Discussions By Condition: Brain conditions

20 wk foetus with dandy walker syndrome

Posted In: Brain conditions 3 Replies
  • Posted By: Anonymous
  • May 9, 2007
  • 02:58 PM

Hello,
My wife has 20 wk old foetus and doctors found out through ultra sound that baby has dandy walker variant. They say babies born with this kind of variant can be normal or severely impaired, mentally imbalance, cause delay in developmental ativities, delay in motor activities but couldn't say in where this baby will be falling in the spectrum of problems.
Can anyone share their experiences and help us determine what to do? like any more test, chances of getting better few more weeks and doing tests again, what kind of treatments are available etc.
I sincerely thank you for helping us out.

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3 Replies:

  • I will try to give you some input since you haven't had any other responses! I am the 27 year old with DWS, that responded to the two year old with DWS! If you haven't already, you may want to read that! I don't know anyone else that has it personally, and neither my doctor nor my neurologist give me much information about it so I get most of my info from reading or on the internet! I know that the treatment depends on the patient and the severiety! If the patient gets hydrocephalus, they can put a shunt in to control the fluid! Me , I don't have a severe case of it, I am on three different pain meds for migraines, I do get dizzy and have nausea and "blackout spells," OH, and somewhat bad coordination, but I live a very normal life! I have children that are healthy, I am in college, and I am very close to becoming a RN! Good luck to you, your wife and your unborn child and God bless!
    Anonymous 42789 Replies Flag this Response
  • Hello,My wife has 20 wk old foetus and doctors found out through ultra sound that baby has dandy walker variant. They say babies born with this kind of variant can be normal or severely impaired, mentally imbalance, cause delay in developmental ativities, delay in motor activities but couldn't say in where this baby will be falling in the spectrum of problems.Can anyone share their experiences and help us determine what to do? like any more test, chances of getting better few more weeks and doing tests again, what kind of treatments are available etc.I sincerely thank you for helping us out.Hello there,I'm sorry to hear about ur baby.My son too has Dandy Walker variant, he is now 19 months old.He has had some obstacles in his life.Right now he has alot of delays in his motor skills. Just started to walk about a month ago.Does'nt know how to chew his food very well either.All my Drs.' have to told me is to wait and see how this will affect him. He is'nt on any medications at the moment. I will tell u this that my son is very hyper. Don't know if that is related to the syndrom or not.He has been doing therapy since he was a month old.I'm very greatful to those therapist who have helped him.My son was diagnosed with this at birth. I did'nt know he would be born with this. While pregnant they thought he mighy have had hydocephlis but that was ruled out with an ultrasound.This is all new to me as well. The main recomendation I have is to praise your child in everything he/she does.My son loves that.It helps him push himself more and more. I'm very greatful in everything new he does no matter how small it maybe. Because everthing he does is a big step to me.I was told in the hospital after he was born some of the possibilities that he might not walk or talk. He took the big step in walking, now we are working on talking and eating. But he is just a bit slower then other kids. And I'm o.k. with that because I know he has a dissability.But he is strong, and will overcome his obstacles.
    Anonymous 42789 Replies
    • October 20, 2008
    • 09:20 PM
    • 0
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  • Hello,My wife has 20 wk old foetus and doctors found out through ultra sound that baby has dandy walker variant. They say babies born with this kind of variant can be normal or severely impaired, mentally imbalance, cause delay in developmental ativities, delay in motor activities but couldn't say in where this baby will be falling in the spectrum of problems.Can anyone share their experiences and help us determine what to do? like any more test, chances of getting better few more weeks and doing tests again, what kind of treatments are available etc.I sincerely thank you for helping us out.my daughter is 20 wks as well dx the same dandy walkershes having more testing MRI Ultrasounds probably ameno . know body (the drs that is )doesnt seem to be giving us straight forward anserws. everthing seems to be all black and white there is no gray area as far as how severe this can effect the baby. my daughter has been given the option of terminating the pregnacy which is a very tough decision a first time or any parent for that matter, has to make. sorry I couldnt be more helpful. just have comfort that you are not alone. my prays are with and your family
    Anonymous 42789 Replies Flag this Response
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