I had a sister,who suffered of having MCTD for ten years. Sadly, she passed away few month ago. Pulmonary Hypertension was the direct cause of her death. After here death, I started to worry of this disease, specially when one of friend told me, that this disorder may have genetic predisposition. I started my search, and found that this disease my affect women in all ages for families having history of autoimmune disease.
I'm now 27 years old, married, and planning to have a baby, I never suffered of any autoimmune disease or any other major health disorders, but the fear of developing MCTD or SLE, is disturbing my life and may families plan of having children and care of them.
I'm searching an advise of specific genetic tests and specific centers in USA (you may know) that can make such tests. I believe making such tests will relief my fears me and make me ready to any possibilities in my life.
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