Discussions By Condition: Autoimmune Disease

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Posted In: Autoimmune Disease 1 Replies
  • Posted By: zackman
  • August 23, 2011
  • 01:44 AM

I am a 40 year old male who has had consistent reoccuring health issues for more than 9 years now. Over the past year, these issues have left me esentially disabled, unable to work and without an income. I've been labeled as a hypochondriac, lazy, and every other kind of negative term that goes along with being a reasonably young person with chronic health issues that don't have a diagnosis. Although a couple family members are supportive, most are not.

As I recall, this started back in 2002 after a long period of being on an antibiotic for a strange case of adult acne. I don't believe this has anything to do with my symptoms but I figured it was worth mentioning. At any rate, soon after I went off (several days) I developed an aching sensation in my lower back, followed by widespread muscle twitching and pain, severe muscle fatigue, increased GI issues (I've always had those) light headedness, agitation (mainly due to severe discomfort), mild (occasional) headaches and joint pain. These symptoms basically have waxed and waned for the better part of 10 years, although I've seen periods of improvement, things have gotten a lot worse this past year.

I've always had anxiety issues and was on a high dose of Klonopin for quite some time, I am now attemping to come off that which is clearly making things worse, but not the cause of the problem. Benzo withdrawal is nasty and I went through that last summer but I believe it to be a seperate issue that simply aggravates my exsisting symptoms.

I've been tested for Lyme a couple times, couldn't tell you what test they used but one was through my GP, one was in the ER, both were negative. I have no history of tick bites and spent most of my life in an area where Lyme is not so common. My brain MRI was normal in 2006, I've asked for another one to no avail. The most recent neuro I saw said she did not believe my conditions to be indicative of a serious neurological illness like MS. Blood tests have all come back normal, including Thyroid. EMG of arms and legs was normal in 03 and normal two weeks ago. Lumbar MRI revealed Posterior disk bulge with annular tear at the L5/S1 level, but was unremarkable considering the symptoms I'm having. Heart tests (I've had them all except for invasive procedures) have been normal.

Any input, feedback or thoughts would be appreciated!


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  • i was ill with many strange symptoms for 7 years without diagnosis. I feel for you. It is very difficult. i started to think I was imagining it all!! Then i got diagnosis of one disease and then another. At least I knew I wasn't crazy. This site may help you narrow down your symptoms into a grouping that doctors can understand: http://autoimmunediseaselist.com/a-to-z.php Sometimes I think when we go in with so many symptoms the dr gets confused as we don't fit a classic disease. They always seem to want to rule out MS. They did with me a few times. Most of my tests kept coming back normal too. I changed doctors which gave a fresh perspective and only talked about my main symptoms. Was finally diagnosed from a muscle biopsy - emg showed not much.Good Luck
    freelee 3 Replies Flag this Response
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