Discussions By Condition: Autoimmune Disease

Just Diagnosed

Posted In: Autoimmune Disease 4 Replies
  • Posted By: Sydney329
  • August 2, 2008
  • 02:39 AM

Um so I was just diagnosed with Rheumatoid Arthritis and a non-specific auto-immune disease and to take drugs for the rest of my life.........Has anyone else been told they have something but there is no name for it? Just wondering. Anyway, I guess I'm a little freaked out as I'm only 27. I really want to have kids with my husband and I just can't imagine it's good to take all these drugs during pregnancy. Then I'm wondering how on earth am I going to take care of kids when I have trouble walking up a flight of stairs or cutting vegetables, putting dishes away, etc.

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  • I was diagnosed with unspecified autoimmune disease when I was in my 20's. Just recently they have changed it to Mixed Connective Tissue Disease. I didn't get why they couldn't put a name to it. I was freaked out for a while but now am much more accepting. t
    msnova74 20 Replies
    • August 15, 2008
    • 01:36 PM
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  • Most autoimmune diseases take years to diagnose and many people never have a name put on their disease. As far as pregnancy goes, you should have no problems having children. Most people with autoimmune diseases are able to have children. Take some time to let things sink in and for the doctors to get everything under control. Then bring it up with your rhumey when the time comes... Hugs... Kiera
    Anonymous 42789 Replies
    • August 15, 2008
    • 10:07 PM
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  • what are the symptoms of your non-specific auto immune disease?:confused:
    mimcorr 7 Replies
    • September 15, 2008
    • 11:52 AM
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  • I am a 39 year old female. My sistuation is a bit different, but yes, I was frustrated the same as you. In August I was diagnosed with warm AIHA and had a HBC of 4.9 (average female my age has a count of 11-17), meaning I had an autoimmune blood disorder and that there was no identifiable cause which is very frustrating when you are trying to look back to see what might have caused the disease. Anyway, after spending 3 wks in @ the UW Hospital - Madison, WI (I would highly reccomend this hospital.... my local hospital was unable to "diagnose" me which is maddening itself) and several drug treatments that did not work and many transfusions, I chose to have a splenectomy. Shortly after my surgery my HBC started to increase.... very slowly - when I was released from the hosptial I had a HBC of 5.9. It has been 4 wks since surgery and my HBC is at 10.2. I am back home with my husband and kids now. I realize my red blood count will always be on the low side, however, my shortness of breath has decreased, I no longer am fatigued when doing just the "regular" things moms and wives do.....the ringing in my ears has stopped and I can finally walk up a flight of stairs without feeling like I need to stop and rest. It is just a lifestyle change really for me and I need to be cautious of my health and diet being sure I am taking my folic acid and vitamin b-12. I feel better than I have in a long time and I am sure you will too.
    lisalu 1 Replies
    • September 23, 2008
    • 10:32 PM
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