Discussions By Condition: Autoimmune Disease

Diagnosis of Wegeners, 17 years survival +

Posted In: Autoimmune Disease 0 Replies
  • Posted By: Apache
  • April 23, 2012
  • 05:57 AM

For ten years I searched for the answer to my Illness, my healthy way of life, positive attitude, allowed me to become a Survivor from stage 4 end case kidney failure at the time of diagnosis, 2007. This disease is very, very expensive to live with. Strong friends and close family ties are very important. It took two years to get it in remission, but the side effects from the disease & toxicity from years of medication are taking a toll on my health, kidneys have been in low end of stage 2, which is great, lungs are having some difficult from flare ups. Life as I once had, is gone, there is nothing normal about this disease, your new life is based around being healthy and learning to live your life now, before its to late to live. I can tell you of my Wegener's, but there is never any case that is exact the same, every case is different, but similar to the nature of the disease. It is a rare disease, with no cure, yet, hope will never be lost as long as there are Survivors, helping to get the word out. A simple runny nose, that for 17 years +, has never gone away, is a trade mark of this disease, I have searched for years for answers, I am still searching. If I can help, write.

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