Discussions By Condition: Blood conditions

(mostly) one sided lymphadenopathy +tonsil enlargement

Posted In: Blood conditions 7 Replies
  • Posted By: KathyAM
  • January 4, 2008
  • 11:09 PM

I have had enlarged lymph nodes on the left side of my neck for about three months now. They are not painful and they are rubbery and moveable. I also recently noticed one submandibular enlarged lymph node on the right side. I finally got in to see the doctor the other day and she noted an enlarged tonsil on the left. I have had sort of a scaly dry rash which my doctor calls seborreic (sp?) dermatitis on my face to the left of my nose. I'm not sure if there are palpable lymph nodes in my chest, but when the doctor was feeling there, she said "oh,yeah, you have some enlarged lymph nodes". I don't know if she was referring to where she was feeling at the time or if she was referring to the ones I already knew about in my neck.

My doctor asked about my dental health (fine to the best of my knowledge...I think if there was an abscess in my mouth I'd have some sort gum inflammation). So far my monospot test, rapid strep, and thyroid tests were all normal/negative. I have CBC, chemistries, HIV, and ANA tests pending and I am supposed to go back to see her in three weeks.

Other symptoms that I have that may or may not be related are pinpoint burning sensations that occur about 1-2 times per day, last several seconds, and occur in various areas of my body. I had pretty consistant pain in my left calf for a few months, but it got really bad when I had a cold a few weeks ago and then seems to have gone away mostly. I have periodic night sweats - maybe once a month and I also have restless leg sydrome that is atypical in that the movements continue during REM sleep.

I am going a little batty here trying to rule out the scary stuff without enough info. Does lymphoma (Hodgkin's and the like) show up mostly one sided or is it less likely to be lymphoma because I have the lymph nodes enlarged mostly on the one side? What about infection? Wouldn't I have some sort of soreness in my face if infection were the cause of the enlarged lymph nodes? GAAAAAHH. I HATE waiting.

Any insight you all can give me would be much appreciated.

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7 Replies:

  • Enlarged lymph nodes are usually associated with a bacterial infection or viral infection e.g. swollen lymph nodes in the neck are normally caused by severe throat infections. However, the swelling does subside when the infection has cleared up. Persistent swelling is a concern for cancer as this should not be happening unless there is a bacterial or viral infection. Some other symptoms of lymphoma include fever & sweating at night, abdominal swelling & discomfort, anaemia which would cause tiredness, pale skin & shortness of breath. Itching is not a symptom of lymphoma only in a very rare type of lymphoma.lymphatic system
    abdrew 24 Replies
    • February 1, 2008
    • 11:10 AM
    • 0
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  • Hi,I have the same symptoms (and then some), except that I have had abcessed teeth, which were removed about six months ago. One of the abcessed teeth was intermittently draining through a hole in the gum, but the others weren't draining. At first, I was diagnosed with Trigeminal Neuralgia (due to the severe headaches). I had wondered if my teeth might have been the cause, so I attempted to have some extractions,etc. The inflammation wouldn't allow the anesthetic to work, so I was temporarily out of luck. Around that same time, I made the discovery that the Prednisone I was being given (for "Chronic Sinusitis"), was keeping the "Trigeminal Neuralgia" under control. So, I was prescribed a regimen of Keflex and Prednisone (20mg per day). After two years, I had gained well over a hundred pounds and was suffering from severe edema and difficulty breathing (among MANY other symptoms). I finally got the nerve to try having my teeth worked on again. I still had a great deal of inflammation, but I managed (barely) to sit through several visits, while having some teeth extracted (including the abscessed teeth). Since I had just had the abscesses taken care of, I talked to my doctor and received permission to begin tapering off of the Prednisone (over the next two weeks). A few days after I began tapering, my legs and feet swelled to several times their original size and I was having a LOT of trouble breathing (I'm not