Discussions By Condition: Arthritis

more than arthritis????

Posted In: Arthritis 22 Replies
  • Posted By: Anonymous
  • June 28, 2006
  • 01:11 AM

stiff painful joints, especially in the am. about an hour before I can walk without extreme pain and stiffness, weak crampiing muscles. Also nausea, extreme tiredness as well as hot and sweating. Can do very little after about 5-6 hours of activity. I can no longer walk a mile a day and get all the things done that have to be done. Anyone out there with a better diganosis than just arthritis?

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  • dixie, I'm in the same boat . I'm 53 ,and have always had active life,worked hard physically,am not over wieght and otherwise have no health issues.About six months ago started to be extremely stiff in the morning, and have progressed or should I say regressed to where Iam today ! I can't sleep longer than a couple hours at atime with out waking because of pain.I have intense stiffness and pain in knees ,hips ,back ,and just lately ,my wrist and hands. In addition I also have soreness in muscles that surround these joints. As the day goes on I seem to loosen up somewhat,but it may take hours to reach that point. Iguess I'm fortunate, if you want to call it that, That I just had rotator cuff surgery and trying to rehab the shoulder while dealing with this . Any way I'm off work with that injury and am concerned that unless I get this straightened out I can't possibly go back to my job. I also have problems with sitting any length of time without getting uncomfortable in the muscles down the back of the legs,hamstrings and glutes.And of couse getting out of chair . Sorry to be so long winded but never heard of anybody with the same problems . Would appreciate a post on thi site if you ever find out whats going on. Thanks Tim
    Anonymous 42789 Replies Flag this Response
  • dixie, I'm in the same boat . I'm 53 ,and have always had active life,worked hard physically,am not over wieght and otherwise have no health issues.About six months ago started to be extremely stiff in the morning, and have progressed or should I say regressed to where Iam today ! I can't sleep longer than a couple hours at atime with out waking because of pain.I have intense stiffness and pain in knees ,hips ,back ,and just lately ,my wrist and hands. In addition I also have soreness in muscles that surround these joints. As the day goes on I seem to loosen up somewhat,but it may take hours to reach that point. Iguess I'm fortunate, if you want to call it that, That I just had rotator cuff surgery and trying to rehab the shoulder while dealing with this . Any way I'm off work with that injury and am concerned that unless I get this straightened out I can't possibly go back to my job. I also have problems with sitting any length of time without getting uncomfortable in the muscles down the back of the legs,hamstrings and glutes.And of couse getting out of chair . Sorry to be so long winded but never heard of anybody with the same problems . Would appreciate a post on this site if you ever find out whats going on. Thanks Tim
    Anonymous 42789 Replies Flag this Response
  • could be ankylosing spondylitis - similar to arthritis but is inflammatory condition affecting spine, hips and sometimes other joins - makes you feel tired and sometimes unable to get up at all - I am not a doctor but treatment I think involves gentle mobilisation of joints eg yoga + antinflammatories - hope this helps:)
    Anonymous 42789 Replies Flag this Response
  • I am in the military and have the symptoms of arthritis. The medical facility that I go to has not given me a diagnoses I have been told a range of things from arthritis to tendinitis and when I was in my schooling for my job I wasn't told either. I was given medicine and sent to therapy for 2 months which didn't work the pain always came back. I still haven't been told what is wrong with my knee. And now that I am 5 months pregnant the pain has gotten worse and after my child is born they want me to go on anti-flammitory drugs and do therapy again. They give me medicine but don't tell me what is wrong. I am extremely frustrated and I found out that if I go to medical 3 times or more for the same thing I will get discharged. As of now I'm like if they dischage me then they do. Then maybe I will be able to go to a real doctor. Extremely frustrated What should I do. Email me at brianne.albert@usmc.mil
    Anonymous 42789 Replies Flag this Response
  • There are about 100 (!!) different kinds of arthritis. that's what I learnt in the "Arthritis Selfmanagment Course" I took a few years ago. The symptoms you are describing sound like rheumatoid arthritis, a progressive form of the disease. My neighbour suffers RA and is being treated by a rheumatologist. I feel so sorry for her because she is in constant pain - -
    Anonymous 42789 Replies Flag this Response
  • yes get tested for ankylosing spondylitis, it is a chronic form of arthritis. the gene you just be tested for is the HLA 27B. if you are positive it is more than likely that you have it. everone that has this disease is different as it effects the spinal column. women are often overlooked and not tested for this, you have to find a very good rheumy, it took me 6 years to be diagnosed. i had fatigue pins and needles, chest rib pain. sensitivity to the sun, worse in the cold. and altitude. burning. stiffness, etc. the test runs about $150, :) i hope this helps onset can be in the teens(i was only 17) usually diagnosis is before the age of 40. i was 36 before i was diagnosed this was because i saw a very experienced rheumy who had worked at the mayo clinic, after two visits he had diagnosed me where 7 specialists could not. i hope you insist your doctor to perform this test is because they don't look for it in women like i mentioned before and if you do have it there are medicines to stop the or slow down the progression of the disease, especially before it has done its damage. it is a very very painful condition. god bless i hope you don't have it but if you have gone to quite a few doctors and really don't feel that you are getting better this could be your answer.
