Discussions By Condition: Back conditions

Your thoughts on my symptoms,PLEASE HELP!!!

Posted In: Back conditions 7 Replies
  • Posted By: silvercrush
  • April 11, 2009
  • 04:00 AM

Hello,:(

I am wanting to describe my symptoms and wanted to get feedback on what you all think. Hopefully someone has had the same problem so I know what may be wrong with me. Almost 6 years ago I developed a pain right above my bra strap, between T1 and T4(thoractic spine), the pain is on my spine, not my muscles or anything, actually on the spine itself and on the side of the spine bone itself, about 2 inches long. The pain is sooooooooo unbearable now and has gotten much much worse since I first felt it. The pain is so bad now that it radiates through to my chest. I had an x-ray and MRI without contrast done and they cannot find anything. I started seeing a pain management dr and he put me on nerve medicines, muscle relaxers, imflammitory meds plus pain meds. The pain medicine is the only thing that helps me at least get through my day even though it doesn't totally get rid of all the pain, it just makes it bearable enough. The pain feels like a burning,stabbing and throbbing pain. It hurts all day long and it doesn't matter if I have done activies or not. It doesn't matter how I lay, sit or stand, it hurts in all positions. I feel really shaky, weak in my legs that it is difficult to walk, weak in my arms,nauseated and twitchy in the morning. From 1-10 my pain is always a 10, it makes me cry. The spot can't be touched or massaged or I will cry. I have tried yoga, ti chi and light excersise, it's too painful to endure. It is ruining my life, I can't even go upstairs or pick my children up without the excrusiating(sp?) killing me. The pain dr gave me therapy shots and they didn't work at all, not one bit. So my pain dr ended up discharging me without further test which makes me very very upset. Something is wrong with me, VERY wrong and they gave up. I am a total wreck because I can't live with it. I have had 3 tumors in my life so I am I notorious to get tumors, I am so worried!!! I have a pea size hard lump in my lower spine and I don't know how that would make my upper spine T1-T4 be in sever pain when I don't have pain where that mass is, or maybe it can? I also have had one wet accident that came from nowhere. I don't know where that came from. My body feels weak and I just can't live like this. My spine pain is out of control!! It feels like a knife in my back 24-7!! Literally! I can't stand it one bit! I hope someone can help me with this. Maybe someone has had the same problems. I have to find a new pain management dr because if I don't have any pain meds, I will be in pain ***l, but I need a resolution to fix my back. Thank you for reading and really really hope you guys can help. I have felt alone for so long and thought this would be the place I would find others like me. I live in Forney, Texas, 5 minutes away from Dallas county. Please please please post your advice, experiences that are similar or anything you can help me with, I dont want to feel alone anymore:(:(:(


~Robin N.

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7 Replies:

  • Hello,:(I am wanting to describe my symptoms and wanted to get feedback on what you all think. Hopefully someone has had the same problem so I know what may be wrong with me. Almost 6 years ago I developed a pain right above my bra strap, between T1 and T4(thoractic spine), the pain is on my spine, not my muscles or anything, actually on the spine itself and on the side of the spine bone itself, about 2 inches long. The pain is sooooooooo unbearable now and has gotten much much worse since I first felt it. The pain is so bad now that it radiates through to my chest. I had an x-ray and MRI without contrast done and they cannot find anything. I started seeing a pain management dr and he put me on nerve medicines, muscle relaxers, imflammitory meds plus pain meds. The pain medicine is the only thing that helps me at least get through my day even though it doesn't totally get rid of all the pain, it just makes it bearable enough. The pain feels like a burning,stabbing and throbbing pain. It hurts all day long and it doesn't matter if I have done activies or not. It doesn't matter how I lay, sit or stand, it hurts in all positions. I feel really shaky, weak in my legs that it is difficult to walk, weak in my arms,nauseated and twitchy in the morning. From 1-10 my pain is always a 10, it makes me cry. The spot can't be touched or massaged or I will cry. I have tried yoga, ti chi and light excersise, it's too painful to endure. It is ruining my life, I can't even go upstairs or pick my children up without the excrusiating(sp?) killing me. The pain dr gave me therapy shots and they didn't work at all, not one bit. So my pain dr ended up discharging me without further test which makes me very very upset. Something is wrong with me, VERY wrong and they gave up. I am a total wreck because I can't live with it. I have had 3 tumors in my life so I am I notorious to get tumors, I am so worried!!! I have a pea size hard lump in my lower spine and I don't know how that would make my upper spine T1-T4 be in sever pain when I don't have pain where that mass is, or maybe it can? I also have had one wet accident that came from nowhere. I don't know where that came from. My body feels weak and I just can't live like this. My spine pain is out of control!! It feels like a knife in my back 24-7!! Literally! I can't stand it one bit! I hope someone can help me with this. Maybe someone has had the same problems. I have to find a new pain management dr because if I don't have any pain meds, I will be in pain ***l, but I need a resolution to fix my back. Thank you for reading and really really hope you guys can help. I have felt alone for so long and thought this would be the place I would find others like me. I live in Forney, Texas, 5 minutes away from Dallas county. Please please please post your advice, experiences that are similar or anything you can help me with, I dont want to feel alone anymore:(:(:(~Robin N.Hi Robin,What you're enduring sounds just terrible! I can see where it would make you feel alone and pretty browbeaten.Some questions...- You said that you were on pain medication...what particular medication and are you still taking it? Have you ever sustained an injury to your back? How old were you when your current symptoms first appeared? Did any symptoms appear just after the birth of a child?- Your past history includes three "tumors". Can you give details on the location(s), type of tumor(s), and treatments that you received for them? Do you have a family history of tumors of this type?- You've had one "wet accident that came from nowhere." I'm guessing that you're referring to urinary incontinence? Was it jut a little bit or a large amount of urine? What type of activity were you involved in when this occurred? Have you experienced any "pins and needles", tingling, or loss of sensation in your legs?Best regards,John
    JonMac 165 Replies Flag this Response
  • I have had this pain since I was 22 and I am now 27. I really dont think it has anything to do with my birth. The birth was perfect with no complications. It just happen to come on all of a sudden 2-3 weeks after my son was born. I havent had any injuries at all. I had on tumor in my cheek when I was in 3rd grade and ended up getting it removed, I dont know what kind it was but I know it was benign. I also had a tumor in my breast that was validated by a mammo and sono. I was suppose to get a biopsy but my insurance was gone. Since then I tried to get another mammo and they wont do it because of my age(go figure). I currently have a pea sized tumor in my lower back on top of the spine bone but doesn't seem attached to the bone itself. I noticed it when I was 19 but have never had it checked out because it never hurt or grew in size. Maybe that is a mistake on my part. I take hydrocodon every 6-8 hours. The pain has been getting so bad that it can only take a little edge off, but trust me its something. The spine pain has been getting worse and worse. It is nothing like it was when I first felt it. I feel sharp stabbing pains occasionally in my shoulder blades which started happening in the last 2 months. I feel weak in my legs with a little tingling, it is sometimes hard to walk. I feel very weak and almost disabled to do things around the house or even go places. There was one time during this year that I awoke and got out of bed and fell to the floor, my legs were numb yet tingly and needle feeling, if that makes since. I couldnt walk until the next day during the afternoon. Since my psin getting even worse within the last 2 months, I have been running temp between 99.3-100F all through everyday and night. I am the only one that I know of being notorious for tumors. The one accident I had was out of the blue when I was walking across the room at my house, I wasnt doing anything other than walking. It didnt even give me a warning. It was an unexpected large amount, it was the only time. It does take me a long time to pee in the morning, like my bladder is SUPER full it hurts. It takes 2-3 trips to release all of it, it still hurts after i do because my bladder had been so full. :(
    silvercrush 3 Replies Flag this Response
  • Your symptoms really sound like they are of neurological origin. It seems very possible that the strain of pregnancy or of the birthing process could have had something to do with all of this.Was the doctor you saw a neurologist? If you are not getting answers, I would gather up all of your records and get a second opinion from another doctor. Whoever you are seeing is making it sound like it's all in your head and has given up. :mad:
    Beth56 272 Replies Flag this Response
  • I felt fine after my pregnancy, it was a bad birth at all. The way I found it was when my husband was giving me a massage. I nearly jumped out of my skin when he touched that spot. Every year is gets more painful. It odd that the pain only covers 2 inches of my thoracic spine and it's my spine that hurts not muscle or tendons. It's the bone itself. I am thinking a neurolagist would be best to determine. I wonder if anyone has had the same experience. There was another last that had the same pain after her child was born, it ended up being a spinal tumor. That is what I am afraid of it being since I do have a tumor on my lower spine that you can feel. I know tumor can spread. I am just scared and feel alone sometimes. I think your right with the doctors, I think they think it's in my head because they can't figure out what it is. They are aweful for not running test and giving up on someone that has had to live with this pain for almost 6 years. I don't think they care truly about people. They have been rude to me and my husband for no reason, it's the way they communicate with their paients. My mom didn't even want me to go see them anymore because they were very unprofessional. I barely saw the doctor I had appointments with, I ended up seeing a very very rude doctor assistant. I am so upset with them. I need a doctor that cares and does the test that are needed to find whats wrong. Something is totally wrong, my body is telling me this all through everyday. :(
    silvercrush 3 Replies Flag this Response
  • Anyone else๎˜๎๎‘
    silvercrush 3 Replies Flag this Response
  • Do you have insurance now? If so you should see a spine specialist, either a physiatrist or an orthopedic spine surgeon and see if they will order a bone scan, you can see if you have any type of fracture, tumor or infection with a bone scan, some of which won't show up on an MRI without contrast. If you don't have insurance you need to start calling around to hospitals and asking if they offer any type of charity care, explain your situation, inculding your finances and see if they are willing to help you, make sure the hospital has a spine surgeon on staff there before you call the financial aid department too. Have you had any blood tests done? Specifically C reactive protein, sed rate and CBC?
    SpineGirl 64 Replies Flag this Response
  • I am currently going through the same thing but with my C6 and the doctors seem to know nothing . I am about to try LSU they have great doctors and they also help without insurance. It would be a couple hour drice for you but would be well worth looking into LSUMC in shreveport,la.
    Anonymous 42789 Replies Flag this Response
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