certain whether the cause was the tapering or the recent tooth extractions). I still had a lot more dental work to be done (due to severe dry mouth, which I have had for MANY years), but that would have to wait. I was hospitalized for five days and then discharged without a diagnosis. About a month later, I went in for more extractions. The dentist was having way too much trouble with them, so I was referred to an oral surgeon, who removed all but two of my remaining teeth. That was over a year ago and I'm still running a fever (the fever has been constant for over two years) and I feel inflammation inside my face (under the eyes and back to my ears). My face and ears get hot and I hear fluttering noises in my ears (it actually sounds AND feels like an insect is buzzing around in my ears). Also, my Tonsils are always swollen and full of the "wet bread" substance. My ears itch all the time (deep inside) and sometimes, my ears hurt (as though I have an ear infection). I have practically all the symptoms of Panhypopituitarism (or possibly a Pituitary Tumor). In additional to the aforementioned symptoms, I am also experiencing the following: Difficulty Urinating, Insulin Resistance, Borderline Diabetic (5.5% Hgb A1c), Low FSH, Low LH, Low DHEA, Low Testosterone, Low Cortisol, Low-Normal Thyroid, Night Sweats, Hot Flashes (Male), Gynecomastia, Migraine, Visual Disturbance, Ringing in the Ears, Increased Sense of Smell, Increased Thirst, Dry Mouth, Fatigue, Dehydration, Tremors (mainly in the arms and fingers), Hypertension, Paresthesias, Peripheral Neuropathy (Pins & Needles and Cutting, Burning and Water Sensations), Balance problems, Muscle Weakness, Muscle Stiffness, Numbness and Tingling of the Extremities, Loss of Body Hair, Nausea, Swelling of the Abdomen, Fluid Retention, Enlarged Liver, Fatty Liver, Excessive Gas, Abdominal Pains, Back Pain, Sudden Cholesterol Problems, Itching (especially the legs), Gallbladder Sludge, Varicose Veins, Personality Changes, Startle Easily, Stasis Dermatitis, Dark Urine, Cloudy Urine, Foamy Urine, Frequent Urination, Burning During Urination, Lack of Libido, Chronic Diarrhea, Red Hands, Difficulty Sleeping, Horrible Nightmares, Dry/Scratchy/Itchy Eyes, Coldness and Tingling in the Upper-Left Thigh, Striae in Armpits, Striae on Stomach, Glossitis and Brittle Nails. One of the stranger things I've noticed is that the Right-Side of my Body is much larger than the Left-Side. At first, I attributed this to the fact that I lay on my right side only (I'm unable to sleep on my left side, due to the pain and extreme discomfort), but I really don't feel like that is the reason. Also, when I'm doing anything remotely active, I smell an "Ammonia" odor. More odd than that, when scratching the inside of my right knee, I feel a tickling feeling in the left side of my neck, a lot like the feeling you get in your stomach when you go really fast down a hill, in your car . . . except that the feeling is in your neck) Other illnesses I have, include: Narcolepsy w/ Sleep Paralysis and Hypnogogia (I've had Narcolepsy as far back as I can recall - around age five or six), Fibromyalgia, Chronic Fatigue Immunodeficiency Syndrome, Multiple Chemical Sensitivity, Venous Insufficiency, Hypogonadism, Obstructive Sleep Apnea, Dermatofibrosarcoma Protuberans (although, after a recent discovery online, I would venture to say that it was actually a Bednar's Tumor, which is akin to DFSP - I'll be asking the Dr. on my next visit, to see if he concurs) and Eczema (among others). Also, I've lost several inches from my height (over an undetermined period of time). And, some of my most recent bone density tests show low-normal bone density.My blood tests are always out of whack: RBC, HGB, HCT, PLT, MCH, MCHC, %EOS, MPV, Cortisol, FSH, LH, Sed Rate, Testosterone (Free), Testosterone (Free, Percent), Testosterone (Total), DHEA, TSH, Triiodothyronine(Free, Serum), BUN, Chloride, CO2, Creatinine, Glucose, Insulin, Total Protein, AST, ALT, Alk Phos, Anion Gap, Globulin, A/G Ratio, Bun/Creat Ratio, Triglyceride, HDL, CHD Ratio, HDLD, LDL, LDL/HDL, HDL Risk, Complement TOT and Complement C4 Family History Mother - Cancer Mother - Hepatitis C Mother - Mitral Valve Prolapse Mother - Scoliosis Mother - Hx of Congestive Heart Failure Mother - Hiatal Hernia Mother - Hypothyroidism Mother - General Anxiety Disorder Mother - COPD (Emphysema and Chronic Bronchitis) Mother - Peripheral Neuropathy Mother - Pernicious Anemia Mother - Interstitial