Discussions By Condition: Bone conditions

strange bony lumps

Posted In: Bone conditions 2 Replies
  • Posted By: Eric Eubanks
  • February 20, 2007
  • 06:21 PM

sorry but its a long story,
about 2 years ago I moved into my moms house because she was getting very ill. To make a long story short we found out that we both suffered from long term exposure to carbon monoxide poisoning. a period of about 5 months. The exposure was so severe that the carbon monoxide detector in the heater itself completly shut down the applince atleast twice. Both times the manager of the heating company would simply turn back on the pilot lite and tell us to call if it happened again. shortly after moving out of the house due to the damage caused by the heater like severe water damage and mold growth, I began to have irregularly shaped bony nodules start growing all over my body. for about 2 years my doctor treated me for having early onset ostioauthritis even though the blood tests show no signes of any authritis. all my red and white cell counts are normal but I continue to get these lumps. They are severly painful to the point that my doctor has been prescribing me pain controle drugs for several months going from vicodin to 50 mg of tramadoll then this last two months was uped to 100 mg of tramadoll 4 times a day. I have had to cut back on my work week to only three days and am loosing my house and can no longer pay these out ragous medical bills. I have had x-rays, myltiple blood work and nothing shows up but the lumps are growing at a fast rate. In the last 2 months I have 5 new lumps. they are not only growing on my joints but are on the flat surfaces of my head such as my occipital bone and the frontal bone above my eye, and on the fronts of my leg bones. I cant hold things in my hand because they hurt so bad I have to walk on a cane. And I am loosing what used to be my life. If this is not due to the long exposure to the carbon momoxide what do you think it may be? I am at the end of my rope and the knot is slipping:( . Eric

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2 Replies:

  • sorry to hear about your pain. Has the Dr. done a biopsy on them? Is this all out of pocket for you?
    Tinman 4 Replies Flag this Response
  • Hi Eric, I am also having a bizarre situation involving bony swellings. It started out on my jaw (just below the tooth-gum line) and then I noticed them on the back of my skull; the occiptial region just as you mention. Even more concerning, after the mass in my mouth enlarged slightly, I began to start "wasting" as my body mass/volume has been decreasing ever since. Paradoxically, I've not lost any weight. CT scans show nothing, x-rays show nothing. I had a biopsy of the jaw swelling and it came back as normal bone. With your case, the issue seems to be rapidly progressing. I seem to recall reading in my own search for answers about rare conditions that can cause tumors or masses to grow all over the body. One is a type of exostosis disorder, one was a type of cancer, and the rest were possibly related to osteoarthritis. If you haven't yet done so, please get a biopsy of one of the lumps.
    Mr. Concerned 10 Replies Flag this Response
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