I'm trying to find out as much as I can about this treatment so if anyone gets this please provide me with some personal information. It's easy to look it up on the internet, but I am scheduled to see my doctor at Johns Hopkins in Maryland on October 10th to discussed my options. IVIG tx will be one of them.
My illness is like a new, never, seen before pot of soup that doctors are still trying to figure what tp do with & the perfect name for. Unfortuately, this autoimmune syndrome is moving faster through my body then there's time to do that.
But since I can stil see, hear & walk all is good right now -:) Any information will be greatly appreciated.
And yes I see a hematologist every 2 months. Just saw him a few days ago because i have 3 blood clots in my left arm. During the seizure hospital stay the many IV's in my left arm damaged it for life so it will continue to have clots & knots.:mad:
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