Cystitis Mother - Fibromyalgia Mother - Kidney Stones (Past and Current) Mother - Hx of Chronic UTI's Mother - Currently being worked up for Drooping Eyelid, Weak Neck, Loss of Smell, Memory Loss, Confusion etc. Father (Deceased) - Hepatitis C, Cirrhosis of the Liver, Depression Grandmother, Maternal (Deceased) - Died of Cancer (Undetermined Origin - included breast cancer among others)], General Anxiety Disorder Grandfather, Maternal (Deceased) - Died of Cancer (Bladder, Kidney and Prostate), was Borderline Diabetic Brother - Mitral Valve Prolapse Brother - Dermatological Problems, including an infection (similar to a boil, but much deeper), which had to be surgically removed; also, severe acne Sister - Hypothyroidism, Bi-Polar Disorder Great Grandmother, Maternal (Deceased) - Alzheimer's Disease Great Grandfather, Maternal (Deceased) - Heart Attack Great Aunt, Maternal - Cancer (Breast), Parkinson's Disease Niece - Hypothyroidism, General Anxiety Disorder, Asthma (no longer a problem) My gut feeling says that my Pituitary Gland is somehow affected by the abscesses that I had. With the fever, the elevated Platelet count, the elevated Sed Rate and the feelings of pressure and heat in my face and ears, all signs seem to point to infection (with the exception of a normal white count). I am living a miserable existence and I'm unable to get the level of care that I need, due to my rural surroundings. I am fortunate, however, to have a Primary Care Physician who is open-minded and willing to give me any reasonable referral or test that I request. So, any ideas will be greatly appreciated. Thank you, in advance, for any consideration and certainly thank you for your time. Sincerely,Joe (NoDrCanDiagnoseMe)
    NoDrCanDiagnoseMe 20 Replies
    • September 28, 2008
    • 04:59 AM
    • 0
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  • Joe,I recommend euthanasia. Just kidding. Have you been to any endocrinologists?
    Anonymous 42789 Replies
    • November 5, 2008
    • 08:33 PM
    • 0
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  • To Dr. Derek:Thank you for your reply, Dr. Derek. Euthanasia?! Hahaha! Seriously, though, it's funny that you mentioned an Endocrinologist, because I actually have an appt. scheduled for the middle of December. The Dr. moved to the beach to semi-retire from his thriving practice in the city. The locals say that he is really good, so I am very hopeful. For a long time, I've said, "the person who cures me will be very fortunate, because I will reward them handsomely!" Thanks again. It takes a special kind of person to spend their free time, offering advice to others. I want you to know that it is greatly appreciated.Have a great day. :-)JoeTo KathyAM:Oh, by the way, KathyAM - Because your legs (or feet) are moving during your sleep, it is probably not Restless Leg Syndrome. Instead, it is most likely what is known as 'Periodic Limb Movements' (or, at least, this is what I have learned during my years of online research). Try Googling the phrase and see if it matches your symptoms. If so, you should try searching for causes of Periodic Limb Movements (ex. Causes Periodic Limb Movements). I hope this information is helpful.Have a great day. :-)Joe
    NoDrCanDiagnoseMe 20 Replies
    • November 5, 2008
    • 10:07 PM
    • 0
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  • Hi KathyAM,Any news on your test results? How are things going? I've had a swollen lymph node under my right jaw for a few weeks now and I'm also really sick (flu or something). Plus, I've been having more problems with my reproductive system. The Dr. says that it's either Prostatitis or Prostate Cancer. I' was on Doxycycline for the past three weeks, which we hoped would clear up the problems that I've been having in that area, but there's been no improvement. This rules out Prostatitis, so that only leaves Prostate Cancer. Oddly enough, I discovered that Lymphedema can be caused by Prostate Cancer and I'm almost certain that my swelling is Lymphedema, rather than regular fluid edema. My reason for thinking this, is that my swelling is only on one side of my body. However, most of the info that I've seen on Lymphedema, shows either leg or arm involvement. My swelling is on the entire right side of my body. Oh, and also, I found out that I've had Cushing's Disease for a long time (the first signs that I can recall were back in 1994, when I first began getting striae under my arm), although I've probably