    copbond1 2 Replies
    • October 9, 2006
    • 07:36 AM
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  • You definately have RA and the sooner you can get treatment the better you will beAll your symptoms are exactly what I have and I was diagnosed with RA 6 years ago bouncing from doctor to doctor thinking I was crazy I also was very physical(Horticulturist) and thought because I was on my feet all the time that that is why my feet hurt so muchI really feel it all had to do with MenopauseI will also say that They first thought I had Ankylosing spondylitis and there is a test that can tell you that. That is mostly men that get that diseaseGood luck and please go to a rheumatoligist before anymore damage is done to your joints.
    Anonymous 42789 Replies
    • October 16, 2006
    • 10:30 PM
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  • Would suggest AS - Ankylosing Spondylitis. Yes, has been and still sometimes opined, that effects men more than women. There is a test, HLA-B27. Which is not definitive. Not everyone HLA-B27 is a spondy nor does every spondy exhibit HLA-B27 - especially women! Recently, just a few months ago, Australia no longer require that the HLA-B27 factor be a definitive disgnosis for AS and for the latest biological drugs: Humira, Remicade, Enbrel etc etc. AS affects Women differently to men: men more often exhibit spine and fusing than do women, women often exhibit more shoulder problems and feet problems than men. Both groups can interlink and exhibit the full gambit. That's AS. Horrible condition.The BEST information on AS is available from the KickAS Forum: www.kickas.org Over 3000 members and growing. The very best of the information, most up-to-date with patient's experiences, drugs, latest facts and also addresses diet and alternative therapys. Amazing group - not pharma funded nor run. Entirely *independent*. You get the facts of the matter at KickAS.To get a handle on the problem early diagnosis is best. Will need to find a 'good' rheumy - most are very run-of-the-mill. Research and don't accept second rate.Hope this help.Mollywho now has a good rheumy
    Anonymous 42789 Replies
    • December 17, 2006
    • 01:04 PM
    • 0
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  • Dixie, consider Fibromyalgia and/or Chronic Fatigue Syndrome :eek: I copied this from my post above: Arthritis for many is worse in the morning. Morning stiffness and un restful sleep is also notorious for Fibromyalgia. I have been diagnosed with this. I have a reactivated Epstein-Barr virus infection, which can cause CFS (Chronic Fatigue Syndrome, which I have also been diagnosed with). I totally believe it is due to all the radiation that I have had from heart disease tests and procedures. My research has shown that heavy radiation doses can cause this.I have had a huge radiation dose from 8 cardiac catheterizations and one "64 Slice Coronary Artery CT Scan", within a 3.5 year period.It took a quack to order all the proper blood testing to determine this reactivated EBV infection. Traditional doctors do not order this test, even when one is sick and the cause is illusive. I think everyone that is in this situation should have and expanded panel EBV test. A reactivated EBV infection has a strong association with some types of cancer including different lymphomas.Good luck,Rj
    Irradiated 23 Replies
    • December 17, 2006
    • 05:45 PM
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  • What is reactivated EBV?? I've never heard of that. I had mono/EBV when I was 14, and never really recovered. I finally was told it was CFS just because they had no other answer. In the past couple years though, (32 now) I have started having alot of new symptoms......joint pain and swelling, hypermobility of some fingers, rashes, skin lesions, low grade fevers, reynauds, sharp stabbing pains in hands, feet, even eyes. My fatigue now is soooo much worse! If I am very active one day, I'll be out of commission for days after. My GP has me seeing several specialists for the various symptoms, but noone seems to see the big picture of all the symptoms together. I had an appt with one Rheumy who was AWFUL, and now feel hopeless. He was evaluating me for RA, SLE, Lyme, etc. with no diagnosis. He made me feel like I was crazy. I also have the lower back problems. I feel like giving up and trying to grin and bear it as in the past with CFS, but its worse everyday. Do you have any thoughts?? Thanx:confused:
    mforbes1974 6 Replies
    • January 12, 2007
    • 04:28 PM
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  • The EB virus that causes mono stays with us forever. More than 90% of all adults carry this virus. Normally it remains dormant and does no harm. In some people the EB virus becomes reactivated. The reason why is not clear but the general concensus is that a weakened immune system due to extreme stress, traumatic injury or disease, etc. causes the reactivation. I have also read that radiation weakens the immune system, proportional to the dose received. I believe this allowed the EB virus to become reactivated in myself, after being exposed to large doses of ionizing radiation from heart tests/procedures. I have had the EBV "extended panel test" which is the only test that checks for reactivation of the EBV. I am positive for a "chronic active EBV infection". This is associated with many types of cancer, especially lymphomas. Google "CAEBV" (chronic active EB virus) and have the test that I mentioned. Good luck, Rj
    Irradiated 23 Replies
    • January 12, 2007
    • 08:41 PM
    • 0
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  • Thanx Irradiated....I will definitely look into that. Although I don't think I've been exposed to anything toxic, radiation or otherwise, I have never felt right after my bout with mono. I'll let ya know if I find out. Thanx again:)
    mforbes1974 6 Replies
    • January 12, 2007
    • 10:20 PM
    • 0
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  • Yes it certainly sounds like chronic EBV to me. The symptoms can look like RA. Joint pain is a definite symtom. Yes an extended panel blood test for ebv can help diagnose. I have the chronic situation due to probably having diabetes which of course makes me in an already weakened state. There are a couple of ebv groups on yahoo groups of people who have been diagnosed with the chronic form if you become diagnosed. It is rare to have the chronic form so it is hard to find correct info. S.
