Discussions By Condition: Brain conditions

6 weeks since my preliminary diagnosis of PKAN1. No word from hospital since. How long to confirm?

Posted In: Brain conditions 1 Replies
  • Posted By: lonepine
  • September 17, 2015
  • 00:00 AM

Is there no definitive tests to confirm this disease?
Normally how long does it take to confirm a diagnosis for a neuro-degenerative disease?

I cannot get assistance for the symptoms that have manifested without a final diagnosis.

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1 Replies:

  • What is it? I googled it and the only mention was Urs. It came back to u.
    I'm curious.
    Thanks
    shar57 1 Replies
    • September 19, 2015
    • 08:12 AM
    • 0
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