Discussions By Condition: Brain conditions

Anybody out there with this

Posted In: Brain conditions 2 Replies
  • Posted By: Anonymous
  • March 23, 2006
  • 01:42 PM

Hi, Just a quick post to see if there is anyone out there with this disorder.
I have been unable to sleep for 27 months. Drugs DO help me but i am plagued with head vibrations whist trying to fall asleep and always awaken from a very unsleep like sleep ( only possible with hypnotics ) with the same phenomonon. Doctors are lost. Clear MRI, EEg, CT, etc...
Thank you

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2 Replies:

  • Hello,My brother is one of the few known cases of FFI in the US. He was originally misdiagnosed in Feb 1991 with MS. Treated with steroids and all symptoms disappeared. Symptoms reappeared summer of 1992 and he passed away Mar 1993. He was finally diagnosed approx 1 month before he passed away by Dr. Raymond Roos, University of Chicago Hospital. Dr. Roos is chairman of Neurology for U of C. His symptoms were very similar to advanced alzheimers and the same prion protein is involved.
    Anonymous 42789 Replies Flag this Response
  • sounds like sleep paralysis. Do you feel like you are just about to fall asleep and your head starts buzzing and its hard to wake yourself even though you know you arent asleep. Its like you cant move or talk but as soon as you open your eyes it stops?? Thats what i get sometimes...dont know if that is what you meant...
    Anonymous 42789 Replies
    • September 5, 2006
    • 11:30 AM
    • 0
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