Discussions By Condition: Autoimmune Disease

I was DX with FM 2003.Positive ANA and SSB(but negative SSA)2014,joint/muscle pain,fatigue,dry mouth

Posted In: Autoimmune Disease 3 Replies
  • Posted By: Cristina
  • March 23, 2014
  • 03:49 AM

I have had a fibromyalgia diagnosis for years but I have suspected for a long time that I may have an autoimmune disease. Docs would do basic labs and basic ANA and say they were negative. Symptoms are hair loss, infertility, Raynauds, muscle and joint pain, hypermobile joints, debilitating fatigue, dry mouth, skin and eyes, IBS, sinusitis, RLS, leg edema, migraines, dysphagia, dental caries, brain fog, pitting in fingernails, ridges in toenails, recurring Candidiasis and BV, pain in left ovary, low grade fever, (benign) lump in breast, dysmenorrhea, possible carpal tunnel, SI joint pain, rotator cuff injury/tendinitis, etc. My current PCP ordered comprehensive labs. I am not including all of them:

ANA SCREEN WITH REFLEX- positive/negative
ANA PATTERN - homogenous
ANTI-dsDNA - 2
SSA - <0.2
SSB - 1.8
MCHC - 31.7

Has anyone else had a similar experience? I have a feeling doc will say on Monday that ANA is barely a positive and that SSB is probably a false positive due to SSA being negative, but I know something is wrong and it's getting worse. Thanks in advance for any input.

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3 Replies:

  • have they checked you you for CVID? common complaints are infections, arthritis, fibro and lots of GI problems.. hope you feel better & get results
    Anonymous 1 Replies Flag this Response
  • Omg! This is like an EXACT description of me! It was so similar its kinda creepy.It's been over 7yrs now that I've been sick! It's such BS! I've been2 100's of Drs &cuz I don't alwys look super sick on outside&cuz almost all tests they do don't show much, according 2them, they don't evn bother 2listen 2me. I have all ur symptoms plus a TON more! I have pgs of symptoms cuz the longer it goes on the worse I get. I'm 33 &live in bed all day, evrydy alone. I have enuf on tests 2get @least a guess...
    Anonymous 1 Replies Flag this Response
  • This me to a 'T'!!!! I finally found the right neurologist and he thinks it is a rare autoimmune disease called Hashimoto's encephalopathy!! Look into it!! It's shocking all the havoc it causes!! Let us know how you are. I have been sick for many many years and also was told that I had MS for many of those...when I didn't!! I am getting my blood work back next week to get a full diagnosis.
    Cshell 1 Replies
    • August 26, 2014
    • 05:34 PM
    • 0
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