Discussions By Condition: Brain conditions

3 year old Boy with Dandy walker Variant

Posted In: Brain conditions 3 Replies
  • Posted By: Anonymous
  • November 15, 2006
  • 08:21 PM

I have a very sweet and lively 3 year old boy who was diagnosed with Dandy Walker Variant at birth. He has had extensive therapy since birth, however he is still delayed at least a year in his speech and physical development. He is communicating better every day, however he is very hyperactive and spontanious and refuses to listen to any direction. It is very frustrating to me and my husband along with an older and younger sibling. I stay at home and he attends preschool three mornings a week where he is also visited by therapists. That is my only break from constant interaction with my wonderful boy. He is a challenge and is non stop active. It is almost impossible to reason with him, teach him direction, or get anything accomplished that does not involve him. I feel my other children are neglected compared to him. I cannot leave him alone in a room. My husband and I have hoped these personality issues would lessen with age. They have not and only have become worse with age. He even is regressing to our one year old's age level in many ways. I want to know if anyone else has experience with a Dandy Walker child that has these issues. I cannot find this info on the internet.

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  • hi. my son is now 2yrs and 6 months and sounds exactley like your son. I do understand what life must be like for you.He has speech delay, he w sit can not sit on his bottom with legs out because of rounded back, he now walks with a K walker ,but prefers crawling as it is quiker to get away from me.I don't want to say how many times I have been to hospital because of falls, hie balance is all over the place.I have also two teenage boys and a 10 year old girl who without i would not be able to manage somedays. But I must add that he has alittle face of an angel and a smile that would melt a thousand hearts, i love him to bits. Best wishes to u x
    Anonymous 42789 Replies
    • February 24, 2007
    • 10:43 PM
    • 0
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  • It's good to know that you can communicate with your boy. I have a 2 year old and he is not sitting up on his own or even walking or talking yet. When did your son start to talk and walk? My e-mail is savior_91@hotmail.com. May God bless you and your family during this time.
    Anonymous 42789 Replies
    • February 27, 2007
    • 06:15 AM
    • 0
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  • My name is Tracy, its been a few years since you posted, but thought I would try. My son has DWV also and is 4, will be 5 in September. I have the SAME exact problems with my son also and there isn't much info out there at all. I am struggling to stay sane! It's the same with you where I can't seem to communicate enough with him to help him...if you still get the post to this please email me!klbhye@yahoo.comThanks!
    Anonymous 42789 Replies Flag this Response
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