    Anonymous 42789 Replies
    • February 19, 2007
    • 01:48 AM
    • 0
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  • Thanx for your input...I had EBV 19 yrs ago, so its a possibility...I'll mention it to my Doc.:)
    mforbes1974 6 Replies
    • February 19, 2007
    • 10:55 PM
    • 0
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  • stiff painful joints, especially in the am. about an hour before I can walk without extreme pain and stiffness, weak crampiing muscles. Also nausea, extreme tiredness as well as hot and sweating. Can do very little after about 5-6 hours of activity. I can no longer walk a mile a day and get all the things done that have to be done. Anyone out there with a better diganosis than just arthritis?Dixie, what you are describing are my symptoms - for psoriatic arthritis. Mine hasn't been an easy-to-remiss, mild version that you so often see described in definitions. Mine makes me sick, literally. Take a look at the http://www.nationalpsoriasis.org/ community section, member chat and read some (older, especially) posts about how severe, varying, difficult PsA can be.Good luck,patti
    Anonymous 42789 Replies Flag this Response
  • Dear Patti, I read your reply. was just diag. with Psoratic Arthritis, I'm trying to get more info. and other peoples experiences. I keep trying to get on the web site you gave thru your link and straight there and it keeps saying that sites not working. Do you know of any other usefull sites. Thanks for any help you can give. Gina
    Anonymous 42789 Replies Flag this Response
  • Dear Patti, I read your reply. was just diag. with Psoratic Arthritis, I'm trying to get more info. and other peoples experiences. I keep trying to get on the web site you gave thru your link and straight there and it keeps saying that sites not working. Do you know of any other usefull sites. Thanks for any help you can give. Ginaemail me at patti@insightbb.com
    Anonymous 42789 Replies Flag this Response
  • Rickettsia (tick fever, many types) is often mistaken for rheumatoid arthritis. But if it is arthritis, try this for a month? Totally avoid all bread (including pizza etc), red meat, and chicken. Tinned tuna you can have. Diary and eggs are okay - if you are not allergic to them (in the usual sense). Avoid alcohol as it contains yeast. Take plenty cooked veggies but no spinach. Get an homeopathic remedy for gout at a health shop, we have one here called "Gichtin" that works well. Also get "Resque Remedy".These are however just emergency fixes, to start with immediately. You will find scores of posts on these forums with very similar symptoms, and where many expensive doctors could do nothing. So please read what Eatafruit78 says at http://forums.wrongdiagnosis.com/showthread.php?t=13092 - visit www.naet.com to locate a therapist in your area. A traditional Chinese doctor is another great idea, see www.acufinder.com to locate one.
    Curly Stooge 319 Replies Flag this Response
  • I also have no doubt you will find these posts interesting -http://forums.wrongdiagnosis.com/showpost.php?p=42284&postcount=10http://forums.wrongdiagnosis.com/showpost.php?p=42295&postcount=20http://forums.wrongdiagnosis.com/showpost.php?p=42182&postcount=18 Remember to read these external pages (in full please): www.drcarley.com and http://members.aol.com/doctorrmosk/articles/hidden.htm - thank you.
    Curly Stooge 319 Replies Flag this Response
  • I think that in this case. Cerebrex is quit good. But a doctor knows better.
    Anonymous 42789 Replies Flag this Response
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