I have a long story. But I'll try to keep it short. Got ill in 2000 with a fibrosis tumor near jaw. One surgery and 2 years of steriods felt better(but lost hearing). Then off steriods. But in 2003 had bad back pain. Fibrosis tumor grew ontop of my kidneys. Lost my left kidney. Had 2 surgerys and was put back on steriods(docs say i have retropertoneal fibrosis). Through the years just feeling worse and worse. Just came off of steriods in oct of 2006. Now i feel awful:( . The docs say i have a connective tissue disorderb but not sure which one. I'm 27 now and have been struggling since i was 20(a was newly married then).
Been checked for srogens, addisons, lupus all clear.
My symptoms are: weakness, dizziness, post-nasel drip, bad taste in mouth,cannot smell anything,no appettite,fatigue,weak muscle,legs feel like jello,can not sleep, feel sick when eating, bleching,muggy headed,dry cough with a gag(can't brush teeth without gagging). Just awful!!!!!! I'll take any advice please!!!!