Discussions By Condition: Blood conditions

Trigeminal Neuralgia/severe pain

Posted In: Blood conditions 1 Replies
  • Posted By: Anonymous
  • April 23, 2007
  • 04:13 PM

I have swollen glands under my chin and I have been in severe pain since
Tuesday. I went to the ER and they dx me with Trigeminal Neuralgia but they
only gave enough meds to last til mid-night Saturday. When I called them to
see if I could come back they treated me very nasty and said if I did the
doctor would tell me to take Advil and go home!!! I had to call doctors'
offices for 2 hours to find someone to help me. He called in more med but it is
a smaller dose that what the ER had prescribed and it does not take the pain
all the way away. (will write more about this later.)
Anyway here's my problem the pain is as severe as what is discribed under
Trigeminal Neuralgia but it is not stopping I have not had a break without the
meds and it should be lasting on about 15 min tops. I have been in pain since
Tuesday!!! The other thing is that everything I read says that it should only
on one side of my face. But I am having what appears to be real Trigeminal
neualgia on the right side and the non-stop pain on the left.

I am going crazy from the pain and am despert to find out what this is?
I go to see a neurologist tomorrow. But not sure how I'm suppose to hold out til then.


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  • I hope your pain has gone and that you have been properly looked after. I experienced similar pain two years ago and my doctors thought I had neuralgia but referred me to a neurologist. It took two weeks for me to see the specialist and in that time I was experiencing the worst pain I had ever felt in my head. As a lifetime migraine sufferer, I am used to pain in my head but nothing like this. It felt like my scull was cracking. I too had it on both sides of my face. After seeing the neurologist and urgently being referred to have an MRI, they found I had a Cerebral Thrombosis- massive blood clot in my brain and was taken straight to hospital and was fortunate enought to not have any neurological damage. I was experiencing classic stroke signs but had been ignoring them. I hope you have received help to clarify your condition. As I am fairly young to have this problem (35), and in the absence of normal risk factors, it took a while to get to the bottom of it. I have been on Warfrin for nearly two years and have recently come off it. I have been seeing a haematologist to determine the cause. Initially they put it down to the contraceptive pill in the absence of other causes but they now think that it may be due to Thrombocytosis (problem with my platelets) as my platelet count is rising steadily to risky levels again. They think that the fact I was taking aspirin in the lead up to me getting the headaches stopped me from actualy having a massive stroke and am now on daily aspirin (150mg) to reduce my risk of having another clot. All I can advise is trust your insticts and keep following up with your specialist even if they can't find cause. insist on and MRI as this is supposed to be the only way to really get to see what you may have. Good luck.
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