Discussions By Condition: Autoimmune Disease

Please help me, Doctors haven't been able to!

Posted In: Autoimmune Disease 6 Replies
  • Posted By: BigRedOutlaw
  • July 21, 2012
  • 06:41 AM

Hello, my name is Chad. I am a mechanic who owns my own shop. I must apologize for the long post firsthand (especially considering it's my first.) but I need help!!

I'm currently 6'2, 31 years old and 260 lbs. I don't appear severely overweight however due to my illness "exercise" is almost impossible.

In 2007 I was healthy, rode snowboards, enjoyed my job and built/rode motorcycles. That is until one day in early September while I was riding my chopper at approx 15 mph, I noticed some mud on my boot so I just kinda ran my foot on the pavement and I accidentally kicked a pothole and wrenched my leg backwards a little bit. Now I didn't crash or anything but my left hip did hurt somewhat for about 2 weeks then by the 3rd week is was like walking on a sword!! I went to my doctor and asked to be examined. Due to my "priority" I paid 500$ to have a MRI performed which resulted in an emergency surgery due to a fluid pocket around the joint that could have been septic.

I spent 3 weeks in the hospital and with no real answers and inconclusive tests, I was released with an "arthritis" diagnosis. Infectious diseases, Rheumatoid, Orthopedics, and Dermatology all saw me. (Dermatology because at the time I had large skin legions on my back that wouldn't heal for over 3 years that bled constantly). Some were over 10cm's big. They nailed me with everything then I was released as a "Can't fix it" case. My wife and I then went to Thailand which we had booked much earlier before all this and I has a terrible trip as you can imagine. However my skin legions actually healed up! Now they're just massive Keloid scars some of which Ive had Tattoo'ed over to hide.

By the Summer that year (so 2008) my Right Knee, Left Hip and Right Hip all became SEVERELY swelled for no real apparent reason. I had seen my Rheu-Doc several times with no real results or diagnosis or TREATMENT!. Finally mid Summer I went in to see him (in a wheel chair) and told him if I didn't get something for the pain or treatment of some kind I was going to "finish" myself off as I couldn't live with the pain anymore. My Dad was with me whom I've never really seen cry until then... I was literally going crazy from the pain!! I would sweat the bed to the point is was like flooded EVERY night, I hadn't slept for ever and then the relentless PAIN! ...

The Doctor then panicked and wrote me a script for Percocet and Humira. He labeled my Arthritis as "Anklyosing Sponditus" even though my tests came out negative for it, but I could get some kind of treatment this way. He also tried to drain my knee from the backside in toward the cap with a very large needle...That was the most painful thing I've yet to ever experience.

Since then I've had a Bi-Lateral hip replacement, my right knee is getting close to surgery time and now my right wrist is SCREWED! So much so the Surgeon has no choice but to fuse it totally. (Which I'm procrastinating as long as possible!!!) My career would be indefinitely finished at that point.

I'm now taking around 170-200mg's of Oxycodone, 4000mg's of Ibuprofen daily and one Enbrel shot weekly. (Being a drug addict isn't fun however to me it's like drinking oil. It allows me to actually move,stand and walk.) The Enbrel is VERY expensive (like 1600$ a month) however does take about 50% of the pain away.

I've been tested for so many things I've lost count. I could name a few but all inconclusive. I even was thinking fugal infection over a foot problem from 15 years ago and took Fluconizal to kill it...No avail! My Gen Pop will pretty much write a script for anything I want now as he has no clue whats wrong with me (and how could I blame him) He knows I do more research than anyone else could so if my idea of the day isn't dangerous he lets me try it.

My affected joints are always swelled up (VERY Acute) to almost twice they're sizes. My right wrist is so painful at times I nearly vomit. Being a mechanic has now come to an end totally now.

I could pbly go on and on but that's the gist of it. I really do feel there's a parasite, fungus or something has invaded my body and my body is actually killing itself trying to kill ""IT"". My wife and I cry periodically knowing I may die over this as the "doctors" don't have a clue but through my own research, leaking legions turned into acute Edema turned into Arthritis TURNS into Vascular or something else Edema and that will be all she wrote. I just thank the Lord my life insurance is fully intact! Ive also done the Naturopath thing as well as Hyperbaric chamber treatments to no avail

Thank you for taking the time to read and/or post. I came across this website just looking around and though I should give it a go!

