Discussions By Condition: Back conditions

Misdiagnosis runs rampant in my life.

Posted In: Back conditions 0 Replies
  • Posted By: Anonymous
  • July 4, 2015
  • 04:20 AM

I'm a 32 year old mother of 1 baby girl. When I was 16 I started having digestive problems which was misdiagnosed as acid reflux. After 3 years of treatment, including a diet overhaul, various medications, and numerous doctors, they finally figured out I had to have my gall bladder removed before it burst. Nice, right? But here I am 13 years later with the same pain that comes on like being struck by lightning. Pancreatitis? Probably.
The history of my cycle was also cast aside by doctors. Never was I regular. I had my first pap at 13 because they couldn't figure out why I had my period for a month. Their solution: Birth control pills to regulate my cycle but that didn't address the underlying issue. In 2011, one doctor finally decided to listen to me and try to figure it out. Turns out I have PCOS but most doctors dismissed that idea because I don't fit the profile. By the time this diagnosis occurred I was told I wouldn't have children without medical intervention. Words simply cannot express the deep depression that followed those words. By some miracle, in 2013 I became pregnant on my own and had my beautiful daughter late that year. In the midst of my general health debacles, I was in a rather serious car wreck in 2010. I now live with upper back (yes, thoracic spine) pain, muscle and joint lock up, a c-spine reverse curve, intermittent weakness in my arms and hands, spinal stenosis, and chronic fatigue. I take no medications currently but I've been prescribed more than I can remember. I don't want to be a slave to drugs, especially now that I have a child, but I also feel that my doctors could have done so much more to help me. I've basically given up on ever living pain free. I'm grateful that I can still walk, that I can get myself out of bed because there was a time that I couldn't. I don't think I'll ever have a definitive diagnosis for my back issues nor do I believe that any one doctor cares enough to help me. I have been dealing with these issues for years and have so many more to go. I hope I can do it.

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