Discussions By Condition: Autoimmune Disease

Beyond frustrated possible autoimmune???

Posted In: Autoimmune Disease 2 Replies
  • Posted By: Anonymous
  • December 1, 2007
  • 06:19 PM

Hello and thank you to everyone who takes the time to read and or answer this post.

I'm a 26 year old mother of 3 with all sorts of strange symptoms. I've recently seen a rheumatologist and am still awaiting yet another round of bloodwork. I'd have to say my symptoms started 4-5 years ago, possibly earlier. Before now (when they were milder) I used to just brush it away because I was more interested in taking care of my children then myself, but now I'm to a point where I'm having a hard time even doing that. Please I'm begging anyone out there with any insight, ideas, or other avenues of thought to please reply. Many of you are or have been in the same boat, with doctors brushing you off, giving you the run-around without actually getting the to the bottom of things.

The symptoms that I've experienced are : arthritis in ankles, left knee, and hands, extreme fatigue, severe dizziness (I have to grab whatever I can to steady myself), nausea mostly after eating, memory problems, tinnitus, hearing that will suddenly go out and slowly come back in (sounds like I'm in a tunnel), hearing loss in left ear, muscle twitches (arms, thighs, calves, knees, face, and ...rectum (sorry)), tremor in left arm, tingling in all extremities, fibromyalgia, stabbing pain in left ear with popping noise in joint, and muscle weakness. I also had a period of about 4 weeks over the summer with tightness in my chest followed by pain with deep breaths. I never saw or told my doc since I had no symptoms of a cold or respiratory infection. One question I have is if pleurisy goes away on its own, or once you have it does it continually get worse until it's treated??? Another thing I've noticed is tiny pin ****k red dots up and down my arms, on my thighs and a few on my belly. I'm thinking these are petechiae but my platelet count is 350k, and the intern who saw me before the rheumatologist blew me off without actually looking at them. Like I said they are tiny, randomly placed, with a few groupings. Infact he blew me off right from the beginning and said I was to young, and was a bit of ***k until I went into the long list of symptoms. Oh and I've also struggled with anemia that is finally under control after 7 months of iron 3x a day. So my 2nd question is can iron deficient anemia be caused by chronic illness?? The rheumatologist is assuming it is due to my period but my FP is convinced it is not. I've also had complicated pregnancies with UTI's (resulting in one kidney infection) and anemia in all, gestational diabetes in the last 2, and high blood pressure with the last.

The bloodwork I've had done so far is all normal except for a positive ANA at 1:320 with a speckled pattern. I've had an MRI due the tremor and there was nothing significant except for scarring on my sinuses. I have a very strong family history of autoimmune diseases including lupus, RA, polymyositis, polycythemia, ITP, Multiple Sclerosis, Diabetes, Sjogren's, Myasthenia Gravis, Kawasaki's, and some others my aunt could not think of. My great gram had RA and 3 of her 7 children have lupus and overlap diseases.

I'm completely frustrated and know from the progression of symptoms that there is something going on and that at 26 years old I should not feel like this. I've heard the "well it's tiring and stressful taking care of 3 children" and "it's probably nothing".

Thanks again for your time, sorry for the ranting, I'm just tired of waiting. Waiting with no answers for some other nasty symptom to rear it's ugly head.

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2 Replies:

  • Hi I don't have any suggestions for you, but I wanted to tell you that I completely understand how you feel! We are so similar, right down to 3 children and the knees. Except my platelets are low (136), I didn't have any complications with pregnancies, and that I have just started down this road. I agree with you that it seems that everyone wants to say "it's the kids"......if only it were true. I also feel that it is something autoimmune going on, and have been referred (after new years) to a hematologist and rhumatologist. Hopefully we both can figure out what is going on, so we can enjoy our children while they are young!:)
    buggysmom 7 Replies
    • December 20, 2007
    • 05:32 AM
    • 0
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  • Hi, I have also just started out on this road. I'm 29 with 3 children aged 6, 4 and 2 over Christmas I developed Acute Iritis and shortly after I was treated for this I started to get severe pain in my hands and wrists and in my left ankle which swelled and went blue after a shift at work, after going back to the doctors he referrerd me to a Rhematologist who I saw today who told me nothing is wrong with me when there obviously is. The problem is the joint pain is not all of the time and I seem to have flare ups, when I do I can't even hold a pen. I have Iritis again at the moment and don't seem to suffer these at the same time yet. I am wondering if it is stress related. Do you get your pain all of the time? Or does it come and go? When I get pain, the veins in my hands go a bright blue colour, I also get numbness in the ends of my fingers and tingling sensations sometimes. Also does anyone else suffer with ulcers in the mouth and severe bleeding of the gums? I do and also sore and swollen tongue. I have no idea what it could be either and feel a fraud going to see a doctor when I have no flare up, but know it will keep happening. I also feel this is auto immune but feel extremely disheartened when I am fobbed off by so called doctors who tell me just to take ibuprofen.If I get any answers myself I will let you know so that we may all be able to get a solution. Take care.
    Anonymous 42789 Replies
    • February 12, 2008
    • 05:49 PM
    • 0
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