Chad
Edmonton. Alberta. Canada :rolleyes:

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6 Replies:

  • Hi. I'm new on this site as well. I was wondering because you mentioned skin legions... Do you ever get sores in your mouth anywhere on the inside of your cheeks or tongue? Or did/do you ever get throat infections like swollen tonsils?
    Warrior 8 Replies Flag this Response
  • Have you gotten sores in your mouth at all on your tongue or the inside of your cheek? Sore throat with swollen tonsils? I'm sorry if my comment appears twice I didn't see it the first time I submitted it and I'm not sure exactly how this works yet as im new here to.
    Warrior 8 Replies Flag this Response
  • Do u ever get sores in your mouth or enlarged tonsils?
    Warrior 8 Replies Flag this Response
  • Hello, my name is Chad. I am a mechanic who owns my own shop. I must apologize for the long post firsthand (especially considering it's my first.) but I need help!!I'm currently 6'2, 31 years old and 260 lbs. I don't appear severely overweight however due to my illness "exercise" is almost impossible.In 2007 I was healthy, rode snowboards, enjoyed my job and built/rode motorcycles. That is until one day in early September while I was riding my chopper at approx 15 mph, I noticed some mud on my boot so I just kinda ran my foot on the pavement and I accidentally kicked a pothole and wrenched my leg backwards a little bit. Now I didn't crash or anything but my left hip did hurt somewhat for about 2 weeks then by the 3rd week is was like walking on a sword!! I went to my doctor and asked to be examined. Due to my "priority" I paid 500$ to have a MRI performed which resulted in an emergency surgery due to a fluid pocket around the joint that could have been septic.I spent 3 weeks in the hospital and with no real answers and inconclusive tests, I was released with an "arthritis" diagnosis. Infectious diseases, Rheumatoid, Orthopedics, and Dermatology all saw me. (Dermatology because at the time I had large skin legions on my back that wouldn't heal for over 3 years that bled constantly). Some were over 10cm's big. They nailed me with everything then I was released as a "Can't fix it" case. My wife and I then went to Thailand which we had booked much earlier before all this and I has a terrible trip as you can imagine. However my skin legions actually healed up! Now they're just massive Keloid scars some of which Ive had Tattoo'ed over to hide.By the Summer that year (so 2008) my Right Knee, Left Hip and Right Hip all became SEVERELY swelled for no real apparent reason. I had seen my Rheu-Doc several times with no real results or diagnosis or TREATMENT!. Finally mid Summer I went in to see him (in a wheel chair) and told him if I didn't get something for the pain or treatment of some kind I was going to "finish" myself off as I couldn't live with the pain anymore. My Dad was with me whom I've never really seen cry until then... I was literally going crazy from the pain!! I would sweat the bed to the point is was like flooded EVERY night, I hadn't slept for ever and then the relentless PAIN! ...The Doctor then panicked and wrote me a script for Percocet and Humira. He labeled my Arthritis as "Anklyosing Sponditus" even though my tests came out negative for it, but I could get some kind of treatment this way. He also tried to drain my knee from the backside in toward the cap with a very large needle...That was the most painful thing I've yet to ever experience.Since then I've had a Bi-Lateral hip replacement, my right knee is getting close to surgery time and now my right wrist is SCREWED! So much so the Surgeon has no choice but to fuse it totally. (Which I'm procrastinating as long as possible!!!) My career would be indefinitely finished at that point.I'm now taking around 170-200mg's of Oxycodone, 4000mg's of Ibuprofen daily and one Enbrel shot weekly. (Being a drug addict isn't fun however to me it's like drinking oil. It allows me to actually move,stand and walk.) The Enbrel is VERY expensive (like 1600$ a month) however does take about 50% of the pain away.I've been tested for so many things I've lost count. I could name a few but all inconclusive. I even was thinking fugal infection over a foot problem from 15 years ago and took Fluconizal to kill it...No avail! My Gen Pop will pretty much write a script for anything I want now as he has no clue whats wrong with me (and how could I blame him) He knows I do more research than anyone else could so if my idea of the day isn't dangerous he lets me try it.My affected joints are always swelled up (VERY Acute) to almost twice they're sizes. My right wrist is so painful at times I nearly vomit. Being a mechanic has now come to an end totally now.I could pbly go on and on but that's the gist of it. I really do feel there's a parasite, fungus or something has invaded my body and my body is actually killing itself trying to kill ""IT"". My wife and I cry periodically knowing I may die over this as the "doctors" don't have a clue but through my own research, leaking legions turned into acute Edema turned into Arthritis TURNS into Vascular or something else Edema and that will be all she wrote. I just thank the Lord my life insurance is fully intact! Ive also done the Naturopath thing as well as Hyperbaric chamber treatments to no availThank you for taking the time to read and/or post. I came across this website just looking around and though I should give it a go!ChadEdmonton. Alberta. Canada :rolleyes:Do you ever get sores in your mouth or on your tonsils?
    Warrior 8 Replies Flag this Response
  • Do you get canker sores in your mouth or sore throat with infected tonsils?
    Warrior 8 Replies Flag this Response
  • Don't get dis hearten, there are so many several other ways we have got so many advance technologies. I just wanted know have you ever have tonsil problem or not? I would suggest you to visit any good chiropractic, he may help you with your problem.
    Ammy Wats 53 Replies Flag this Response
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