I have not been officially diagnosed with vasculitis, but all the symptoms point to it, although my ANCA is not positive. I have been started on Cellcept which has helped me out a lot.
Here is my weird symptom. Please reply if you have the same thing. Whenever my kidneys hurt or pass a kidney stone, I have a flare up with my lungs. My oxygen saturations drop and I begin to cough. I have finally got the doctors to believe me and see the coincidence.
I have a lot of respiratory problems and kidney problems. I just had kidney stones removed with the stones being on the left side and one on the right. Three days later, I am running a high fever, coughing and a lot of pain. There was not any infection. Doctor said it was an inflammatory response. I would be very interested in hearing from anyone that has any of the same symptoms.