Discussions By Condition: Blood conditions

Low Platelets, Low white blood count

Posted In: Blood conditions 29 Replies
  • Posted By: Anonymous
  • December 3, 2006
  • 07:37 AM

My sister has been diagnosed through a blood test that she has both symptoms. Suffers from chronic fatigue, and terrible spine pain. Her doctor is an idiot and so I'm asking if anyone is familiar with these symptoms. (I think it sounds like lupus).

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29 Replies:

  • hi can you tell me what platelets is?? i have heard of it but dont no what it is- im just wondering weather i have something similar because i am a severe anemic and my iron level was 4 and my hemoglobin was border line 10.4 ( im on 600mg of iron tablets) but i have a tender spine, between my shoulder blades right at the side of my spine feels bruised inside and the docs dont no what it is, so i was just wondering with you saying she has spine trouble could it be related??? thanks xx
    howarth1329 4 Replies
    • December 13, 2006
    • 05:17 PM
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  • Thanks for responding. Platelets are in the blood, and provide the ability to form clots. They're kind of sticky and cluster together and prevent severe bleeding. Outside of that, they cluster together and are the basis for bruises.Normally, I've heard of either low platelets or low white count-I've not heard of someone with both symptoms. That's why I posted.
    Anonymous 42789 Replies
    • December 15, 2006
    • 01:12 AM
    • 0
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  • Low platelets could be a sign of ITP. A friend has this condition, that's why I know....
    Anonymous 42789 Replies
    • January 4, 2007
    • 09:48 PM
    • 0
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  • yMy sister has been diagnosed through a blood test that she has both symptoms. Suffers from chronic fatigue, and terrible spine pain. Her doctor is an idiot and so I'm asking if anyone is familiar with these symptoms. (I think it sounds like lupus).I have both these symptoms and have been diagnosed with CVID (common variable immuno deficiency) low white blood cell count and also thrombocytopenia Low platelets i receive weekly infusions of white blood cells and have just received rituximab (mabthera) succesfully treating the platelet count problem you need to see an immunologist to get a diagnosis
    Anonymous 42789 Replies
    • January 29, 2007
    • 10:45 PM
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  • Regarding the low platelets and low WBC's it could be ITP(idiopatic thrombocytopenia). The other symptoms I am not sure if they fall with ITP. ITP can be caused by a problem with the spleen-sometimes the spleen actually attacks itself and fights off your own supply.I have heard of cases where a spleenectomy have solved the problem but this is a very risky surgery with fatal consequences that can happen.May be a good idea to have the spleen examined. If the platelets are so low they can transfuse immunglobulins.
    chungie 1 Replies
    • January 29, 2007
    • 10:56 PM
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  • Not to scare you but have they tested your sister for cancer. I have several family members with cancer and the white cells, platets go all over the place. My father's has terminal cancer and his platelets have dropped right down to 4. Does she have problems with here HGB counts (hemoglobin)Good luck and all the best
    Anonymous 42789 Replies
    • February 8, 2007
    • 04:08 PM
    • 0
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  • I have chronic ITP where my platelets to to zero at any given time. Like every two years. I had the bone marrow tests done, no cancer. And I was treated with rituxan a infusion that snaps my platelets back in place over 5 - 6 weeks. if you want to talk, my email is malkow@tds.net. I have alot of resources. good luck
    Anonymous 42789 Replies
    • February 28, 2007
    • 07:16 PM
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  • Hi all i posted before and said that i had both conditions CVID (common Variable immunodeficiency) and idiopathic thrombocytic purpura (low platelet count ) and belong to a society called the PIA primary immunodeficiency Association, they have a discussions forum on their web site and i asked if any one else had the same combination of CVID and ITP, people post from all over the world and several people posted to say they had the same combination. My heamatologist and immunologist have not treated anyone else with this combination but it seems ime not alone although it is very rare but they appear to be linked, if any one would like to know about immunodeficiency they could log on to the PIA website there is a list of signs and symptoms to look out for.:) h
    Diane Sistern 29 Replies
    • February 28, 2007
    • 08:04 PM
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  • Thank you all for getting back to me. She lives away from me and I will have to call her and talk to her about all you've shared with me. I appreciate all of you!
    Anonymous 42789 Replies Flag this Response
  • My 10 year old son was just released from hospital last week, his platelets dropped to a 5, he was given 2 rounds of IVIg which boasted him back up to 126. During his clinic yesterday, it was found his platelets have slightly dropped again (96) and his white blood cells are also down. All he does is sleep, about 18 - 20 hours a day, and while he is awake he is so tired, he couldn't even walk from the elevator to the clinic yesterday without resting 2x. I would love any information on what test he should have done, what to look out for, and why this maybe happening. He also has VCFS (velocardiofacial syndrome ) Has anyone every been through this? Please email me. crystal.kolomas@sympatico.ca
    Anonymous 42789 Replies Flag this Response
  • yI have both these symptoms and have been diagnosed with CVID (common variable immuno deficiency) low white blood cell count and also thrombocytopenia Low platelets i receive weekly infusions of white blood cells and have just received rituximab (mabthera) succesfully treating the platelet count problem you need to see an immunologist to get a diagnosisHi, do you feel better now that you are receiving treatment for the CVID?
    Anonymous 42789 Replies Flag this Response
