Discussions By Condition: Arthritis

10 Year Old Daughter - arthritis symptoms, no diagnosis

Posted In: Arthritis 11 Replies
  • Posted By: bbrock
  • August 5, 2008
  • 08:01 PM

My 10 year old daughter started saying her ankles hurt over a year ago - it would come and go and didn't disable her in any way. In Feb. 2008 she got sick - I thought she had strep throat but the test came back negative. Then during a soccer game in Mar. 2008 she had to be carried off the field because her ankles hurt so bad.

At first they thought it was tendon problems. In Apr. 2008 they ran some blood tests. ESR was at 26, ANA negative and has the HLA B27 gene. We were sent to a pediatric rhuematologist but he said it is not JRA.

Since then we have went through physical therapy - which helped. She went from crutches to a cain and then to a boot cast. Everything seemed better a couple weeks ago - so we took her off the boot cast and she was running around for the first time in over 4 months. After a week and a half her left ankle (which is always more painful) swelled. Took her to the pediatrician - he thought the tests would come back to show something related to arthritis this time - but it didn't.

I thought she may have Reiters Syndrome since this is heavily associated with the HLA B27 gene or has the beginning symptoms of JRA. But, since the doctors are not sure - they say to keep in her the boot cast and send her back to physical therapy.

A couple days ago she developed a couple of rash areas....pink silvery scale on the edges....took her to the doc thinking maybe she has some sort of psoriatic arthritis.....he doesn't think it looks like psoriasis. But we have an appt with the derm next Monday. She has also had itchy eyes over the last year - so we have an appt with the opthamologist in a couple weeks.

I am so frustrated and feel there are more tests that could be done - I just don't know what they are.

I would really appreciate any ideas on what we should do next!!!

Thank you!

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11 Replies:

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    MICHAEL LANCASTER 5 Replies Flag this Response
  • Hello...Where are you living?I am 26 years old and finally have my "not RA" under controle. I spent many years with alll kinds of stange sysmptoms and was eventually diagnosed with Still's Disease.I would love to talk to you about your 10 year old. I may have some advice .please e mail me:eggwash1020@yahoo.comMarrah Berquist
    Anonymous 42789 Replies
    • October 29, 2009
    • 08:41 PM
    • 0
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  • I feel for you. I have an 8 year old daughter that has arthritic like back pain. She has not done any heavy lifting or anything that would have injured her back. My wife says that our daughters description of the pain sounds just like her arthritis.-GM
    Anonymous 42789 Replies
    • December 17, 2009
    • 08:39 PM
    • 0
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  • Hello BBrock (or anyone who feels they can speak to this). My niece is going through this exact thing. "maybe JRA" but maybe not. rash in morning and evening only. Did you ever find anything out? Do you have any advice?
    ITISIT 1 Replies
    • November 20, 2010
    • 06:39 AM
    • 0
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