Discussions By Condition: Brain conditions

Alpers syndrome

Posted In: Brain conditions 9 Replies
  • Posted By: Anonymous
  • July 6, 2007
  • 05:06 AM

I have recently had a child aged 3yrs pass away from what has now been diagnosed as Alpers Syndrome. I am in search of other parents or sufferers to chat to about this disease.

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9 Replies:

  • Our son died 2 months ago, 2 years and 8 months old, in Alpers. We would very much like to get in touch with you.
    Anonymous 42789 Replies
    • November 22, 2007
    • 05:23 PM
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  • my daughter was diganosied with alpers in feb 2007. she is now 4yrs and 4mths old i would like to here from anyone who has a child with Alpers. at the age of 22mths she started fitting. up until then every thing apeared to be normal.
    Anonymous 42789 Replies Flag this Response
  • i have a 3 month old son and have recently been diagnosed as a carrier of alpers. i am worried sick that i have passed this on to my son . does anyone know of the tests he may have to go through or what i need to look out for please?:confused:
    liamndavid 3 Replies Flag this Response
  • I have recently had a child aged 3yrs pass away from what has now been diagnosed as Alpers Syndrome. I am in search of other parents or sufferers to chat to about this disease.I have a daughter that is 19 months old, and she was recently diagnosed with Alper's disease. We are struggling to get through this as her parents. I would love to keep in touch with you as a support.
    Anonymous 42789 Replies
    • December 7, 2009
    • 06:52 PM
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  • I have recently had a child aged 3yrs pass away from what has now been diagnosed as Alpers Syndrome. I am in search of other parents or sufferers to chat to about this disease. My daughter (19 months old) has recently been diagnosed with Alper's Syndrome. She is experiencing neurological problems, and is currently on a G Tube for feedings. She does not take anything by mouth anymore. I would love to keep in contact with you for support. I am so sorry for what you have gone through. My husband and I are really hurting right now too.
    tdbishop 1 Replies
    • December 12, 2009
    • 06:25 PM
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  • Our son died 2 months ago, 2 years and 8 months old, in Alpers. We would very much like to get in touch with you. I have a son and the doctor think he has alpers but he isn´t sure. My baby have 1 years and never he can be quite only when he is sleeping. He always cry
    toti979 2 Replies
    • January 5, 2010
    • 07:25 PM
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  • I have a son and the doctor think he has alpers but he isn´t sure. My baby have 1 years and never he can be quite only when he is sleeping. He always cry and he has convulsions. I like to know how are the babys with this ilness. PL contact me all parents that know of this.
    toti979 2 Replies
    • January 5, 2010
    • 07:27 PM
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  • Please view our website if you or someone you know is facing Alpers. I am in contact with people and we too are going through a lot with this disease. www.thefightagainstalpers.webnode.com
    Anonymous 42789 Replies
    • January 9, 2010
    • 02:10 AM
    • 0
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  • Please view our website if you or someone you know is facing Alpers. I am in contact with people and we too are going through a lot with this disease. www.thefightagainstalpers.webnode.com
    Anonymous 42789 Replies
    • January 10, 2010
    • 01:04 AM
    • 0
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