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  • hi can you tell me what platelets is?? i have heard of it but dont no what it is- im just wondering weather i have something similar because i am a severe anemic and my iron level was 4 and my hemoglobin was border line 10.4 ( im on 600mg of iron tablets) but i have a tender spine, between my shoulder blades right at the side of my spine feels bruised inside and the docs dont no what it is, so i was just wondering with you saying she has spine trouble could it be related??? thanks xx Hi platletes are the smallest cell like structures cirulating in the blood ...which are produced by liver .....if the platelet level is low it can cause blood clotting and blood does not stop for a long time when a person gets cut or wound....which is called GT or galnzmann Throbasthenia.
    Anonymous 42789 Replies Flag this Response
  • My brother has a low platelet count and he often gets sick, bronchitis, pneumonia, chicken pox (x2), shingles. She seems in pretty good health except for her yearly pneumonia or bronchitis. She was adopted as a child and is now 22 years old and not sexually active. Recently a blood test came back saying she was hiv+. Is it possible that hiv can appear after 22 years? could this be cvid? Thanks
    carneirt 3 Replies Flag this Response
  • Greetings all. I hope everyone is doing fine. :) My wife has had Hemolytic Anemia for years now and her Doctor (a hematologist) doesn't know what exactly is causing it or how she even got it. One day she started getting real pale, her eyes were yellow, her gums had no color and she was trembling cause she said she was feeling cold (at the hospital) so I put a blanket on her and the nurse got mad and said she had a fever. So I'm freakin out not knowing what to do or what was going on, or why she all of a sudden got like this. So they had to do a blood transfusion on her and went through 'em every two or three months whenever she started getting pale and everything else. So after a while the doctors said she had (still has) Hemolytic Anemia. It started off with a low red blood cell count so they gave her Prednisone. It appeared to be helping but as she was taking it her body started to swell up really bad (she was taking to much) so they gave her less. So it's been like a balancing act with the damm Prednisone. So one day the doctor thought it could be her spleen which was preventing her red blood cells to be formed or the spleen was destroying them or something like that. So she had surgery and they took her spleen out. A few weeks later still the same thing, removing the spleen didn't do anything. So she's back with the Prednisone trying to balance her intake of it for the next year or year and a half after wich they said "well let's take some fluid out of her bone marrow from the back of her spine". ***********t! another surgery? I thought. I been feeling ever since a little uneasy skeptical about the doctors REAL care for her. Thinking in my mind... "Jeez these guys must be making a fortune out of the welfare of my wife treating her like a test subject for their experiments" Four years later she's been through the following medication: Prednisone,Deltasone,Folic Acid, Hydroxyzine, she's been thru a couple a sessions with Retuxin therapy wich helped somewhat. Now a few months a go she got the Shingles along with a never ending allergies. So they gave her some cream and medication for that. I'm just so frustrated a the doctors why they can't seem to make her well I feel it's just been like a guessing game. ...I'm deeply saddened cause I don't know what to do. This is the way it's been from what I can remember, maybe it would have been a good idea to keep a journal of all the things she's been through. I feel I haven't been a good husband to her or taken care of her enough. I've turn to the Lord in prayer hoping He will answer my plead and make her well again and everybody that reads this. Blessings to all and take care.
    Anonymous 42789 Replies Flag this Response
  • Hi all My quality of life has improved greatly and i honestly dont think i would be here if it wasnt for receiving immunoglobulins for the cvid as combined with low platelets (Thrombocytopenia) it was a lethal combination but i receive two weekly transfusions of immunoglobulins now and although still prone to infection i am much better on them and thanks to rituximab that treated my platelets no more bruises for a while. Diane
    Diane Sistern 29 Replies Flag this Response
  • CarneirtIt definatly sounds like your sister has all the symptoms of cvid but blood tests need to be specific to test for this if always worth checking, Hope your sister gets all the help and treatment she needs. Diane
    Diane Sistern 29 Replies Flag this Response
  • I have chronic ITP where my platelets to to zero at any given time. Like every two years. I had the bone marrow tests done, no cancer. And I was treated with rituxan a infusion that snaps my platelets back in place over 5 - 6 weeks. if you want to talk, my email is malkow@tds.net. I have alot of resources. good luckDid the bone marrow test hurt? My white blood cells are going up and down and may have to have it, but don't want to. Scared to death.Thankssuzy
    Anonymous 42789 Replies Flag this Response
  • There are 140 medications that can also cause you white cell count to drop. I'm not a docter but you might want to check you meds.
    Anonymous 42789 Replies Flag this Response
  • Did the bone marrow test hurt? My white blood cells are going up and down and may have to have it, but don't want to. Scared to death.ThankssuzyHi suzy ,there is some slight pain after but nothing too worry about , procedure involves numbing the area, top of the thigh, then taking a small sample of the bone marrow through the skin ;whole procedure takes about ten minets, take care dont worrry . jjp
    Anonymous 42789 Replies
    • October 13, 2007
    • 06:36 AM
    • 0
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  • Did the bone marrow test hurt? My white blood cells are going up and down and may have to have it, but don't want to. Scared to death.ThankssuzyHi suzy, i sent a reply the other day but it did not get through, .we will try again,Bone marrow test hurt only slightly. procedure involves numbing the top of the thigh then taking a small (very small) sample of the bone marrow.One is given a small injection in the thigh beforehand. nothing too concern your self about,the whole thing takes about Ten minits. take care.jjp
    Anonymous 42789 Replies
    • October 17, 2007
    • 06:33 AM
    • 0
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