Discussions By Condition: Autoimmune Disease

Hi my name is Pat. I've been dxed with autonomic nervous disease. Any advice? do you take steriods?

Posted In: Autoimmune Disease 0 Replies
  • Posted By: Anonymous
  • November 9, 2014
  • 00:26 AM

I've been taking many meds for blood pressure and heart rate that go up and down, irritable bowel with sudden diarreha? But, the doctor put me on steriods? I do not want to take them...is it necessary? My mom died because of them. Please, any advice would be so helpful. I go for another tilt table test in Dec. Several others too: sweat test? I have tachycardia and get severe weakness. Passed out several times and once had a mini stroke..affected my left side. Better now but still weaker. Left eye droops.

I thank God for helping me but I really need someone to tell me their experience? I am 64 and haven't felt well for several years. This just came tumbling down on me these past months tho. I'm a pastor's wife and try so hard to be there for him and the church. Am I going to be able to continue? Please be honest?

My neurologist trained at Mayo Clinic tho I live in STL. I trust him. Thanks to each of you. God bless you. Pat

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