Discussions By Condition: Bladder conditions

Help ! Undiagnosed bladder pain for 3 years , atm21 . Several procedures and not a lot of answers !

Posted In: Bladder conditions 0 Replies
  • Posted By: Anonymous
  • June 22, 2014
  • 04:02 AM

I have struggled with this chronic pain for just over 3 years. I experience a sudden with no warning signs a terrible crippling pain in my bladder I have to bend over often gasp with pain and can't move or it's worse and I feel my bladder will just give if I try it then goes away after 10sec up to a minute "spasms" id explain them . If I then do not go to the bathroom it will happen again sometimes few mins later or sometimes even half a hour if I'm lucky! Although sometimes after a crippling spasm The pain does not pass and becomes a urgent must go right now which is when I must run bent over in pain sometimes leak to get to a bathroom. When I do urinate I do not experience any pain . As bathrooms are not everywhere this makes life ***l and embarrassing suddenly crouching In pain in public ! Not just when I have a full bladder can be random amounts . Have had ultra sound , cystoscope As thought possible cystitis they found no cystitis . Found - severe trabeceulation bladder which he said was unusual as normally found in males with prostate cancer?? And some other reasons why it was unexplained I have it :(. squamous m...(can not read specialist writing sorry ) which they said was a minor thing they got rid of . Also had a urodynamic investigation which had again unusual results as I had to arrive with a full bladder which was extremely painful then after emptying my bladder they filled it with water and I had no discomfort pain or urgency ! I have tried over the years a number of medications which were given in hope to relax the muscles or somethig and ease the pain, none have worked at all!!! My specialist pretty much says his last resort is bladder Botox . So I just have to live with this ? I don't understand ...... He says he's only seen one other older lady with my situation ! Has anyone else seen or got this ?? Why do I have it :( Is ther no way to get rid of it?? I don't want to have to get Botox :( photo of my cystoscopy

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