Discussions By Condition: Brain conditions

Baby with little hope

Posted In: Brain conditions 4 Replies
  • Posted By: Anonymous
  • March 23, 2006
  • 04:30 PM

We know of a family that their baby was just diagnosed with this. It saddenes me that we have no clue what causes this and why newborns get this. What kind of support can we give to this family that are fixing to loose their precious daighter besides prayer?

Reply Flag this Discussion

4 Replies:

  • True, I agree. I have also recently seen an infant with Ohtahara syndrome. He was so cute, now he shows signs of developemental regression, with uncontrolled fits even on strong drugs like vigabatrin and epilim.
    Anonymous 42789 Replies Flag this Response
  • True, I agree. I have also recently seen an infant with Ohtahara syndrome. He was so cute, now he shows signs of developemental regression, with uncontrolled fits even on strong drugs like vigabatrin and epilim. He is only 7 months old.
    Anonymous 42789 Replies Flag this Response
  • We have a support group for families dealing with Ohtahara Syndrome. You can find us at: www.ohtaharasyndrome@yahoogroups.com. We are raising our grandson. He was diagnosed with OS at birth and just celebrated his 11th birthday last December. Please pass the information on to any families you know of with OS. We are here to help. Thank you.Tamie
    Anonymous 42789 Replies Flag this Response
  • Are you sure there is no related cause at birth or since? Are you interested in having the medical records reviewed? May email sbork@medlawresources.com
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.