Discussions By Condition: Back conditions

Undiscovered cause for 'abnormal' scoliosis?

Posted In: Back conditions 0 Replies
  • Posted By: Anonymous
  • August 16, 2014
  • 08:46 PM

A year ago I was diagnosed with idiopathic adolescent moderate scoliosis. I had a minor 20ish degree curve in my upper spine and a 30ish degree curve in my upper lumbar spine.
I was scheduled to come back for check up x rays in 6 months, because the doctor said I was done growing (I was 15) and it was no cause for concern, even though I presented with mild pain.
At my checkup, I presented extreme pain, and a trunk shift of 4-5inches. I underwent an X-ray and Instead of having a typical 'S' curve I have a 'C' curve, which bent at the exact location my pain was coming from. I had an MRI, CT scan and Bone scan for 'abnormal scoliosis' and a possible osteoid osteoma , which i have all the symptoms for. After the scans all came back 'normal' (that's what the radiologist said, and the doctor didn't even look at my bone scan results) my doctor said to quit and do physio instead. My and my family don't really trust this doctor.
I'm now on pain killers, physio, and I use a tens machine, and all that still doesn't help on bad days. I just moved and am supposed to be hearing off my new specialist soon (it's been a few weeks already).
I'm going to show him all my notes, pictures, and tell him all my symptoms. Before I moved my old doctor said that if I still had pain in six months time (next month) then he'd remove the supposed tumour and if that didn't work he'd consider another surgery. He never mentioned what it was but me and my parents think he meant the spinal fusion.
I'm completely adamant I have osteoid osteoma, even though I'm no doctor, but is there anything similar it could be? Or just normal scoliosis? And would I ever be a candidate for surgery? I doubt it because I only have a moderate curve and it's a very serious surgery, but I would highly consider doing it now, then when I'm older and can't recoded fully.

Photo is my second X-ray done five months ago (doctor didn't actually measure, just said it looks about the same)

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