Discussions By Condition: Bone conditions

bone infection

Posted In: Bone conditions 21 Replies
  • Posted By: Anonymous
  • May 9, 2006
  • 09:47 PM

Hi,
Trying to find out if there is anyone here on the forum to discuss;Osteomyelitis?
Recently, I had four inches of my collar bone removed due to osteomyelitis,
it's been three months since surgery and things aren't healing so well, my Dr. has refered me to a infectious disease specialist as a recent bone scan came back questionable with suggestions to have several test to figure things out.

Let me hear from you!

pichuu123
Thank-you in advance

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21 Replies:

  • i have acctually had osteomyelitis in my right leg right below my knee i got the infection when i was 9 it went on for at least a half a year and my parents took me to 4 diffrent doctors before my pediatrician figured out wat it really was .. all the other doctors told me to jsut take some asprin and that it wasnt anything serious but when we knew wat it was the doctors at the hospital said that if i had found out any later than i had that i would have most likely lost my leg it ws a really scarey experiance but i am glad thats its over they preformed surgery and now uim left with a long scar under my right knee to remind me of it ... i am now 16 but i still remember waking up at 4 in the morning every day for my mom to inject the antibiotics through the pic line in my arm .. thats all i remember right now from the surgery but ya that was my experiance :)
    Anonymous 42789 Replies Flag this Response
  • Hey/wow/ Thanks for your story about this bone infection nasty :(Did the drs. take out alot of bone that was infected?Just got back from a bone scan today...will know more when I go to my drs. appt. on Monday, at this point my left arm and shoulder are in constant pain guess that means in drs. term "chronic" it's a long healing process and yet to be under a threat that this can return....whenever...sigh.At any rate I'm still here on planet earth and hope to be for a few more yrs.!pichuu123
    Anonymous 42789 Replies Flag this Response
  • In regards to Ostemyelitis (sp?) it is a very nasty infection. I was diagnosed as having Ostemyelitis in my right lower leg in late 1990. I underwent 2 debreading procedures, during which the surgeon found a broken drill bit which was not stainless steel, which were left open to close from the inside out to eliminate the possibility of the infection being traped in my leg. I was instructed to remove any scabs that formed to assure that the infection was no longer present when my wound closed up. It was open for almost 9 years. It closed sometime in 2000 and behaved very nicely until it flared up again in May of 2006. It manifested as a blood blister on my shin. When I saw my orthopedic surgen (Dr. Heiden) in Madison, WI he referred me to an infectious specialist at the UW University hospital. We are now waiting for another blister to form so that they can shoot dye in the cavity to better locate the source.
    Anonymous 42789 Replies Flag this Response
  • i was diagnosed with osteomyelitis last August in my spine. I dont know where i got it or how. But it was very painful. I have an infectious disease control doctor. I owe him thousands of dollars. I had iv antibiotic treatments for 6 weeks after the diagnosis and then a follow-up treatment of oral antibiotics for 2 weeks. I felt better, but now the same symtoms that occurred at the beginning of the diagnosis are back. The back pain and night sweats, loss of weight. I waited way to long to see a doctor before and when i did go. They didnt diagnose the problem. That is when i ended up in the emergency room of a hospital and stayed for several days and they found out I had this. Has anyone had a reoccurance of the disease. I am just wondering, I sure dont want it back. IT was the worse pain I have ever been in during my whole life. JP
    Anonymous 42789 Replies Flag this Response
  • My daughter now 13 suffered from this horrible disease in her sinuses. When diagnosed, she was given not a long life span at all, as the disease eats away at the bone, and there is not alot of bone in the sinuses anyways. She has undergone 17 surgeries in the past 3 years, has undergone hyper-baric treatment and iv antibiotics. She is doing well now, and has a good outlook. For those out there that do have this, it is serious and not to be taken lightly.Hers started out with chronic sinus infections, antibiotics never killed the bacteria and it just continued to mutate. Thank-God for the Awesome Dr.s in Denver, as I may not have a daughter if they did not have the knowledge to know what and how to do!!!!
    Anonymous 42789 Replies
    • September 9, 2006
    • 00:39 AM