had Cushing's most of my life.To add insult to injury (pardon the semi-pun), I just discovered a new tumor adjacent to where the last tumor was, which means that I'm going to have to go in for surgery ASAP. In 1997, I was diagnosed with Stage III DFSP (Dermatofibrosarcoma Protuberans), a rare malignant soft-tissue cancer. Two surgeries later, I was rid of the first tumor. Another tumor was found on my left shin, but it has remained dormant. This new tumor is rapidly increasing in size, so time is definitely a factor. My main concern is not with the cancer, since this type rarely metastizes, but rather the surgery itself; the Doctors have advised me in recent past to avoid surgery because of my current health status.I am really desperate to get a diagnosis for my swelling, pain etc. Once I know what I'm facing, I can try to do something about it. And, maybe my surgery won't be as much of a risk. I definitely think that I'm dealing with several illnesses, one of which sounds identical to what you describe.We should keep in touch with each other, as we discover new information. I have an appointment with an endicronologist on the 17th, so I should have so more info at that time. You should consider seeing an endo as well. I really don't think ENT can help you with your problem. They're more trained to handle throat infections, tonsillitis, ear aches, nasal polyps etc.Joe
    NoDrCanDiagnoseMe 20 Replies
    • December 6, 2008
    • 02:11 AM
    • 0
    Flag this Response
  • Hi, I have the same symptoms (and then some), except that I have had abcessed teeth, which were removed about six months ago. One of the abcessed teeth was intermittently draining through a hole in the gum, but the others weren't draining. At first, I was diagnosed with Trigeminal Neuralgia (due to the severe headaches). I had wondered if my teeth might have been the cause, so I attempted to have some extractions,etc. The inflammation wouldn't allow the anesthetic to work, so I was temporarily out of luck. Around that same time, I made the discovery that the Prednisone I was being given (for "Chronic Sinusitis"), was keeping the "Trigeminal Neuralgia" under control. So, I was prescribed a regimen of Keflex and Prednisone (20mg per day). After two years, I had gained well over a hundred pounds and was suffering from severe edema and difficulty breathing (among MANY other symptoms). I finally got the nerve to try having my teeth worked on again. I still had a great deal of inflammation, but I managed (barely) to sit through several visits, while having some teeth extracted (including the abscessed teeth). Since I had just had the abscesses taken care of, I talked to my doctor and received permission to begin tapering off of the Prednisone (over the next two weeks). A few days after I began tapering, my legs and feet swelled to several times their original size and I was having a LOT of trouble breathing (I'm not certain whether the cause was the tapering or the recent tooth extractions). I still had a lot more dental work to be done (due to severe dry mouth, which I have had for MANY years), but that would have to wait. I was hospitalized for five days and then discharged without a diagnosis. About a month later, I went in for more extractions. The dentist was having way too much trouble with them, so I was referred to an oral surgeon, who removed all but two of my remaining teeth. That was over a year ago and I'm still running a fever (the fever has been constant for over two years) and I feel inflammation inside my face (under the eyes and back to my ears). My face and ears get hot and I hear fluttering noises in my ears (it actually sounds AND feels like an insect is buzzing around in my ears). Also, my Tonsils are always swollen and full of the "wet bread" substance. My ears itch all the time (deep inside) and sometimes, my ears hurt (as though I have an ear infection). I have practically all the symptoms of Panhypopituitarism (or possibly a Pituitary Tumor). In additional to the aforementioned symptoms, I am also experiencing the following:Difficulty Urinating, Insulin Resistance, Borderline Diabetic (5.5% Hgb A1c), Low FSH, Low LH, Low DHEA, Low Testosterone, Low Cortisol, Low-Normal Thyroid, Night Sweats, Hot Flashes (Male), Gynecomastia, Migraine, Visual Disturbance, Ringing in the Ears, Increased Sense of Smell, Increased Thirst, Dry Mouth, Fatigue, Dehydration, Tremors (mainly in the arms and fingers), Hypertension, Paresthesias, Peripheral Neuropathy (Pins & Needles and Cutting, Burning and Water Sensations), Balance problems, Muscle Weakness, Muscle Stiffness, Numbness and Tingling of the Extremities, Loss of Body Hair, Nausea, Swelling of the Abdomen, Fluid Retention, Enlarged Liver, Fatty Liver, Excessive Gas, Abdominal Pains, Back Pain, Sudden Cholesterol Problems, Itching (especially the legs), Gallbladder Sludge, Varicose Veins, Personality Changes, Startle Easily, Stasis Dermatitis, Dark Urine, Cloudy Urine, Foamy Urine, Frequent Urination, Burning During Urination, Lack of Libido, Chronic Diarrhea, Red Hands, Difficulty Sleeping, Horrible Nightmares, Dry/Scratchy/Itchy Eyes, Coldness and Tingling in the Upper-Left Thigh, Striae in Armpits, Striae on Stomach, Glossitis and Brittle Nails. One of the stranger things I've noticed is that the Right-Side of my Body is much larger than the Left-Side. At first, I attributed this to the fact that I lay on my right side only (I'm unable to sleep on my left side, due to the pain and extreme discomfort), but I really don't feel like that is the reason. Also, when I'm doing anything remotely active, I smell an "Ammonia" odor. More odd than that, when scratching the inside of my right knee, I feel a tickling feeling in the left side of my neck, a lot like the feeling you get in your stomach when you go really fast down a hill, in your car . . . except that the feeling is in your neck) Other illnesses I have, include: Narcolepsy w/ Sleep Paralysis and Hypnogogia (I've had Narcolepsy as far back as I can recall - around age five or six), Fibromyalgia, Chronic Fatigue Immunodeficiency Syndrome, Multiple Chemical Sensitivity, Venous Insufficiency, Hypogonadism, Obstructive Sleep Apnea, Dermatofibrosarcoma Protuberans (although, after a recent discovery online, I would venture to say that it was actually a Bednar's Tumor, which is akin to DFSP - I'll be asking the Dr. on my next visit, to see if he concurs) and Eczema (among others). Also, I've lost several inches from my height (over an undetermined period of time). And, some of my most recent bone density tests show low-normal bone density. My blood tests are always out of whack:RBC, HGB, HCT, PLT, MCH, MCHC, %EOS, MPV, Cortisol, FSH, LH, Sed Rate, Testosterone (Free), Testosterone (Free, Percent), Testosterone (Total), DHEA, TSH, Triiodothyronine(Free, Serum), BUN, Chloride, CO2, Creatinine, Glucose, Insulin, Total Protein, AST, ALT, Alk Phos, Anion Gap, Globulin, A/G Ratio, Bun/Creat Ratio, Triglyceride, HDL, CHD Ratio, HDLD, LDL, LDL/HDL, HDL Risk, Complement TOT and Complement C4 Family HistoryMother - Cancer Mother - Hepatitis CMother - Mitral Valve ProlapseMother - ScoliosisMother - Hx of Congestive Heart FailureMother - Hiatal HerniaMother - HypothyroidismMother - General Anxiety DisorderMother - COPD (Emphysema and Chronic Bronchitis)Mother - Peripheral NeuropathyMother - Pernicious AnemiaMother - Interstitial CystitisMother - FibromyalgiaMother - Kidney Stones (Past and Current)Mother - Hx of Chronic UTI'sMother - Currently being worked up for Drooping Eyelid, Weak Neck, Loss of Smell, Memory Loss, Confusion etc.Father (Deceased) - Hepatitis C, Cirrhosis of the Liver, DepressionGrandmother, Maternal (Deceased) - Died of Cancer (Undetermined Origin - included breast cancer among others)], General Anxiety DisorderGrandfather, Maternal (Deceased) - Died of Cancer (Bladder, Kidney and Prostate), was Borderline DiabeticBrother - Mitral Valve ProlapseBrother - Dermatological Problems, including an infection (similar to a boil, but much deeper), which had to be surgically removed; also, severe acneSister - Hypothyroidism, Bi-Polar DisorderGreat Grandmother, Maternal (Deceased) - Alzheimer's DiseaseGreat Grandfather, Maternal (Deceased) - Heart AttackGreat Aunt, Maternal - Cancer (Breast), Parkinson's DiseaseNiece - Hypothyroidism, General Anxiety Disorder, Asthma (no longer a problem) My gut feeling says that my Pituitary Gland is somehow affected by the abscesses that I had. With the fever, the elevated Platelet count, the elevated Sed Rate and the feelings of pressure and heat in my face and ears, all signs seem to point to infection (with the exception of a normal white count). I am living a miserable existence and I'm unable to get the level of care that I need, due to my rural surroundings. I am fortunate, however, to have a Primary Care Physician who is open-minded and willing to give me any reasonable referral or test that I request. So, any ideas will be greatly