Replies
    • December 14, 2006
    • 08:53 PM
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  • Rasmussens Encephalitis: They found my daughter-in-laws with a Spek Scan and constant vidio observation with EEG, in the Stanford Seizure center.
    Anonymous 42789 Replies
    • December 14, 2006
    • 08:59 PM
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