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  • wow!! Your right, thanks to the "good" Drs. for me in Maine I'm not sure where I'd be now if not for them.Hope your daughter continues to go forward and heal,17 surgeries for a young person to bear is too painful for me to read about...Best to you and your daughter
    Anonymous 42789 Replies
    • September 11, 2006
    • 00:28 AM
    • 0
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  • I have just been diagnosed with chronic osteomyelitis of the area right below my left knee. The infection started out as a simple suture abscess after surgery and ended up spreading to the bone. That was in April and the incision has never closed. In July I finally had a doctor suspect a bone infection and she treated me for that even though a lot of the signs were not present. I was on IV antibiotics until the end of August, and Clindamycin until a little over a week ago when another doctor deemed it unnecessary. I went back into the hospital last week and the doctors decided to do a bone scan which did show a bone infection. The doctor I am seeing now said it just came back after all of the previous treatment so I have to be on a lot of stronger antibiotics. He also recommended hyperbaric therapy, which I will begin sometime next week. The pain has been unbearable; it hurts to do anything... to sit, stand, walk, lie down.. worse than the pain I was in after the surgeries I have had on both knees combined. Anyway, I just wanted to jump in and share my story. My doctors make this type of infection seem so uncommon, but reading here it doesn't seem like it really is.
    Anonymous 42789 Replies
    • October 12, 2006
    • 00:09 PM
    • 0
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  • hi I went into the hospital in late June of 2006 for a simple torn cartilaige operation when i came out of it i was fine for about a week then my knee started to fill up with fluids the pain was really unbearable i had the knee drained about seven times with the labs checking for infection everytime i also at that time had a mri which showed nothing because they said the knee was to swollen at the time since June i went to the operating room twice the most recent was before Christmas i guess at one point due to the many times i had my knee drained one lab came up with a staff infection which one doc gave me oral anti biotics after ten days of no improvementi spended two days in the hospital they cleaned out the knee with saline and gave me a midline which failed two days after coming home and i went to another hospital to have a picline put in had iv antibiotics at home for six weeks had another mri with dye and a bone scan with dye and i"m just starting to take antibiotics again by mouth the findings are a bone infection under the knee cap called the tibia ? i"m just starting to feel a little bit better but by know means I"m out of the woods yet i am still doing a little more research to try to get to the bottom of this diease
    Anonymous 42789 Replies
    • January 30, 2007
    • 11:32 PM
    • 0
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  • :confused: I have had chronic pain in my knee It fills with fluid periodicly it hurts in the back of my knee also when I bend my knee it feels like bone on bone and it mack a click sound. Odviously there is something wrong but I never thought of bone infection. I have just been putting up with it. I went in years ago for the fluid on my knee the Dr. gave me naproxen
    Anonymous 42789 Replies
    • February 1, 2007
    • 04:20 PM
    • 0
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  • My daughter now 13 suffered from this horrible disease in her sinuses. When diagnosed, she was given not a long life span at all, as the disease eats away at the bone, and there is not alot of bone in the sinuses anyways. She has undergone 17 surgeries in the past 3 years, has undergone hyper-baric treatment and iv antibiotics. She is doing well now, and has a good outlook. For those out there that do have this, it is serious and not to be taken lightly.Hers started out with chronic sinus infections, antibiotics never killed the bacteria and it just continued to mutate. Thank-God for the Awesome Dr.s in Denver, as I may not have a daughter if they did not have the knowledge to know what and how to do!!!!How and what did the Drs in Denver do for your daughter?
    Anonymous 42789 Replies Flag this Response