appreciated. Thank you, in advance, for any consideration and certainly thank you for your time. Sincerely,Joe (NoDrCanDiagnoseMe) Hi, First off I want to say is that I hate to hear about your numerous health problems, I know how furstrating it is. I'm new to the Wrongdiagnosis.com, I'm I spend endless hours on the internet to find help for my daughter, she has alot of the same things going on with her that your mother has. Hodgkins (1986), Interstitial Cystits, Kidney Stones, Fibromyalgia, memory loss, confussion, etc... Is your mother a member? I would really like to talk to her, if at all possible. my e-mail is browncabinrenta@aol.com Thank you, and good luck with a diagnose.mydaughterhelp
    mydaughterhelp 2 Replies
    • February 14, 2009
    • 03:30 PM
    • 0
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  • Hi, First off I want to say is that I hate to hear about your numerous health problems, I know how furstrating it is. I'm new to the Wrongdiagnosis.com, I'm I spend endless hours on the internet to find help for my daughter, she has alot of the same things going on with her that your mother has. Hodgkins (1986), Interstitial Cystits, Kidney Stones, Fibromyalgia, memory loss, confussion, etc... Is your mother a member? I would really like to talk to her, if at all possible. my e-mail is browncabinrenta@aol.com Thank you, and good luck with a diagnose.mydaughterhelpHi mydaughterhelp, I'm Carol, aka katwoman (Joe's Mom). I had Hodgkin's in 1980. I was 26 and pregnant with my daughter when I found a lump on my leg and some on my neck too. I figured that it had something to do with my pregnancy and went to my doctor to see what it was. I was sent to an Internal Medicine doctor, who found that it was Cancer. I didn't even know what Cancer was back then. Suddenly, my pregnancy turned from a normal one to a 'high risk' one. I needed treatment right away but I was in my 7th month. The doctors said that it was best to take the baby by C-section (my previous pregnancy was C-section too) because I needed to get started on radiation.So, I picked a date in between my birthday (Jan.25) and my Dads (Feb.2) and scheduled the surgery for the 31st of Jan. I would also be having exploratory surgery, a liver biopsy, a Splenectomy, and a Tubal Ligation. (In my 7th month, I also had emergency surgery for a large kidney stone). My baby and I almost died when I had blood poisoning while in the hospital.On Feb.14th, 1980, I began 9 weeks of radiation. I was in remission for 5 yrs. when I found another lump in my neck. The Cancer had returned and I went through Chemotherapy. My treatment was supposed to be about once every 2 weeks but that was often interrupted when my white count was too low. I was very weak and had lost a lot of weight. My treatment was called MOPP, which was a combination of 4 drugs. I didn't want to go through with it because the treatments would make me so sick, but I stuck it out. My mother was going through Cancer at the same time, but hers was too far to have treatment. I recall one day when I was being a big baby about having to get treatment, when she reminded me that she couldn't even have it. So I tucked my tail between my legs and went in for the treatment. (My mother passed away in August, 1985).It's been 24 yrs. now and I feel so lucky to still be here. I have COPD and have to use Oxygen 24 hrs a day. I also have Hepatitis C. I wasn't able to take Interferon because of my Anxiety, but I have been lucky, so far, that, well, lets just leave it at that and knock on wood.I have Interstitial Cystitis, problems with eating and swallowing because of radiation to my Esophagus., Peripheral Neurapathy (in my feet and legs), short term memory loss, fatigue, depression & anxiety, Fibromyalgia, neck problems. I have lost down to about 110 lbs. I stopped weighing myself @ 115 but I know that I've lost more. The bones in my back pertrude and so do the ones around my neck, chest and shoulders. (See Joes list for then rest of my illnesses).I apologize for rambling on. Write back if you want and let me know more about your daughter. How old is she and has she had any relapses? Did she have radiation treatment? How long? Most of my problems stem from all the treatment I had. The Drs & Radiologists told me that I would have Emphysema (COPD) in 10 to 15 yrs. and I did.Have a nice day.:)Carol - katwoman
    katwoman 29 Replies
    • February 27, 2009
    • 10:18 PM
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