Discussions By Condition: Autoimmune Disease

Hashimoto's encephalopathy-anyone out there with it, can symptoms premenstrually?

Posted In: Autoimmune Disease 0 Replies
  • Posted By: anushka
  • July 28, 2009
  • 04:13 PM

I have been suffering from headaches since I was 8 years old and am now 36 yo fem. In last 5 years, they have worsened incredibly. We have a very strong family history of migraine and so all the neurologists I had been to concluded that this was the diagnosis. I was placed on every imaginable prohylaxis with all the textbook side effects, was consuming triptans like candy with no effect at all anymore, inc ER visits and hospitalizations for pain management.
This year, I began having chronic daily headache and was really struggling to make it to work. Accidentally we discovered last year that i seemed to be steroid responsive. Why accidentally? Well as a last resort to break a 30 day pain cycle, prednisone was started in desperation and i gained some relief.
About three years ago, I dveloped insidious onset of fatigue, muscle weakness, emotional upset,difficulty coping and i was discovered to be hypothyroid. Appropriate rep therapy was started with good results but the HAs were still a huge isssue. Finally after 2 normal scans, 2other neurologists, I started seeing a new one 7 weeks ago. He recommenced systematic and methodical treatment with daily tweaking and updates, went back into my past history and asked for thyroid antibodies which were high. Two weeks ago i was`started on 60 mg prednisone. So after having intractable, chronic daily headache for 63 days, I am finally having a manageable time of it.
If there is anyone out there with same, I would be happy if you could post a response. Also i have found the last two days have not been as good as the previous 4. Could be due to period being due in about 5 days? I would usually get menstrual migraines anyway.

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