  • I found out in 2004 that I had osteomyelitis. It started out in my left pinkie toe which I ended up having to have amputated. This was in April, 2004. In May, 2004, I ended up in the hospital for 36 days with acute renal failure and septicemia. At this time my knee pain was excruciating. The PTs and doctors kept telling me it was arthiritis and I was just being overly sensitive to the pain. After spending 36 days in the hospital, I went home with IV antibiotics for 6 weeks and no relief for the knee pain. I had PT daily at a Rehab Center for over 6 weeks, including aqua therapy, but the pain kept getting worse and worse. To make a long story short, my pcp sent me to an orthopedic surgeon who did bone scans, mri, CAT scans, and finally exploratory surgery and found the osteomyelitis in my knee. I was sent to Tulsa, OK to have knee surgery and ended up having my petulla removed (what was left of it) and told I was not a good candidate for knee replacement and I would probably never be able to walk again. I continued seeing the orthopedic surgeon for approx. 6-8 months for staph infection in my knee and had several out patient surgeries to remove the infection. Each time I would spend approx. 2 weeks in the hospital on IV antibiotics and then oral antibiotics after going home for up to 6 weeks at a time. During this time I could be off antibiotics for 10 days to two weeks, then the infection was back. In the spring of 2005, I had an abcess come up on my right glutteal maximus (butt cheek). One day it just started spuirting blood and bleed out enough that I had to have a blood transfusion. My pcp tried treating this for about 2 weeks with no improvement so he referred me to wound care specialist in Tulsa. I began seeing this wound care specialist in the summer of 2005. Since then I have had to have four surgeries on my butt. I have had to have a wound vac on my backside three different times for up to 8 months (the longest period of time I had one, the shortest period was about 6 weeks). Due to the unpreditability of the infections, I have had to quit work and go on disability. I am in a wheelchair now. I had a surgery in February, 2008 and was in the hospital for 30 days. I was recently in the hospital for 10 days for my most recent surgery for the same wound I have been battling since 2005. On my first surgery/debridement I had over 100 stitches and had a cavity about the size and shape of a football. That was in 2005. Now the wound is about 6" long and 1/2" deep. Progress is being made but very slowly but now the pain is minimal except when the infection is active. Through all of this I have been diagnosed with MRSA and VRSA. I understand this is one of the side effects of this ailment. I would like to hear from others with osteomyelitis. When I first started researching this, it was difficult to find any info. Now I hear more and more about this. If you would like to communicate with me about this, I would really appreciate this.
    Anonymous 42789 Replies
    • August 20, 2008
    • 09:12 PM
    • 0
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  • Hi,Trying to find out if there is anyone here on the forum to discuss;Osteomyelitis?Recently, I had four inches of my collar bone removed due to osteomyelitis,it's been three months since surgery and things aren't healing so well, my Dr. has refered me to a infectious disease specialist as a recent bone scan came back questionable with suggestions to have several test to figure things out.Let me hear from you!pichuu123Thank-you in advanceI'm so sorry to have read about your surgery.Was the complete 4 ins of bone removed? or was a back part left in tact? My son of 12 was diagnosed with chronic osteomyelitis in his right clavicle. He received the diagnosis in March 2009 having had a bone scan, MRI, CT and a large 2 ins.biopsy.He then received intravenus antibiotics for 18 days and further therapy of Fucidin oraly for another 6 weeks. He had been living with bone pain since August 2008. Unfortunately 5 weeks after this initial treatment ,the pain returned and he has now been on Fucidin for 15 weeks. My son was very numb in a large area after the surgery/biopsy in February,but the feeling has slowly returned completely now after 7 months...nerve endings can grow up to 1/4 of an inch a month we were told and they have.It's been over a year now since the first symptoms. His next appointment is in a couple of weeks.Where do you receive your treatment? We live in Athens Greece.I have visited some sites and have read afew osteomyelitis stories ....you are the only person that I know about who has the disease in the same bone as my son, and I wish you all the very best for a full andspeedy recovery. Perhaps we could stay in touch?
    Anonymous 42789 Replies
    • September 28, 2009
    • 05:03 PM
    • 0
