Discussions By Condition: Autoimmune Disease

I suspect autoimmune in my son, allergic to cold

Posted In: Autoimmune Disease 0 Replies
  • Posted By: cubsmom
  • January 20, 2013
  • 07:15 AM

2 years ago in winter my now 13-year-old son started getting hives all over his body and his hands and feet were red and very swollen to the point his fingertips would sometimes turn purple and he couldn't close his hands or put shoes on. Sometimes his face would swell up and he would look like a cartoon of himself. This only happens when he goes outside into the cold air. It happens around home, at school or across town. He has no symptoms during the summer (warm weather). If I put an ice cube on his arm he will get hives on that location. I started taking pictures as doctors think I'm a crazy mom. I have been fighting with doctors to do blood tests and finally got tested with an arthritis panel. Background: At age 5 a doctor said he had psoriasis, he did for about 2 years then it went away. At age 7 he developed vittiligo (spots without pigment) on his belly and hips, they have grown bigger as he grows. At age 9 after always doing well in school he suddenly couldn't focus on anything and still cannot concentrate, doctor said he has ADHD and put him on Adderall which he still takes. He is the opposite of hyper. He sleeps a lot and is almost lethargic, failing in school now. At age 11 he started the above, "allergic to the cold". Doctor sent him to Allergist, testing said he is allergic to our cat. I kept him inside for 4 days with the cat, no hives and swelling at all. The next day I told him to walk around the block, when he came back in he had the crazy symptoms. Doctors gave him Singular at night, Zyrtec in morning, Benadryl everyday and gave me 2 Epi-Pens and called me a bad mother for not getting rid of my cat. Lab results from last week: He has thyroid antibodies "through the roof", very high TSH and high T4. Doctor took more blood that day just to confirm the results cause it was so high. I have been online trying to piece it all together with something. Doctor tells me the hives and swelling hands, feet and face have nothing to do with thyroid. He is also very grown for his age (in my opinion) 5'8" and had to start shaving at 12. Does this all fit together with an autoimmune disorder or are these just seperate problems? My mom gut tells me there is something going on or am I nuts? Thank you!

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