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  • so, i'm 20 years old, i crashed my motorcycle about a year ago and broke my femur (leg above the knee), i had to get a steel plate and lots of screws in it to hold it together. i have seen multiple doctors and all of them except 1 took me seriously and made me do a bone scan about a week ago, and he says i have osteomyelitus... i'm not sure if its acute or chronic, but im awaiting a message from my doctor to get some more tests done to see whats up with it, i will post back once i find out more, hopefully if it IS a bone infection than its an acute one.
    Anonymous 42789 Replies
    • October 8, 2009
    • 07:17 AM
    • 0
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  • I have been diagnoised with a bone infection. I was told I have the infection last Friday, after having a bone scan the wednesday before. The doctor said it was a bad infection and has had me begin taking antiboitics. I have been on them for 6 days now and I still am in pain, and just today the pain hass begun getting worse. I have a doctors appointment tomorrow and after reading everyones postings I am really scared as to what may happen. When I first went to the doctor they thought I had a stress fracture. After no fractures showed up in my x-rays, they sent me for a bone scan. I will let everyone know what is going to happen.
    Anonymous 42789 Replies
    • January 14, 2010
    • 04:16 PM
    • 0
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  • I had MRSA in 2006 which was the most painful thing I have ever experienced. It was in my left foot during my pregnancy. I had to have an emergency c-section to save my baby and then they did surgery on my foot. I didn't even feel the c-section because the pain from my foot was so excruciating. If I moved it, it hurt. I had become septic and they had to give me vancomycin through IV and I was in the hospital for about a week. I was sent home with a pic-line and orders to do vancomycin every 4 hours, I think. I had to continue that for 6 weeks. I had to have a nurse come to my home to check on my foot to make sure it wasn't getting infected again. I also had therapy at home as well. I had to learn how to walk again. My foot has never been the same since. In early 2010 my foot started bothering me again. I could feel it heating up some which was scary because that is what happened last time. I have had CT's, MRI's, X-rays and was recently diagnosed with osteonecrosis, dead bone. It is in both feet which is terrible. One of my ankles is collapsed which is making my hip hurt as well. My left foot is the most painful though. I'm going to have surgery, arthroscopy, soon and was wondering if anyone has been through this? Any advice would be appreciated! Thank you!
    Anonymous 42789 Replies Flag this Response
  • I'm so sorry to have read about your surgery.Was the complete 4 ins of bone removed? or was a back part left in tact? My son of 12 was diagnosed with chronic osteomyelitis in his right clavicle. He received the diagnosis in March 2009 having had a bone scan, MRI, CT and a large 2 ins.biopsy.He then received intravenus antibiotics for 18 days and further therapy of Fucidin oraly for another 6 weeks. He had been living with bone pain since August 2008. Unfortunately 5 weeks after this initial treatment ,the pain returned and he has now been on Fucidin for 15 weeks. My son was very numb in a large area after the surgery/biopsy in February,but the feeling has slowly returned completely now after 7 months...nerve endings can grow up to 1/4 of an inch a month we were told and they have.It's been over a year now since the first symptoms. His next appointment is in a couple of weeks.Where do you receive your treatment? We live in Athens Greece.I have visited some sites and have read afew osteomyelitis stories ....you are the only person that I know about who has the disease in the same bone as my son, and I wish you all the very best for a full andspeedy recovery. Perhaps we could stay in touch?im in the hospital now with osteomylitis in my left clavicle, frankly im scared ****less and i dont know what to do.. im on veincomyisis and some other heavy antibiotics, all i hear about is people think it goes away, then it comes back twice as badly.. please someone give me a name of some medicine that helped yall get rid of it..
    Anonymous 42789 Replies
    • August 18, 2010
    • 02:26 AM
    • 0
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  • Her infection started out with sinus infections? Do you know what other symptoms she had? I have been extremly sick and hospitalized a few times within the last year. No doctor can seem to figure it out but all my problems started with sinsus infections and ear infections. Did she have night sweats, fevers, or her heart start to do anything different? Thanks! I live in Denver as well any Doctors you would recommend?
    Anonymous 42789 Replies
    • January 17, 2011
    • 06:25 AM
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